Comments on: What Is the List of Rheumatoid Arthritis Joints?

By: Kelly Young

Kelly Young — Sun, 02 Oct 2011 13:14:22 +0000

You seem like you are on the right track. Would love to hear how it goes for you.

By: Sarah

Sarah — Sun, 02 Oct 2011 05:59:27 +0000

Yes definitely! I saw those two articles. I have them open at the moment but can’t seem to download the full articles. I’m going to see if I can get them through my university’s library database. I don’t want to go in there all guns blazing, but if the “DIP joints aren’t involved in RA so you don’t have have it” spiel comes out, I’ll (hopefully) have these articles. They look reputable to me, thanks so much!

By: Kelly Young

Kelly Young — Fri, 30 Sep 2011 13:26:40 +0000

Hi Sarah, the two links in the post (at the point where DIP joints are discussed) would make a good place to start. I believe that this is reputable research. But I usually recommend patients print the actual study for the doctor if they are going to “challenge” or “inform” him in any way. So, good thinking. and good luck too.

By: Sarah

Sarah — Fri, 30 Sep 2011 13:03:51 +0000

Thank you again! You seem to have all the answers to my questions. I’m in my early 20s, I had a bone scan a few weeks ago which showed arthritis in my knees, shoulders, hips, wrists and fingers. My DIP and MCP joints ‘lit up’ and I was told this pointed away from RA and more to Psoriatic Artritis. However I don’t have Psoriasis or any family history. I was worried that I would wake up one morning and be covered in Psoriasis! I just feel in my gut that it’s not PsA. Im going to see if I can do some research on DIP joints in RA and print some articles out and stick them in my bag to take to my next appointment. If PsA and the DIP joints are brought up again I’ll whip my (reputable) research out. I’m learning that this is such a complicated lot of diseases!

Thanks again

By: Kelly Young

Kelly Young — Tue, 19 Oct 2010 01:23:06 +0000

Raini, I don’t have pain like that. But I hope you’ll talk with your docs about it until you have an answer. You don’t have to wait for the rheumy just because you have RA. You can ask your General practioner if yo uhave a concern. There are a lot of things it could be & some might be serious. Take care of yourself, Raini.

By: Raini

Raini — Sun, 17 Oct 2010 21:47:01 +0000

I can’t even wear a bra anymore…too painful. I thought it was just fat from the prednisone weight gain, but it hurts!! lol. I always wear an overshirt so I’m not floppin’ in the wind :doh: :laugh: . Anyways, I’ve read through the comments (prolly should have done that first ( ) but I don’t see anything that is in the same area as mine. Thanks again for any input!
Raini

By: Raini

Raini — Sun, 17 Oct 2010 20:09:25 +0000

Does anyone else have the rib pain? But mine is under the breast and in the same place in my back, rather than near the sternum. It is swollen, and alternates between sharp pains and sore to the touch. Sometimes when I lay down, it feels like there’s a lump in the mattress. It hurts to put pressure on those areas, whether its touch or laying on it. Please, can someone answer? I don’t see my Rheumy for another couple of months, and this started about a month ago. But idk if I need to see her earlier for this. Any help is appreciated. God bless and much love to you all.
Raini

By: Kelly Young

Kelly Young — Wed, 28 Jul 2010 19:59:11 +0000

Janette, definitely not the picture they paint of RA. Sorry it’s been so rough for you.

By: Kelly Young

Kelly Young — Wed, 28 Jul 2010 19:57:55 +0000

Hi Gilly,
I don’t know when. I’m gonna do all I can! ‘Well-controlled’, my eye, right?

And yes, the camera can’t see the inflammation unless the CA joints are obviously inflammed at the moment the camera goes down. Also it could be a nodule which also can be worse or better at times so it might not be seen.

By: Gillian Pidler

Gillian Pidler — Wed, 28 Jul 2010 17:44:03 +0000

I have RA in every single joint apart from my spine. I do get it in my DIP joints & have 2 very deformed DIP joints to show for it and I’ve repeated boughts of laryngitis which I believe to be caused by the tiny little joint in the throat. I had cameras etc put down and the ENT doc couldn’t find any cause. I often get croaky for no reason.
And as Wren said about the hips, I now have secondary OA in both hips and am in constant pain thanks to the job that RA did on them. This is the RA that has supposedly been ‘well controlled’.
When will they start listening to us, the patient that lives with this day in day out?!