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It is such a blessing to have an organization that truly works for and benefits PRD. For too long I felt alone and then found this site. It was/is a gift.
I truly appreciate all the hours of work and energy that go into RAW and RPF. I want to see RPF become even stronger through growth of membership, as a resource for patients and also continue to strengthen the presence with medical organizations that will make certain our voice is heard and accepted.
Thank you!
I agree Donna, it makes such a difference to not be alone. I think with RD, this is the first time in history that patients have joined together. And that has already helped us & taught us so much. Now, like you said, to make sure the medical world learns from that too. And we are!
Thank you for you wonderful support.
Hi Kelly, I just joined RPF. Many thanks for all you do with the site. It’s a huge encouragement.
Hi Kelly –
I blogged about this on my own Ancient Reptile: http://turtlemom2.wordpress.com/2013/12/05/support-for-rpf-rheumatoid-patient-foundation/
Cheerio!
Elizabeth
My Rheumy increased my methotrexate from 60 units to 100 units. I now find myself falling asleep sitting up. Yesterday, I was painting some Christmas ornaments and fell asleep several times in the middle of painting! Has this happened to anyone else? Will my body get used to this? It has helped the Remicade to last all month as apposed to three weeks, so that’s a positive. Any feedback would be appreciated.
P.S. The increase was done gradually, first to 80U for three weeks, then to 100U. I was fatigued anyway, as you can imagine, but this is crazy.