Patient reported outcome measure Archives | Page 2 of 3 | Rheumatoid Arthritis Warrior

Red Feet, Frankenstorm, Unexpected Sympathy, and Travel to PCORI Workshop

Tiger and I left home for the PCORI conference today in D.C. in spite of the fact that many in the D.C. are evacuating from the area! Schools were closed on the Space Coast due to Hurricane Sandy, dubbed #Frankenstorm. In Florida, Sandy wasn’t as big a deal as the half a dozen other hurricanes we’ve...Continue reading      5 Comments » Read more

The HAQ’s, the RAPID’s & the Rest: 3 Reasons It’s a Moot Point

So often when I’m listening to a scientific presentation about clinical care for Rheumatoid Arthritis, I would do the face-palm head-smack, if my shoulder would let me. Depending on who can hear me, I mutter softly or wail sarcastically, “If it’s not done, does this matter?” One example is measuring RA disease activity, especially with...Continue reading      43 Comments » Read more

A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 3

In Part 1, we pointed out that patients and clinicians look at Rheumatoid Arthritis disease activity in different ways. Rheumatologists especially focus on joints, and actually particular kinds of joint activity. Patients face much more with regard to disease activity, as reflected in the post and comments page. In Part 2, we looked at two specific...Continue reading      59 Comments » Read more

Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality

This post was inspired by the article Patient Advocates: Flies in the Ointment of Evidenced Based Care by Jessie Gruman at Health Affairs Blog. Patient advocacy and evidenced-based medicine are both intimately entwined with several matters in rheumatological care, but first a word about flies. Patient advocates probably are flies in the ointment, and there would...Continue reading      35 Comments » Read more

Measuring Rheumatoid Arthritis Disease Activity

Did you ever go to the store for milk and bananas? And come home with frozen pizza and ice cream? Sometimes I spend a couple of hours looking for something and discover something else that’s worth bringing back to you. That’s how I found this ten year old article about the dilemma of measuring Rheumatoid...Continue reading      23 Comments » Read more
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