Communication and Inspiration Archives | Page 3 of 12 | Rheumatoid Arthritis Warrior

Communication and Inspiration

What a Wonderful World, and Nobody Knows the Trouble I’ve Seen

Kelly Young 5 Comments ,
Do these two song titles seem to conflict? The former was one of the first songs I ever put (and kept) on my phone. The latter I learned in second grade because my teacher thought every American must know Spirituals. (Hear Louis Armstrong sing below, and Nobody Knows the Trouble I've Seen on YouTube.) Guys, cover your ears....Continue reading      5 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

Kelly Young 26 Comments , , ,
Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading      26 Comments » Read more

Sleepless in San Diego

Kelly Young 12 Comments , ,
Each fall, Katie Beth and I travel to wherever the American College of Rheumatology (ACR) holds its annual scientific meeting. Last night, we arrived in San Diego. 1) This is huge. The Rheumatoid Patient Foundation (RPF) is presenting an exhibit in the Exhibit Hall. 2) I’m speaking with two other RPF volunteers in a session on Tuesday...Continue reading      12 Comments » Read more

Invisible Illness and the Public: She Hit Me with Her Cane

Kelly Young 46 Comments , ,
Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago... Did anyone ever give you a dirty look for using handicapped...Continue reading      46 Comments » Read more

Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

Kelly Young 24 Comments , ,
It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered discussions with...Continue reading      24 Comments » Read more

An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

Kelly Young 17 Comments , ,
RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. Courtney’s...Continue reading      17 Comments » Read more

Do Patients Know Enough to Talk about Medical Topics?

Kelly Young 20 Comments ,
The e-patient movement The movement for prepared, engaged patients and shared decision-making is international. It is recognized and supported by people in positions of power at many levels. Organizations, think tanks, and government agencies study the movement, often supporting it in an effort to advance care, reduce mortality, and lower costs. It is not patients versus...Continue reading      20 Comments » Read more

Wearing Caped Superman Socks! Accepting Limits & Still Trying Hard

Kelly Young 24 Comments , ,
Superman socks and the to-do list Am I the only one who tries her heart out and falls far short day to day? Something tells me no. There’s a lot of pressure to get things done right now. And more things to do than time or strength to do them. Every morning I wonder which things on...Continue reading      24 Comments » Read more

Ashton Kutcher on Opportunity, Being Sexy, & Steve Jobs’ Advice on Life

Kelly Young 5 Comments ,
Surprise speech on life at Teen Choice awards This week at the Teen Choice Awards, popular actor and tech investor Ashton Kutcher (Christopher Ashton Kutcher) described “3 amazing things I learned when I was Chris.” Kutcher plays Steve Jobs in the upcoming film Jobs (opening this week). I watched the video of Ashton Kutcher’s short speech last...Continue reading      5 Comments » Read more
Chronic Resilience book

Chronic Resilience: Strategies for Living with Chronic Illness

Kelly Young 4 Comments ,
My first glimpse of Chronic Resilience When Danea Horn contacted me last year to be interviewed for her upcoming book, Chronic Resilience I had no idea of her story. Danea was born with VACTERL Association, a rare kidney disorder. She has turned living with illness into a mission to explore redefining “positive” and to bring “creative affirmations”...Continue reading      4 Comments » Read more
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