Kelly Young, Author at Rheumatoid Arthritis Warrior | Page 22 of 68

Author: Kelly Young

20 Replies to Things Not to Say to an RA Patient

20 Replies to Things Not to Say to an RA Patient

Kelly Young 113 Comments , ,
Replies to things not to say to an RA patient (UPDATED) Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading      113 Comments » Read more

Beginning Our 4th Year! 5 Stunning Things I Learned & My Forecast for the Future

Kelly Young 44 Comments ,
Three years ago today, I typed my first blog post in my back yard on a whim. My daughter had started to blog – what’s to worry about – just do it! Before that, I’d been working on ideas for months. I did have a goal: to build a website where RA patients could find...Continue reading      44 Comments » Read more

Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib

Kelly Young 44 Comments , , ,
After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading      44 Comments » Read more

Leaving It All on the Field: Not the Safest Choice But Maybe Best

Kelly Young 12 Comments , ,
Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading      12 Comments » Read more

FDA Arthritis Advisory Committee Hearing for Pfizer’s RA JAK: Tofacitinb

Kelly Young 27 Comments ,
Advisory Committee hearing feed link My daughter Katie Beth and I are in Washington, DC for the final FDA Arthritis Advisory Committee (AAC) hearing about Pfizer’s JAK, tofacitinib. Early in the morning, Katie Beth and I will be en route to the meeting. The AAC meeting will be broadcast online with a live feed. We’ve been told...Continue reading      27 Comments » Read more

Attending an FDA Hearing for Pfizer’s JAK: Tofacitinib CP-690550

Kelly Young 28 Comments ,
Three years ago, one of the first friends I made through my blog was Angie. She got into a Pfizer clinical trial for tofacitinib (then called tasocitinib). She sent me some info about the trial, but my rheum doc wasn’t interested and I didn’t pursue it. The current excitement about Pfizer’s tofacitinib Tofacitinib is an oral medication...Continue reading      28 Comments » Read more

Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List

Kelly Young 47 Comments , ,
RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading      47 Comments » Read more

Significant Numbers of RA Patients Don’t Receive Recommended Care

Kelly Young 24 Comments , ,
Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, it...Continue reading      24 Comments » Read more

The Confusion of a Smile

Kelly Young 44 Comments , ,
If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I smile a...Continue reading      44 Comments » Read more

Secondary Sjogren’s Syndrome and Rheumatoid Arthritis: a Primary Problem

Kelly Young 32 Comments ,
Sjogren’s syndrome: have you seen the eye doc yet? When I wrote my first RA Warrior post on Sjogren’s syndrome in 2009, I wasn’t sure whether I’d ever be diagnosed with it. But I thought it was important to cover on the blog. I had a fun idea for illustrating the pronunciation of the name so...Continue reading      32 Comments » Read more

It All Comes Out in the Wash: Comparing Different Treatments & Approaches

Kelly Young 17 Comments ,
Four weeks. Not a record for me, but close... When this is published in the morning, I’ll be spending the morning washing and blowing out my hair for the 1st time in about a month. The ends started to take dreadlock form the last few days, somewhat an improvement. But the front looks really bad [deliberately...Continue reading      17 Comments » Read more
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