Posts Tagged ‘Professional patient’

  • Systemic Disease with Joint Symptoms

    Rheumatoid Arthritis / Disease is a systemic disease with joint symptoms although it is commonly thought of as a joint disease with systemic symptoms.

  • Doctor: Posterior Tibial Tendonitis Is “Extremely Common with Rheumatoid”

    We interrupt our regularly scheduled program for a brief discussion of posterior tibial tendonitis in “Rheumatoid Arthritis” (RA) / Rheumatoid Disease (RD). There is a long list of topics I want to cover, but sometimes the RD itself pushes other things farther down the page. This week, I continued to have problems putting weight on […]

  • Livedo reticularis diagnosis – she knelt next to me with a medical textbook

    Last week was one of those professional patient weeks, with three doctor’s appointments and a lab visit. “Professional patient” is not something I happily say. It started out in 2009 as a tongue in cheek way to make the most of an annoying phenomenon – spending several whole days per month as a health care […]

  • If the Gloves Come Off, We Might See the Irony of Rheumatoid Disease

    What if the gloves never come off and no one ever knows. Then you end up with a serious disease that everyone thinks is no big deal; it’s just arthritis. But who wants to take them off? I sure don’t. Professional patient days Today was one of those professional patient days – when you have […]

  • 2 steps forward, 1 step back is not a dance move – It’s just life

    I’m happy to share NINE new onset stories with you! People write to me all the time about how helpful it is to find these when searching for a diagnosis or trying to understand a new diagnosis. They paint a much more accurate picture than the textbooks have so far. Andrea’s Rheumatoid Arthritis story Amanda […]

  • Five Things I’ve Learned about Rheumatoid Arthritis in the Neck

    I promised to write about what’s going on with my neck. It’s hard to sort out what would help others to know, so I made a list of five things I’ve learned. Sometimes, it’s about sharing our journey too. Here are 5 things I’ve learned about Rheumatoid Arthritis in the neck 1) Do not ignore […]

  • Kim Kardashian, Magazines, & a Trendy Practice that Bugs Me

    One perk of having a blog is that you have a place to blow off steam sometimes. Remember when I got robbed and the thieves found their bliss at Target, who tried to pin the bill on me? I always say RAW is my front porch. Where we can just hang out. Or tell it […]

  • Leaving It All on the Field: Not the Safest Choice But Maybe Best

    Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My […]

  • The Confusion of a Smile

    If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I […]

  • Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

    This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with […]

  • Keeper or Loser: I’m Not Giving Up, But What Do You Think?

    Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years: rheum doc and The Wizard. Rheumatologists are the doctors who decide not to sneak out Osler’s infamous back door. I always […]

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