Posts Tagged ‘Pain Tolerance / RA Stoicism’

  • Opioid Restrictions Versus Patient Needs

    Discussion of possible negative effects of opioid restrictions on people with legitimate need for medications. Excerpt of Kelly O’Neill Young’s BMJ article.

  • When Our Strength Works Against Us

    Last month, I called your attention to an article that truthfully presented the reality of Rheumatoid Disease, asking you to thank the site – and many of you commented there. One exchange reminded me of many I’ve seen over the years. Carly made a tricky point that seems like a catch-22 (no-win situation). Norma’s response […]

  • Tweeting an EMG: Another Way to Research Pain

    Really important stuff that I read last week, while researching pain scales, will not be on the blog today. I’ve been thinking a lot about how differently a disease affects us and whether we can honestly communicate about that. When Dana asked for resolutions at the weekly #HCSM (healthcare communications in social media) chat, I said I […]

  • Behind the Scenes Video: Patient at a Social Media Conference

    Telling it like it is. On camera. It’s uncomfortable. It’s very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us […]

  • IOM Pain Report Relieving Pain in America Gets Mixed Reviews

    Institute of Medicine (IOM) studies pain in America This past summer, the Institute of Medicine (IOM) produced a report on the status of pain treatment in America called Relieving Pain in America: A Blueprint for Transforming Prevention, Treatment, and Research. (You can download a prepublication PDF of the book at that link.) The report recommended […]

  • “Fine Thanks, and You?” and 5 More Stupid Things I Say

    1) “Do you want your rubber duck?” The favorite rubber duck has a squeaker which lets water in. Squeezing the water out of that duck brings severe hand pain. Not quite as much as the softer Thomas squeaker toys. (And water also hides in the duck so it has to be squeezed for two days.) […]

  • RA Reality Versus “The Lie”

    When everything looks normal but it’s all wrong Countless times I’ve said that I would gladly be wrong about RA. I’d gladly be delusional instead of this sick. I often say “If only I actually were crazy. Then, I could take medication and at least believe I felt better.” Of course it’s a facetious remark, […]

  • The Tug of War of RA Awareness: Privacy of Pain & Agony of Disclosure

    This week’s post on Rosalind Russell raised some important questions. A comment by Ronda was highly critical of Russell for the way that she hid from the public the severity of her suffering due to Rheumatoid Arthritis. How can we raise awareness if we hide how bad it is? It’s a good question. Rosalind Russell […]

  • Alice Goes to Jacksonville: Mayo Clinic Center for Social Media

    What’s the Mayo Clinic Social Media Health Network? I joked a lot about Alice in Wonderland this week as Katie Beth and I traveled to Jacksonville for the first meeting of the Advisory Board for the Mayo Clinic Center for Social Media (MCCSM). It was combined with a conference for members of Mayo Clinic’s new […]

  • Patient’s Rebuttal to RA Pain Catastrophizing Claims

    Part of me would like to back down. But this pain won’t let me. Is it ironic that I encounter the most cruel RA pain in years at the same time I encounter this argument again about RA pain, catastrophizing, and depression? Relating pain, catastrophizing, and depression to RA Ironically, an article called “Pain, catastrophizing, […]

  • The Hypochondria of RA Pain: Do I Smell an Elephant?

    Hypochondria is an elephant in the room with RA pain The elephant house was always my favorite place at the zoo. We always knew when we were near it …by the smell. So, how can an elephant creep into a room? They don’t exactly tip-toe. Maybe what happens is that nice people don’t discuss certain things, […]

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