Yes, I read those at least a week ago – I remember because the tabs are still saved on my Dell & I was joking with a professor friend about a bit of “pie in the sky.” We concluded that we both do like pie, anyway.
Seriously, there are 2 important things to consider: 1) whether the recommendations contribute to the establishment of a sufficient protocol; and 2) whether the new recommendations will be actually implemented for most patients, as I hinted in the post. I hate to steal my own thunder for next week, but in the spirit of engagement, have you seen this? http://onlinelibrary.wiley.com/doi/10.1002/art.33380/abstract / http://www.medscape.com/viewarticle/759886
I so agree that a standard protocol should be used. I’m sure there are others out there like me that have had to go to multiple rheumatologists and multiple specialists until someone listened to what my symptoms were and actually started treating me. Its the same old seronegative story . . . so frustrating that there are still rheumatologists out there that will not treat the disease aggressively if you are seronegative. All I can do is look at the damage that’s already occurred, and feel thankful that I finally do have a doctor that is taking the disease seriously and treating me aggressively and appropriately.
All I can say to others suffering from this disease is that if you are not getting the best treatment you think you should be getting, you have to keep looking for better doctors. I did learn how to be an advocate from you, Kelly, and thank you very much for teaching me that.
Went through 3. I don’t have xray damage yet and I am already supposed to do mtx/humira. I fought hard to get treatment since I am seroneg, but I also thought mtx would be enough. It’s a little scary to need more. I also want to be able to function better what ever that means.
Well so much for my planned weekend reading. You’ve given me a ton to wade through. 🙂
I don’t know if you saw this in the latest journal of Clinical Pharmacology and Therapeutics vol 91, but I found it very educational.
Google this: Clin Pharmacol Ther 91
and the page should come up.
Articles are the editorial:
Optimizing Therapeutics: The Next Front in the War on Rheumatoid Arthritis
And the other article is:
Current Understanding of Rheumatoid Arthritis Therapy
Both of these are listed as free so anyone should be able to get to them and read them.
Best,
RaRAP
Yes, I read those at least a week ago – I remember because the tabs are still saved on my Dell & I was joking with a professor friend about a bit of “pie in the sky.” We concluded that we both do like pie, anyway.
Seriously, there are 2 important things to consider: 1) whether the recommendations contribute to the establishment of a sufficient protocol; and 2) whether the new recommendations will be actually implemented for most patients, as I hinted in the post. I hate to steal my own thunder for next week, but in the spirit of engagement, have you seen this? http://onlinelibrary.wiley.com/doi/10.1002/art.33380/abstract / http://www.medscape.com/viewarticle/759886
I checked out all three links. Thanks for posting.:)
I so agree that a standard protocol should be used. I’m sure there are others out there like me that have had to go to multiple rheumatologists and multiple specialists until someone listened to what my symptoms were and actually started treating me. Its the same old seronegative story . . . so frustrating that there are still rheumatologists out there that will not treat the disease aggressively if you are seronegative. All I can do is look at the damage that’s already occurred, and feel thankful that I finally do have a doctor that is taking the disease seriously and treating me aggressively and appropriately.
All I can say to others suffering from this disease is that if you are not getting the best treatment you think you should be getting, you have to keep looking for better doctors. I did learn how to be an advocate from you, Kelly, and thank you very much for teaching me that.
Went through 3. I don’t have xray damage yet and I am already supposed to do mtx/humira. I fought hard to get treatment since I am seroneg, but I also thought mtx would be enough. It’s a little scary to need more. I also want to be able to function better what ever that means.