Kelly Young, Author at Rheumatoid Arthritis Warrior | Page 24 of 68

Hey Superman! Does Accepting Limitations Make Us Weaker?

Katie Beth and I got in Monday night from a weekend with other warriors in Houston where I was able to speak about being an empowered patient. That immediately followed an e-Patient Boot Camp talk in Orlando with e-Patient Dave. Preparations and traveling drain so much time and energy that I haven’t been able to...Continue reading      17 Comments » Read more

Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with my rheumatology...Continue reading      116 Comments » Read more

Can We Treat the Whole Person or at Least the Whole Disease?

It’s like watching The Terminal. RA is a Twilight Zone No-Man’s-Land disease. “Mr. Navorski, you cannot get into New York without a visa. You cannot get a visa without a passport, and you cannot get a new passport without a country. There’s nothing we can do for you here.” I got a letter today about one...Continue reading      36 Comments » Read more

A Doctor-Patient Covenant: Medicine’s Future Found In Its Past

The following article was written by David Biundo to his friends and fellow patients. The message came from a conversation he had with his doctor. I hope you’ll find it inspiring and enlightening as I do. The challenge of being believed One of the challenges that many patients with chronic illness face, is the treatment they receive...Continue reading      16 Comments » Read more

I’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet

Please don’t miss the news at the end of the post! I had to put A LOT on one page since it’s been a few days! My endocrinologist was so excited about my attending the ACR in November and winning the WebMD award in December and it’s really fun to share after being a patient there...Continue reading      43 Comments » Read more

What’s the Big Deal about Rheumatoid Disease?

Just how big of a deal is this disease? I suppose the fact that I’ve written several hundred pages about it is a clue to my opinion. Yet, most of those articles were written with intentional restraint, avoiding hyperbole, at times even understating my own symptoms in an attempt to be more judicious. Many view Rheumatoid...Continue reading      37 Comments » Read more

Letting Fumbles Strengthen the Heart

Like most people, I was always proud of what I could juggle and how many balls I could keep in the air at once, while making it look easy. Most of us also know that living with Rheumatoid disease changes that. One by one, I’ve had to put down things I’d rather have continued. I remember...Continue reading      28 Comments » Read more

The Immune Fingerprint and Rheumatoid Disease

I’ve made up another term because I haven’t heard of anything suitable: “immune fingerprint.” It occurred to me that while we talk about how the disease Rheumatoid Arthritis (or Rheumatoid Autoimmune Disease) affects us, one key to understanding disease activity may be considering how we affect the disease. If a disease disrupts the immune system, causing...Continue reading      26 Comments » Read more

10 Reasons We Might Want a Musculoskeletal Ultrasound (MSUS) of a Joint

Back in 2009, dozens of phone calls revealed no one  in our area who could perform a musculoskeletal ultrasound (MSUS).  Today, worried about my son, I made calls again to orthopedists and hospitals. When I called the top medical centers in our region, I found one ultrasound technologist who had heard of MSUS and she...Continue reading      24 Comments » Read more

You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]

Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been...Continue reading      13 Comments » Read more

Are Biosimilars Justice in Competition for Biologics Like Enbrel?

The FDA definition of biosimilars and a pathway to approval Biosimilars are pharmaceuticals that are similar to biologics such as Enbrel and Humira, but not chemically identical as with generic drugs. If the unique molecules used to create a biologic (from living proteins) such as Enbrel are not cloned, but carefully imitated, they are considered “biosimilar.”...Continue reading      13 Comments » Read more
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