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Thank you! This answers many questions. The list contains many foods I crave, so understand more clearly what to look for when shopping. I also wonder about other nutrients. Asked my RA doc about the glistening sparkle my hands used to have. I told the doc there might be something my system was lacking, but no answers to help me. It intrugued me to hold my palms face up in the sunlight and see them glisten. Just wondering if there are answers anywhere?
I’ve been supplementing with KCl (potassium chloride) salt – about 1/2 teaspoon in a glass of orange juice (OJ) in the morning. Sometimes I have two glasses a day. OJ already has a fair amount of K (as does apple juice) and it is a matter of taste as to how much more one is willing to add before the OJ gets too salty tasting. That’s also a clue as to when it is too much. It can definitely loosen the stools, though – at least it did for me (though I’ve bumped up by fiber intake too with a product like Fiber One.) I did not apply the usual medical caveat of first checking with my doctor since I’m a risk taker (though I first researched the hazards vs benefits as best I could.) Since my rheumatologist already has me on monthly blood tests (and I check my blood pressure daily with an electronic BP monitor) I do have some monitoring going on for possible problems.
Since I’m taking Plaquenil and Methotrexate (MX) and I take other supplements besides K, it is difficult to say how much the K contributes to my otherwise good response. My rheumatologist has suggested reducing the MX in a couple months since I’m doing so well. As a non-smoking white older male with a normal BMI who exercises on an elliptical 30 minutes a day 5 to 6 days a week, I’m probably not in a demographic comparable to most other readers with RD. I simply may have a predisposition to mild RD while others get more severe forms.
Thanks Jim.
I tried adding the potassium chloride to juice & it made me feel pretty sick to get so much potassium at once.
But then I found just sprinkling a little of this salt to most of my food (not fruit salad or smoothies…) works well. I can get 1/4-1/2 t a day and not really notice a taste difference.
Also I should have added this tip –
You can keep it next to the regular (sodium) salt and be sure to add potassium whenever sodium is added to help balance it out.
Hi Kelly
Hope you are doing well. I really want to thank you for your blog which helped me so much when I first got my test results (ACCP=577) in May 2014. I was feeling down and reading your blog with its humour and indomitable will gave me back something – the persistence to go on with my life and not fear. I think I wrote something when I first visited but since I have brain fog (often), I don’t remember what I wrote.
Since then, I did some research and some sites say that autoimmune diseases can be linked to a leaky gut. But usually, such diseases occur when a person has 1) an inherited gene that predisposes him or her to the disease; 2)some trigger (my dengue fever which landed me in hospital for 9 days and was quite severe); and 3) leaky gut.
The sites all advise that a person can’t do anything about the 2 conditions but the leaky gut … Well, so I have been trying to heal my leaky gut.
I am going to get some new tests in Aug but so far, Jan results showed my inflammation was <0.1 (CRP). It was 1.1 after my dengue. So yayyy, some good news.
Some hiccups along the way. I am now dealing with oxalate problems. As after my frequent antibiotic treatments, I no longer can deal with oxalates. So my bingeing on almonds, cashews, sweet potatoes, buckwheat cereal, spinach (all sky high in oxalates) landed me with oxalates in my joints, thyroid, bones etc. I had trigger thumbs for months! I had to cut down on oxalates since Dec 2015. Till now, my left thumb can still be a bit stuck. But right thumb is fairly normal.
Wishing you and the others great health improvements! Take care and all the best!
Reply to Weng Wai: many of your symptoms sound very familiar to what my mom had which is Scleroderma. Have you ever been checked for this?
Hi Kelly! This post is really helpful since my rheum doc put me back on steroids. God bless! 🙂