Where in the world is Kelly Young? | Rheumatoid Arthritis Warrior

Where in the world is Kelly Young?

Boys riding escaltorMy blog today is a list. I’ll type as fast as I can – how fast can you read? Haha. It just that it feels like I’m in some kind of a time warp. It seems like the last year was month long. And the last month was 3 days. Will the world please slow down?

In a few days, I’ll leave for ACR 2010, the meeting of the American College of Rheumatology. It’s very exciting and I’m thrilled to do it. Let’s pray all goes well. It seems like a pretty big mountain right now. I need another month to do all the things I want to do to prepare.

Here are some important things I want to take time to tell you:

  • Liquid methotrexate recall: This was all over the internet this weekend, but in case you missed it, here’s the link. Certain bottles of liquid methotrexate have delaminating glass and could be dangerous. If you have any questions, you should call your pharmacist or take your bottles in.
  • This past week, I published some more blogs on WEGO Health’s site in case you’d like to read them. I love to take advantage of opportunities to write on other blogs because it could only help RA Awareness.
  • WEGO Health also just held a video contest and I spent some time yesterday recording some entries. If you’d like to watch my very short videos they here at icyou health video site. I knew how I wanted to answer the questions, but I waited until the last day of the contest because I hadn’t been able to fix my hair since the WEGO trip last month. I just really wanted to record myself with clean hair! I know; I know; who cares?
  • We have the Fall Newsletter ready to roll! I finished it last week, so it should hit your email mailbox very soon . Please forward it to as many people as you like. And if you can help any new people sign up, let me know so I can put your name in to win a great sweatshirt (or T) from our store. Details here. It’s never too late to sign up! You’ll always be sent the most recent one right after you click on the signup confirmation email.
  • Keep an eye out for something special for our YouTube channel. It’s just about finished and I’ve just got to get over the last hurdle. This is really exciting.

Finally, if you would, please keep me in your prayers. As most of you know, I’ve taken lots of big steps with my treatment lately. The pain from the spine procedures finally turned a corner yesterday. However, I’m still having pain and stiffness in every joint. I’ll be asking my doctor about increasing medicine doses for the trip. I’m just like you: I hate taking pills. Blech.

Kelly O'Neill Young

Kelly O'Neill (formerly Kelly Young) has worked over 10 years as an advocate helping patients to be better informed and have a greater voice in their healthcare. She is the author of the best-selling book Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. She is the president of the Rheumatoid Patient Foundation. Through her writing and speaking, she builds a more accurate awareness of rheumatoid disease (RD) aka rheumatoid arthritis (RA) geared toward the public and medical community; creates ways to empower patients to advocate for improved diagnosis and treatment; and brings recognition and visibility to the RA patient journey. In addition to RA Warrior, she writes periodically for newsletters, magazines, and websites. There are over 60,000 connections of her highly interactive Facebook page. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She created the hashtag: #rheum. Kelly is a mother of five, longtime home-schooler, NASA enthusiast, and NFL fan. She has lived over thirteen years with unrelenting RD. See also https:/rawarrior.com/kelly-young-press/

21 thoughts on “Where in the world is Kelly Young?

  • November 1, 2010 at 10:12 am
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    You are so amazing and such a great advocate to have in my corner. I am glad the pain in your back turned the corner, I think about you often and pray the pain does get better.

    Be careful on your trip. I wish this was something I could attend, even if it’s to get a better understanding of RA and other rheumatoid type diseases.

    I will keep you in my thoughts and prayers as you take this journey, and hope to hear from you when you can.

    Reply
    • November 1, 2010 at 10:25 am
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      Thanks so much for your support. I’ll do my best to post everything! I think maybe that will be lists of boring abstracts some days. LOL. 😛

      Reply
  • November 1, 2010 at 10:17 am
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    Thanks for the update Kelly! Looking forward to the newsletter and the contest….and really excited for you to attend the ACR! I will be praying for you for less pain, strength, safety and an informative wonderful time! Can’t wait to hear all about it…. :-))

    Reply
    • November 1, 2010 at 10:25 am
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      Thank you Nancy! It means a lot! Wish I were going to be in VA in the fall (my homestate)! :heart:

      Reply
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  • November 1, 2010 at 11:07 am
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    Kelly,

    Here is a tip that may help your back pain, I learned from my wife and it really helps. Place a fleece blanket, about $10 at Target, on top of your bottom sheet. Sleeping on top of this blanket really warms your joint but won’t make you hot. I am sorrow not to pass this along sooner.

    Thanks for all you do. Have a great time at the conference.

    Reply
  • November 1, 2010 at 4:30 pm
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    You get down with your bad RA Jetsetting self!!!
    Here’s to an awesome conference and the pain leaving you alone to enjoy it!

    Reply
  • November 1, 2010 at 7:46 pm
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    Kelly,
    Hope all goes well at the conference for you….we will be thinking of you and hoping the conference will be even more productive than anticipated! Hope, also, that the warmth of the gathered group will help soften any discomfort that you may have! Strength definitely comes in numbers, and having all of us behind you should help you surmount any tough times!

    Reply
    • November 1, 2010 at 9:37 pm
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      THANK you Vi! I will think of you helping me get through it all!

      Reply
  • November 1, 2010 at 9:38 pm
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    Kelly,
    Go, warrior, go! My prayers are with you. Hopefully your hotel will have a really comfortable mattress, which will go a long way for you. Thanks for all you do!
    Phyllis

    Reply
  • November 1, 2010 at 9:42 pm
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    Kelly
    When it really gets to you, inhale deep and exhale in a wave of calmness. Always remember to relax. If that don’t work, keep your chin up. Best wishes, best of luck.
    Phil – Syracuse

    Reply
    • November 1, 2010 at 9:56 pm
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      Thank you Phil! I am a big believer in deep breathing – it got me thru many hours of labor… You really can feel relaxing from it – just have to remember to do it!

      Reply
  • November 1, 2010 at 10:27 pm
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    Kelly,
    Thanks again for representing us. I will pray for your safety and comfort and look forward to all we will learn. Please feel our support.

    Reply
  • November 2, 2010 at 2:29 pm
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    Kelly – I am so thankful that you are attending the ACR conference on behalf of our community. I’m also proud of you for facing this challenge (the travel, the planning, etc), despite your recent treatments and ongoing pain. That’s the warrior spirit!

    Reply
  • November 2, 2010 at 4:29 pm
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    Thanks so much for participating in the Health Activist Vlog Contest- your videos are great! I added your blog to the blogroll on icyou’s blog The Pulse (try saying that 5 times fast lol) which you can find here: http://www.icyou.com/blog/

    Thank you for all your work in raising RA awareness & for being a voice for those who suffer with this disease. You are a true inspiration, keep up the great work!

    Reply
    • November 2, 2010 at 7:08 pm
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      Thank you, Tori. It was a struggle all month to be able to finally record them. I was a bit embarrassed when I watched how well-produced the others were. What a fantastic turnout for your contest with WEGO! And thanks for putting us on the blogroll! 😀

      Reply
  • January 23, 2011 at 1:14 pm
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    Hi Kelly,
    I have a similar story to your experience of getting RA at age
    13. I was misdiagnosed too.
    I want to emphasize the importance of good nutrition and eating
    healthy when you have RA. It makes a huge difference!!! I
    became a vegetarian and I cannot tell you how that helped.
    Also, limit alcohol and sugar. I swear by this. Please
    get this message to the people you speak to.
    Polly

    Reply

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