Posts Tagged ‘Living with chronic illness like RA’
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Mission Impossible: Crowd Management with RA
Whether you take mass transit, work at a crowded office, or attend conferences like I have recently, managing in a crowd with RA is challenge. This may be one more mission impossible, should we choose to accept it… It’s hard to explain RA to anyone who hasn’t lived it. Have you ever had a sprained ankle [...]
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Do you have a Rheumatology Care Team?
What’s a rheumatology care team? When I wrote the About pages for this site, I discussed the team of doctors and medical professionals that a person fighting Rheumatoid Arthritis might gather around him. Like Diabetes, I realized that people with RA could need plenty of monitoring and advice. The other day, I read an article in [...]
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More Rheum Adventures on the Road
Happy Saturday, y’all! Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control, healthy snacks, music, and lots of rest stops. For the first half, we stopped for 10-15 minutes after every hour of driving. [...]
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Will the Next Frontier Be Rituxan?
I spent a couple of hours tonight searching for a Rituxan blog post I wrote a couple of weeks ago. Finally, I figured out there’s only one way to make it come out of hiding – write it over again. (Murphy always lurks, but we can outsmart him.) Working my way toward Rituxan You know [...]
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RA is Tricksy: Wandering by The Two Towers
I hope you enjoy this little guest post from Dana. Her imagination wanders in a way that’s similar to some other fun trips we’ve taken with Goldilocks, the Princess and the Pea, and others. Please visit Dana’s blog; she’s been a great ally to our effort here for a long time and significant voice of [...]
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Santa, Bring Her a Rheumatologist Please
Wanted: good rheumatologists Sonya’s tweet brought me a smile. So much truth in so few words. Those of us with rheum diseases like RA need a good doctor the way most people need a reliable car mechanic. We might crash and burn without it. This is short for two reasons: 1) I don’t have a [...]
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I Want My Life Back
RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want [...]
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Without e-Patient Input, an ER Experience Can Be Empty
Things that patients know about their health and the wealth of information they find online make input from patients valuable and meaningful. These patients are called e-patients. An e-patient acronym: Expand Participation by Allowing The Input of Evidence Not in Textbooks Hopefully, you didn’t miss the exciting news for rheumatology e-patients acknowledging that by “pooling [...]
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