Posts Tagged ‘Video or podcast’

  • An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

    RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. […]

  • An Event Especially for Gathering Encouragement

    You’re not alone If I’ve said it once, I’ve said it a thousand times, “You’re not alone” with this disease. So many of us share experiences. And yet, we hear frequently about the loneliness that Rheumatoid disease creates. Community is a tremendous remedy and it’s what brings many warriors here time after time. Hearing “you’re […]

  • What Drives Patients to Get Engaged in Healthcare?

    Did you ever forget what you were about to say? Last year when I testified at an FDA advisory hearing, I couldn’t even remember my name. I swear I could feel my heart leaping six inches in front of me. It was unexpected because I’d recited my five-minute speech dozens of times from memory. How […]

  • Invisible Illness Awareness Video

    Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much to provide support to people with “invisible illnesses” like Rheumatoid disease. I don’t know if she coined that term, but she certainly popularized […]

  • Johnson & Johnson RA Warrior YouTube Video

    Inside story of a new YouTube video about RA Warrior A few weeks ago, a Johnson & Johnson video team visited our house. See my sons spoofing with the big video camera? The things that captivate teenagers, right? Anyway, it was hard to explain to the Johnson & Johnson folks why it was difficult to […]

  • You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]

    Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been […]

  • Mayo Clinic Video Interview: Patients at ACR Scientific Meeting

    Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting. What happens at the American College of Rheumatology Scientific Meeting? “The ACR/ARHP Annual Scientific Meeting […]

  • Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

    This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming […]

  • When Rheumatology Is Sexy

    If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.” Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of […]

  • Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis

    What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of their medical records; Keep up on research. I’d also wish for them that they find doctors who listen well! What else is […]

  • Behind the Scenes Video: Patient at a Social Media Conference

    Telling it like it is. On camera. It’s uncomfortable. It’s very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3 aspects of RA that are difficult to discuss It’s hard to talk about pain, so most of us […]