Comments on: Woman’s Day’s Article: Rheumatoid Arthritis Information http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/ Bringing information & encouragement to fight RA Thu, 24 May 2012 14:37:00 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Kelly Young http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-122315 Kelly Young Fri, 25 Nov 2011 17:30:48 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-122315 This fight is not over - far from it. Woman's Day did re-visit RA in 2011 and it was no better. In searching Google, I see that some forums posted this information in the days and weeks after my original post July 15, 2009. The magazine came out a few weeks before that, so this is now 2.5 years we've been fighting this battle. However, it is not too late. If you have a blog or forum, please consider posting this link and the link to the <a href="http://rawarrior.com/womans-day-rheumatoid-arthritis-article-video-appeal/">video appeal to WD to interview real RA patients.</a> Unfortunately, a popular medical magazine has practically duplicated WD's errors. This will be featured on an upcoming post, with updates about WD. ~Kelly This fight is not over – far from it. Woman’s Day did re-visit RA in 2011 and it was no better. In searching Google, I see that some forums posted this information in the days and weeks after my original post July 15, 2009. The magazine came out a few weeks before that, so this is now 2.5 years we’ve been fighting this battle. However, it is not too late. If you have a blog or forum, please consider posting this link and the link to the video appeal to WD to interview real RA patients.

Unfortunately, a popular medical magazine has practically duplicated WD’s errors. This will be featured on an upcoming post, with updates about WD.

~Kelly

]]> By: JennyLynn http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-90461 JennyLynn Thu, 08 Sep 2011 19:45:14 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-90461 Wow! Patience White needs to be fired!! She really makes the Arthritis Foundation look bad! Wow! Patience White needs to be fired!! She really makes the Arthritis Foundation look bad!

]]> By: Kathy Anderson http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-67431 Kathy Anderson Wed, 18 May 2011 21:24:29 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-67431 Hi, I am so used to people saying "Oh, you just have arthritis". There is no understanding unless you have or live with someone with RA. No doctor told me about the fatigue I had to learn it first hand. Definetly the name is a big problem. Anyway we all know the problems. Kathy Hi,
I am so used to people saying “Oh, you just have arthritis”.
There is no understanding unless you have or live with someone with RA. No doctor told me about the fatigue I had to learn it first hand. Definetly the name is a big problem.
Anyway we all know the problems.
Kathy

]]> By: Diana Gregg-Housley http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-66481 Diana Gregg-Housley Wed, 11 May 2011 14:14:51 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-66481 My response to Woman's Day: Thanks for taking 48 years of pain, suffering, immobility, joint replacement, joint fusions, job loss, countless doctor and hospital visits, and inability to participate in, well, basically in life in general and turning it into nothing but a whine over a disease that just makes you feel stiff. I am furious over your insensitivity and will never read your magazine again! My response to Woman’s Day:
Thanks for taking 48 years of pain, suffering, immobility, joint replacement, joint fusions, job loss, countless doctor and hospital visits, and inability to participate in, well, basically in life in general and turning it into nothing but a whine over a disease that just makes you feel stiff. I am furious over your insensitivity and will never read your magazine again!

]]> By: Kelly Young http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-19492 Kelly Young Sun, 20 Jun 2010 13:52:42 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-19492 Sue, your reply to Woman's Day is tremendous! I have the same anemia & several other RA "companion diagnoses" - you are so right! We don't even mention all these other diagnoses we have that go with it because we are so used to it. Maybe that would help them get a clue. I haven't been successful at getting Woman's Day to read my website, so I hope you sent your reply too them directly also. So far I have emailed, called, and faxed them with no reply yet. Below the post is info on how to do that for anyone who wants to. Sue, your reply to Woman’s Day is tremendous! I have the same anemia & several other RA “companion diagnoses” – you are so right! We don’t even mention all these other diagnoses we have that go with it because we are so used to it. Maybe that would help them get a clue.
I haven’t been successful at getting Woman’s Day to read my website, so I hope you sent your reply too them directly also. So far I have emailed, called, and faxed them with no reply yet. Below the post is info on how to do that for anyone who wants to.

]]> By: Sue Powe http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-19475 Sue Powe Sun, 20 Jun 2010 07:08:27 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-19475 The way Woman's day put RA is like having a bad case of acne that leaves some pot marks. It's bad but you can deal with it. RA shortens persons by 10-15 years from the complications that damage the heart and other organs. Our immune systems are literally attacking our bodies like ninjas in the night. When I talk to people about RA they say oh yea my hand hurts when it rains, or see my knuckles I have arthritis. They look at me, no disfigured joints and they think I am making this all up. I have Anemia of Chronic Illness, it is part of the RA. before you say to take more iron you need to know that taking more iron does nothing for this type of anemia. It is treated with bone marrow transplants and transfusion not a simple iron tablet. Fashion hasn't past RA by either, we have special shoes. Google "arthritis shoes" then look for the RA shoe section. You will be surprised at the market for RA shoes. Yes we have to have special shoes do to the changes in our skin and shape of our feet. The changes are quite different from Osteoarthritis which affect the bones in the toes. Think of it this way, there are different types of lumps in the breast. Some are benign and annoying and then there is cancer. Think of the RA and Osteoarthritis the same way. Osteoarthritis hurts your joints and is annoying and RA hurts your muscles, tendons, and organs, and your heart is one of those muscles that is affected. The mortality rate is 10-15 years shorter life span than a non-RA person. I think that changes the game plan just a tad don't you think? We woman are networking on social sites, working to find a commonality in our diagnosis and more importantly to be recognized as having an autoimmune that is real and very complicated to treat. The way Woman’s day put RA is like having a bad case of acne that leaves some pot marks. It’s bad but you can deal with it.
RA shortens persons by 10-15 years from the complications that damage the heart and other organs. Our immune systems are literally attacking our bodies like ninjas in the night. When I talk to people about RA they say oh yea my hand hurts when it rains, or see my knuckles I have arthritis. They look at me, no disfigured joints and they think I am making this all up.
I have Anemia of Chronic Illness, it is part of the RA. before you say to take more iron you need to know that taking more iron does nothing for this type of anemia. It is treated with bone marrow transplants and transfusion not a simple iron tablet.
Fashion hasn’t past RA by either, we have special shoes. Google “arthritis shoes” then look for the RA shoe section. You will be surprised at the market for RA shoes. Yes we have to have special shoes do to the changes in our skin and shape of our feet. The changes are quite different from Osteoarthritis which affect the bones in the toes.
Think of it this way, there are different types of lumps in the breast. Some are benign and annoying and then there is cancer. Think of the RA and Osteoarthritis the same way. Osteoarthritis hurts your joints and is annoying and RA hurts your muscles, tendons, and organs, and your heart is one of those muscles that is affected. The mortality rate is 10-15 years shorter life span than a non-RA person. I think that changes the game plan just a tad don’t you think? We woman are networking on social sites, working to find a commonality in our diagnosis and more importantly to be recognized as having an autoimmune that is real and very complicated to treat.

