Kelly Young, Author at Rheumatoid Arthritis Warrior | Page 9 of 68

Remaining Pain with Rheumatoid Arthritis Treatment

A common problem: remaining pain with Rheumatoid Arthritis Remaining pain with Rheumatoid Arthritis (RA) has been a topic on RAW since 2009. We've discussed how people manage the common “leftover” symptoms such pain, fatigue, and stiffness while being treated for rheumatoid disease. Leftover or remaining pain is the subject of an interesting abstract reported at the recent...Continue reading      30 Comments » Read more

Medscape Symposium Reveals Attitudes #Rheum Patients Encounter

Recently, we looked at a new report showing machines used to perform musculoskeletal ultrasound (MSUS) vary considerably in ability to detect inflammation, and warning about the use of MSUS in treatment decisions when the machines are not yet accuracy rated. We know that Patient reported outcome measures (PROMs) predict prognosis in Rheumatoid Disease (RD), but...Continue reading      20 Comments » Read more

What a Wonderful World, and Nobody Knows the Trouble I’ve Seen

Do these two song titles seem to conflict? The former was one of the first songs I ever put (and kept) on my phone. The latter I learned in second grade because my teacher thought every American must know Spirituals. (Hear Louis Armstrong sing below, and Nobody Knows the Trouble I've Seen on YouTube.) Guys, cover your ears....Continue reading      5 Comments » Read more

Could Ultrasound Prevent Rheumatology Patients from Receiving Disease Treatments?

This is the 10th in a series on musculoskeletal ultrasound use in people living with Rheumatoid Disease (PRD). This is a critical topic for PRD that could have enormous impact on clinical care – positively or negatively – in light of results from two recent studies. Musculoskeletal ultrasound can help “see” invisible disease activity Musculoskeletal ultrasound (MSUS)...Continue reading      12 Comments » Read more

25 Tips to Stay Well in Cold and Flu Season

This post is a response to questions about how to navigate cold and flu season with Rheumatoid Disease (RD). Flu shots are now center stage at grocery stores and pharmacies across the US. According to the CDC (Centers for Disease Control and Prevention), flu season can begin as early as October. There’s plenty of advice about...Continue reading      21 Comments » Read more

PCORI, Is It Worth It to Include Patients?

The patients who read this blog are like dear brothers and sisters to me. I’ve met many in person and it’s like a family reunion. The RAW website and blog obviously speak to others as well – lay and professional caregivers, rheumatology industry, and sometimes the larger patient engagement movement. We’re working hard for change...Continue reading      6 Comments » Read more

10 Misconceptions About Chronic Disease Many People Believe

You can’t understand illness by just looking at a person Very soon after being diagnosed with RA, I learned that most people have beliefs about chronic illness that are hard to overcome. When one neighbor, friend, and family member after another dismissed me, I did the same thing most people with Rheumatoid Disease (PRD) do: I...Continue reading      55 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading      26 Comments » Read more

Inside Story of a Young Person Living with Juvenile Rheumatoid

Today’s blog is my response to an email from a reader about an appointment with her daughter’s rheumatologist. This family travels for hours to see an expert pediatric doctor in one of the best hospitals in the country. Hi Kelly! I guess when they say all good things must come to an end, IT'S TRUE :( I can't...Continue reading      52 Comments » Read more

Triple Therapy / Combination Therapy for Rheumatoid Arthritis

Treatments for Rheumatoid Arthritis In the past few decades, Rheumatoid Arthritis has been treated with therapies designed for other diseases. It was not always clear how these drugs treated Rheumatoid Arthritis / Rheumatoid Disease, but they were found to reduce immune activity in various ways. Because researchers recognized certain drugs could slow or modify progression of...Continue reading      5 Comments » Read more

Rheumatoid Arthritis (RA) Treat to Target

The treat to target (T2T) approach involves defining a treatment goal or “target” and modifying the therapy if the target is not reached. Treating to a target of remission or low disease activity Treat to target (T2T) is an approach to treating Rheumatoid Arthritis / Rheumatoid Disease (RD) that combines aggressive or intensive treatment with disease modifying...Continue reading      2 Comments » Read more

Sleepless in San Diego

Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session on Tuesday...Continue reading      12 Comments » Read more
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