Posts Tagged ‘Patience & living with RA’

  • Relax: Survival Mode and Our Intrinsic Value

    The past few weeks have been full of chaos and minor crises. Not enough to stress me out, but enough to keep my days overfull with no strength left at the end to write – only sleep. I read last month of a study of mothers of more than three children1, that they are less […]

  • Anyone Else Lose Time Thanks to Rheumatoid Disease?

    I lost another week. Anyone know where I put it? Seems like the left side of my cervical spine had an inflammation party this week. I ended up with some swelling that pinched the nerve going down the back of my arm and pushed a rib out near my shoulder blade. The orthopedic doc figures […]

  • Mascara, Antibodies, and Soup: All I Know about a Disease

    I always thought living off fresh smoothies and homemade soup along with regular exercise would keep me strong. And surely working hard and caring for others makes one too busy for chronic illness. All I know is that I woke up one morning and my toes were pointing out in odd directions because the joints […]

  • Lessons from a Dumb Phone & a Disabled Computer

    Last month I ordered a lightweight keyboard to use with an iPad. I planned to get one to downsize for travel, so I’d be more able to manage my briefcase alone when needed. I’m typing on that keyboard today from my sofa for another reason… Almost 2 weeks ago, I went through a Microsoft upgrade […]

  • RA Reality Versus “The Lie”

    When everything looks normal but it’s all wrong Countless times I’ve said that I would gladly be wrong about RA. I’d gladly be delusional instead of this sick. I often say “If only I actually were crazy. Then, I could take medication and at least believe I felt better.” Of course it’s a facetious remark, […]

  • My Birthday Cards to Make You Smile

    By the time I go to sleep it will be my birthday. It is a strange occasion. Just about five years ago, my whole life changed when occasional RA flares became a full-blown disease. Like many of you: not very many people in my life knew what Rheumatoid Arthritis is. Most of them still don’t. […]

  • Health Blogging: Complications and Blessings

    Health blogging as a patient is tough The last month has been hard. Who am I kidding? The last five years have been brutal. The RA is always the same: Just a little worse than yesterday. Like so many of you, I look for ways to make lemonade out of this bitter pain. That’s why […]

  • Dealing with Rheumatoid Arthritis and Housework

    My house is dealing with Rheumatoid Arthritis too My house has become a casualty of RA. Dealing with Rheumatoid Arthritis has made it harder every year. The list to-do list gets longer as the list of what I can do gets shorter. I can’t wash dishes – they’re too heavy for my fingers. I can’t […]

  • Living with Rheumatoid Arthritis on Christmas Eve

    Everywhere I turn someone asks me, “Are you ready for Christmas?” I don’t even have the energy to laugh. Nothing is “finished” in the way that it once would have been. No, I’m not ready in those ways. On the other hand, I hope I am always ready in another way… Of course none of […]

  • Rheumatoid Arthritis Medicine and Christmas Cookies

    Holiday Plan of a hysterical woman: Wednesday: Get Orencia IV. Experience immediate miracle. Thursday: Go Christmas shopping all day. Friday: Decorate the house & put up the Christmas tree. Stay up all night to make lots of homemade gifts. Saturday: Mail the gifts. Write Christmas cards. Make cookie dough. Sunday: Bake cookies & decorate. Deliver […]

  • Columbus Day and World Arthritis Day: Is There a Connection?

    Happy World Arthritis Day, Columbus Five hundred seventeen years ago today, a dream came true. Christopher Columbus successfully crossed the Atlantic Ocean, proving that it was possible to sail west from Europe and reach the strange continents of the Western Hemisphere.   The discovery of the New World was the fulfillment of his life-long dream. Although […]