Kelly Young, Author at Rheumatoid Arthritis Warrior | Page 21 of 68

Author: Kelly Young

Woman’s Day RA Is Destructive, but Phil & Venus Have Cred

Kelly Young 37 Comments , ,
In 2009, I first encountered something I called “the PR problem” with RA. For three years, I’ve disagreed with Woman’s Day magazine over whether the Woman’s Day version of RA is correct. On the blog, we’ve had discussions about various other fallacious articles on RA (some listed below). WebMD magazine offered a similar article last winter...Continue reading      37 Comments » Read more

Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

Kelly Young 9 Comments ,
1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students' understanding of the impact of...Continue reading      9 Comments » Read more

The 10 Fundamentals of Care for Rheumatoid Patients

Kelly Young 17 Comments ,
Click here to download the printable PDF version of this important statement. What would appropriate rheumatological care for RA patients look like? The ACR tells us that the majority of Rheumatoid patients do not receive treatment that follows their recommendations. What are some specific requirements for good rheumatology care for RA patients? “Although the outcome of RA...Continue reading      17 Comments » Read more

The Powerful Health Care Role No One Really Wants: Being a Patient

Kelly Young 17 Comments , ,
The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation about the value of patient input with chronic conditions like rheumatoid disease, a panel discussion about e-patients and e-docs at Digital Pharma West, and an informal address...Continue reading      17 Comments » Read more

Energizing E-patient Engagement – Collaborations that Count

Kelly Young 6 Comments , ,
This blog is not about me because it’s always been much more than a way to share my own journey. This blog tells OUR story – the true story of Rheumatoid disease, the people who live with it, the fight to cure it, and the process that patients have entered to participate in improving our...Continue reading      6 Comments » Read more

Accurately Measuring Rheumatoid Disease Activity

Kelly Young 12 Comments ,
We may be watching the slow evolution of the ability to measure Rheumatoid disease activity (DA) which could obviously revolutionize care for the disease, if handled properly. “Visible” evidence can be a valuable tool in treating a disease that does its damage concealed inside of a body. 2006: Remission imaging study reveals Rheumatoid Arthritis disease activity Remember...Continue reading      12 Comments » Read more
7 Atypical Rheumatoid Arthritis

7 Atypical Rheumatoid Arthritis Effects Are Actually Typical

Kelly Young 78 Comments , ,
What can we say about atypical Rheumatoid Arthritis? (UPDATED) Our similarities & differences with Rheumatoid Arthritis are fascinating! I sure wished I had a dollar for every time a patient told me his / her doctor said he / she has atypical Rheumatoid Arthritis! And some actually have quite common symptoms! Here are 7 things that are often said...Continue reading      78 Comments » Read more

Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.

Kelly Young 21 Comments , ,
I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided to share some of it with you. This is not about RA, but there are...Continue reading      21 Comments » Read more

Is Rheumatoid Arthritis a Factor in Divorce?

Kelly Young 77 Comments ,
At a meeting of Rheumatoid patients, we heard one describe how her spouse is leaving her as a result of her Rheumatoid Arthritis diagnosis. Everyone in the room gasped as she recounted how her husband told her that he did not want to be her caretaker. However, I’ve read many sad letters with similar stories....Continue reading      77 Comments » Read more
KB_Washington_Monument

Mind-boggling! – Aftermath of Tofacitinib FDA Hearing Part 2

Kelly Young 14 Comments , , ,
After the FDA Arthritis Advisory Committee (AAC) hearing earlier this month for Pfizer’s new oral treatment for RA,  tofacitinib, we looked at the four distinct votes of the AAC and some of the ways the media responded to them. They ranged from serious to pitiful to laughable. But there’s more.     3 news bytes that might...Continue reading      14 Comments » Read more

RA News Vol. 8: Predicting TNF Response, Prednisone Increases Remission, New Mayo Clinic Heart Disease Risk Study

Kelly Young 6 Comments , ,
Brief rundown of 3 recent RA news articles that could make big impact 1. Simple urine test may predict who responds to TNF biologics! British researcher Dr. Sabrina Kapoor noted that the metabolites which are a result of the effects of tumor necrosis factor (TNF) on metabolism should be present in the urine or blood of patients....Continue reading      6 Comments » Read more
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