]]> By: Alicia Hoover http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-17132 Alicia Hoover Fri, 04 Jun 2010 12:31:06 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-17132 Wow, I gave them a little sarcastic bit of my mind!! It's amazing~! with this disease I didn't know that a quick swim would "make it all better"!!! I will go out and buy a pool ASAP!! LOL Wow, I gave them a little sarcastic bit of my mind!! It’s amazing~! with this disease I didn’t know that a quick swim would “make it all better”!!! I will go out and buy a pool ASAP!! LOL

]]> By: Tweets that mention Woman’s Day’s Article: Rheumatoid Arthritis Information | Reality check | Rheumatoid Arthritis Warrior -- Topsy.com http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-17098 Tweets that mention Woman’s Day’s Article: Rheumatoid Arthritis Information | Reality check | Rheumatoid Arthritis Warrior -- Topsy.com Fri, 04 Jun 2010 07:44:56 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-17098 [...] This post was mentioned on Twitter by Clare Nolan, Kelly Young: Blog post: Woman's Day's Article: Rheumatoid Arthritis Information http://bit.ly/5OGxo1 [...] [...] This post was mentioned on Twitter by Clare Nolan, Kelly Young: Blog post: Woman's Day's Article: Rheumatoid Arthritis Information http://bit.ly/5OGxo1 [...]

]]> By: Kelly Young http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-3848 Kelly Young Mon, 25 Jan 2010 15:15:03 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-3848 Michelle, Good for you!! Last I checked there were about 40 replies on there - many of which were a result of this article. Be sure you read<a href="http://rawarrior.com/2009/08/womans-day-reply-to-rheumatoid/"> part 2.</a> I've written several emails to ask the Arthritis Foundation to comment on Woman's Day's position. They do not reply. It seems as if media have dug in their heels & said that their version of RA is real & we are just whining. I read articles which mis-represent RA every day. I can't help but think that's related to <a href="http://rawarrior.com/chronic-rheumatoid-arthritis-perspective-and-the-church/">experiences like I just wrote about here. </a> Recently, there were inacurracies in an article on ABC News' website. I politely replied & my comment was deleted. I replied again & it was deleted. I wrote a letter of complaint asking to have it posted. I have not yet seen a reply. I would really rather just fight the disease than have this too. But we won't get support for a cure for a disease that's really no "big deal." Michelle,
Good for you!! Last I checked there were about 40 replies on there – many of which were a result of this article. Be sure you read part 2. I’ve written several emails to ask the Arthritis Foundation to comment on Woman’s Day’s position. They do not reply.

It seems as if media have dug in their heels & said that their version of RA is real & we are just whining. I read articles which mis-represent RA every day. I can’t help but think that’s related to experiences like I just wrote about here.

Recently, there were inacurracies in an article on ABC News’ website. I politely replied & my comment was deleted. I replied again & it was deleted. I wrote a letter of complaint asking to have it posted. I have not yet seen a reply. I would really rather just fight the disease than have this too. But we won’t get support for a cure for a disease that’s really no “big deal.”

]]> By: Michelle http://rawarrior.com/womans-day-article-rheumatoid-arthritis-information/comment-page-1/?show=comments-3816 Michelle Sat, 23 Jan 2010 18:25:35 +0000 http://rawarrior.com/womans-day-article-on-rheumatoid-arthritis/#comment-3816 On the Woman's Day article. I was shocked and appalled by their inaccuracy. I was insulted by the healthy woman in the pool and I left them a serious note of disapproval. thanks for the link to the mag article. I am trying to do more writing and when I am not in pain, I find that blogging and responding to inaccuracies in these kinds of things a bit of a cathartic relief. Must close now for the "ice Pick" has just started to stab my finger joints. Rest is tough when you want to eventually make your living as a writer. :) What doesn't kill us does make us stronger :) On the Woman’s Day article. I was shocked and appalled by their inaccuracy. I was insulted by the healthy woman in the pool and I left them a serious note of disapproval. thanks for the link to the mag article. I am trying to do more writing and when I am not in pain, I find that blogging and responding to inaccuracies in these kinds of things a bit of a cathartic relief. Must close now for the “ice Pick” has just started to stab my finger joints. Rest is tough when you want to eventually make your living as a writer. :) What doesn’t kill us does make us stronger :)

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