Here’s some really cool stuff I’ve found! I didn’t want to clutter up the front page, but I need a place to pin something up for you to see. Like the front of my refrigerator.
I can’t believe this Dell ad for integrated healthcare solutions has only a thousand views after almost 2 months.
Song about RA on Hot New Hip Hop.
Grant Jambois has Juvenile Rheumatoid Arthritis. He is a warrior we can all admire as he takes his strong medications & does whatever he can to continue to play the sports he loves. I know you’ll love his warrior spirit.
I introduced my readers to the REF over the last few weeks in some reports about the ACR. You’ll hear much more about them soon on the blog, but here’s a little video that gives an idea how important their work is. They raise more money to fund research for RA than anyone else. We need to support them!
Don’t miss this! The Atlantic Magazine’s “Sixty Minutes”-style story about problems with applying medical research to real patients: Lies, Damned Lies, and Medical Science. It’s long, but enlightening. ”To say that Ioannidis’s work has been embraced would be an understatement. His PLoS Medicine paper is the most downloaded in the journal’s history, and it’s not even Ioannidis’s most-cited work—that would be a paper he published in Nature Genetics on the problems with gene-link studies. Other researchers are eager to work with him: he has published papers with 1,328 different co-authors at 538 institutions in 43 countries, he says. Last year he received, by his estimate, invitations to speak at 1,000 conferences and institutions around the world, and he was accepting an average of about five invitations a month until a case last year of excessive-travel-induced vertigo led him to cut back. Even so, in the weeks before I visited him he had addressed an AIDS conference in San Francisco, the European Society for Clinical Investigation, Harvard’s School of Public Health, and the medical schools at Stanford and Tufts.”
The extraordinary photography of Carole Nessam can be seen via this link.With her permission, here is a small version of a photo of her husband Lee, who has RA.
Here’s a good doctor trying to raise awareness about the heart disease of RA which is responsible for the majority of rhematoid deaths. Part of the reason for RA’s high mortality rate is the lack of preventive care RA patients get. Too many doctors don’t view RA as a disease or realize the need to treat CVD or CAD in RA patients because it goes undetected. It is not the same as other heart disease. See the tags “Preventive care with RA” or ”Death & RA” for more on this topic.
Here’s a blog I wrote for the WEGO Health site: Pain, Perception, and #Pinkification. Moving story about RA awareness and breast cancer.
We have our own RA Warrior YouTube channel now! I’ve posted a couple of my videos & I’m working on adding some that fans made for us. Please ”Subscribe” & vote to LIKE them so they can become more popular on YouTube. Also you can “share” them to Facebook or Twitter.
People are finding Lab Tests Online really helpful. You can look up stuff about your lab tests on the great site. There is a search box or you can click on tests. Thanks to Carol for pointing this out.
This video covers many of the things we want to tell people about what it’s like to have RA.
Last week, I was a guest contibutor on The Orthopedic Posterous, the blog of Dr. Howard Luks. It’s an exciting collaborative project he has begun – patients and doctors working together. Thanks, Dr. Luks! I hope all my readers will check out your blog.
Look what I got in an email today!
Thank you, Sara for the lovely award. :heart: You are a special friend.
What can I say? Some docs focus on what they know… and nothing else.
You may have seen the Bridget Duffy 2009 Gel Conference video here on the site with my reply. I’ve just watched the 2008 one, through tears again. If patient experience is something you care about, you’ll want to watch.
Thanks for this, Laura! Her awesome solution: “I wrapped this shelf liner around my coffee cup. It sure makes it easier to get a better grip. I also wrapped this liner around my curling iron. I don’t want to get anymore face burns from a slipped curling iron!”
Yes, this is a real photo! With a great story behind it: My FB friend Jakki’s daughter took this shot a couple of weeks ago traveling home from Cambridge. The flag is the one flying above the WWII American Cemetery at Maddingley. Later, she posted the picture on Twitter and it spread like wildfire. The other day, a reader of RA Warrior living in Hungary posted the photo on my Facebook wall! Imagine Jakki’s surprise to see it there!
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How fun is this? A Google video about RA Warrior!