Unrelenting RA - Persistent disease Archives | Page 2 of 5 | Rheumatoid Arthritis Warrior

Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)

January 22, 2014October 5, 2019 Kelly O'Neill 5 Comments Juvenile Rheumatoid Arthritis, Rheumatoid Arthritis symptoms, Rheumatoid arthritis treatment, Unrelenting RA - Persistent disease

In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs...Continue reading 5 Comments » Read more

Juggling Life and a Chronic Disease Like Rheumatoid

January 13, 2014October 5, 2019 Kelly O'Neill 25 Comments Living with chronic illness like RA, Transparency & living with RA, Unrelenting RA - Persistent disease

Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much...Continue reading 25 Comments » Read more

Remaining Pain with Rheumatoid Arthritis Treatment

November 26, 2013May 14, 2018 Kelly O'Neill 30 Comments Methotrexate, Physician-patient discordance / disagreement, Research on Rheumatoid Arthritis, Unrelenting RA - Persistent disease

A common problem: remaining pain with Rheumatoid Arthritis Remaining pain with Rheumatoid Arthritis (RA) has been a topic on RAW since 2009. We've discussed how people manage the common “leftover” symptoms such pain, fatigue, and stiffness while being treated for rheumatoid disease. Leftover or remaining pain is the subject of an interesting abstract reported at the recent...Continue reading 30 Comments » Read more

Mascara, Antibodies, and Soup: All I Know about a Disease

October 23, 2012June 10, 2020 Kelly O'Neill 39 Comments Living with chronic illness like RA, Patience & living with RA, Unrelenting RA - Persistent disease

I always thought living off fresh smoothies and homemade soup along with regular exercise would keep me strong. And surely working hard and caring for others makes one too busy for chronic illness. All I know is that I woke up one morning and my toes were pointing out in odd directions because the joints were...Continue reading 39 Comments » Read more

It’s Just Pain, Right? No, Dr. No, It’s Not

April 11, 2012May 15, 2018 Kelly O'Neill 26 Comments Pain Tolerance / RA Stoicism, Rheumatoid arthritis pain, Unrelenting RA - Persistent disease

No, it’s not just pain A letter from a fellow warrior reminded me of something I’ve been wanting to blog about since last summer. Today was technically my last day in the clinical trial. They were supposed to call me to check once more for adverse events because it’s day 210. Everything happens on a certain...Continue reading 26 Comments » Read more

Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

February 27, 2012May 15, 2018 Kelly O'Neill 116 Comments Professional patient, Rheumatoid Arthritis Clinical Trials, Rituxan for Rheumatoid Arthritis, Unrelenting RA - Persistent disease

This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with my rheumatology...Continue reading 116 Comments » Read more

Rheumatoid Arthritis Exercise, Round 5

October 25, 2011May 15, 2018 Kelly O'Neill 53 Comments Cost of activity - usage principle, Exercise with RA, Frying Pan Posts, Unrelenting RA - Persistent disease

This is the third post in the Frying Pan series to honor of the blog’s 3rd year, considering some significant issues from the last couple years. Sometimes the ...Continue reading 53 Comments » Read more