Kelly Young, Author at Rheumatoid Arthritis Warrior | Page 10 of 68

Author: Kelly Young

Invisible Illness and the Public: She Hit Me with Her Cane

Kelly Young 46 Comments , ,
Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago... Did anyone ever give you a dirty look for using handicapped...Continue reading      46 Comments » Read more

Seronegative Rheumatoid Arthritis

Kelly Young 43 Comments ,
Seronegative Rheumatoid Arthritis Diagnosis A letter from a reader asks RAW about content directly addressing seronegative Rheumatoid Arthritis. Whether or not you’re a patient with negative lab results, it is important to grasp why there is not a separate category on RAW for seronegative RA. "My reason for writing is that I don't see a great deal...Continue reading      43 Comments » Read more

New Biomarkers for Rheumatoid Arthritis /Rheumatoid Disease

Kelly Young 10 Comments ,
A biomarker is an indicator of a disease or of a physiological state. Currently used biomarkers in blood tests for Rheumatoid Arthritis Anti-CCP / ACPA Rheumatoid factor 14-3-3η Vectra DA, a combination of 12 biomarkers that can be associated with RD Why do we need to find more biomarkers? Finding the ultimate biomarker for Rheumatoid Arthritis / Rheumatoid Disease is like a...Continue reading      10 Comments » Read more

Blood Tests for Rheumatoid Arthritis: What Is Their Role?

Kelly Young 18 Comments ,
Probably the RAW article most often referenced is Blood Tests for Rheumatoid Arthritis, part 2 from over four years ago. People need answers to questions like: My blood tests show I’m in remission, so why do I still have symptoms? My doctor said I tested negative for RA, but could I still have it? What is the role...Continue reading      18 Comments » Read more

Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

Kelly Young 24 Comments , ,
It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered discussions with...Continue reading      24 Comments » Read more

An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

Kelly Young 17 Comments , ,
RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. Courtney’s...Continue reading      17 Comments » Read more

News on Biosimilar Biologics for Rheumatoid Arthritis / Rheumatoid Disease

Kelly Young 1 Comment ,
Little progress on FDA path of biosimilar biologics for RD It’s hard to believe it’s been almost two years since we’ve discussed biosimilars on Rheumatoid Arthritis Warrior (RAW). What’s even harder to believe: the situation in the U.S. is much the same: 1) The Biologics Price Competition and Innovation Act (BPCI) was created as a pathway for...Continue reading      1 Comment » Read more

Do Patients Know Enough to Talk about Medical Topics?

Kelly Young 20 Comments ,
The e-patient movement The movement for prepared, engaged patients and shared decision-making is international. It is recognized and supported by people in positions of power at many levels. Organizations, think tanks, and government agencies study the movement, often supporting it in an effort to advance care, reduce mortality, and lower costs. It is not patients versus...Continue reading      20 Comments » Read more

Wearing Caped Superman Socks! Accepting Limits & Still Trying Hard

Kelly Young 24 Comments , ,
Superman socks and the to-do list Am I the only one who tries her heart out and falls far short day to day? Something tells me no. There’s a lot of pressure to get things done right now. And more things to do than time or strength to do them. Every morning I wonder which things on...Continue reading      24 Comments » Read more

3 Topics in the News on Rheumatoid Arthritis Heart Disease

Kelly Young 13 Comments ,
Rheumatoid “Arthritis” in the heart – no joints, but plenty of problems Often, I have sharp chest pains, but I know it’s not my heart – click here if you don’t know what it is. (Hint: there are joints along the sternum.) But when a large butterfly flutters in my chest and tries to escape through...Continue reading      13 Comments » Read more

Steps Toward Understanding Rheumatoid Disease

Kelly Young 12 Comments ,
2 Big Announcements Last month in What is Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD)?, we asked what this disease IS, with 10 things it doesn’t make sense if doctors don’t know. When we truly know what RD is, we can diagnosis it early, treat it successfully, and cure it! We’re taking steps to support that goal. 1....Continue reading      12 Comments » Read more

20 Tips for Traveling with Rheumatoid Arthritis / Disease

Kelly Young 28 Comments ,
Flying with Rheumatoid Arthritis (RA) is a challenge Today as you read this, I’m doing my don’t-miss-the-plane dance. My close friends and family all know well how I start asking them a week before a trip to “pray I don’t miss the plane.” Really. I have missed the plane. Twice. I literally start preparing to catch a...Continue reading      28 Comments » Read more
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