Communication and Inspiration Archives | Page 4 of 12 | Rheumatoid Arthritis Warrior

Happy Birthday RAW! The Day I Could No Longer Stay Silent

May 17, 2013May 14, 2018 Kelly Young 35 Comments Comprehensive RA Care, Cricoarytenoid arthritis, e-patient

This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a few months....Continue reading 35 Comments » Read more

Words of Help From a Friend We’ve Never Met – Until We Do

May 2, 2013May 14, 2018 Kelly Young 2 Comments e-patient, Living with chronic illness like RA

Isn’t life full of special coincidences? Some even call them “God-incidences.” Circumstances show know that life is not all random, but the right words are often there at the right time – no matter when they were written. A couple of special coincidences occurred in February when I was in Washington. As my friend Leslie and...Continue reading 2 Comments » Read more

Don’t Give Up

April 8, 2013May 14, 2018 Kelly Young 60 Comments Encouragement for living with RA, Profiles in courage with RA

If it weren’t so debilitating, I’d be ok Maybe it’s the pain, but today I felt weary. Sara’s words resonated: “My doctor shrugged it off after the blood test. If the pain in my hands wasn’t so debilitating then I would be ok, but I’m still kind of worried.” The left side of my cervical spine...Continue reading 60 Comments » Read more

Same, Same But Different

April 5, 2013May 14, 2018 Kelly Young 5 Comments Profiles in courage with RA, Rheumatoid arthritis support

Symptoms are like snowflakes: the same, but different. We see patterns in Rheumatoid disease and say, “See, I’m not alone.” Yet, we also see that no two people are exactly alike because of what I call the immune fingerprint. Explore both our similarities and our differences with eighteen newly added RA onset stories! Your stories of how...Continue reading 5 Comments » Read more

What Drives Patients to Get Engaged in Healthcare?

March 22, 2013May 14, 2018 Kelly Young 15 Comments e-patient, Patient advocacy, Video or podcast

Did you ever forget what you were about to say? Last year when I testified at an FDA advisory hearing, I couldn’t even remember my name. I swear I could feel my heart leaping six inches in front of me. It was unexpected because I’d recited my five-minute speech dozens of times from memory. How...Continue reading 15 Comments » Read more

The Best Rheumatoid Arthritis News Story I’ve Ever Seen

February 5, 2013May 14, 2018 Kelly Young 30 Comments Rheum Disease in the Media, Rheumatoid Arthritis awareness

Click now to hear the news story as it aired February 4, 2013 on KPCC, the local NPR affiliate in South Central Los Angeles. Honest rheumatoid arthritis news story on NPR station Jose Martinez KPCC interview Jose Martinez, writer for OnCentral: Reporting on health and quality of life in South LA, first contacted me a couple of...Continue reading 30 Comments » Read more

Seeing Light and Shadows in Groundhog Day and RA

February 2, 2013May 14, 2018 Kelly Young 2 Comments Guest post on RA Warrior, Inspiration for living with RA

TODAY, February 2nd,is the first Rheumatoid Awareness Day. Read more below about how you can be involved. Amateur actress shares Groundhog Day's special place in her heart My sweet friend Steph, one of the bright treasures that I have gained from living with this disease, sent me a story in an email yesterday. I'll hope you'll enjoy it...Continue reading 2 Comments » Read more

Awareness Ribbon for Rheumatoid Arthritis, Finally

January 26, 2013May 14, 2018 Kelly Young 30 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

The unique awareness ribbon for Rheumatoid Arthritis Patients distinguish themselves from arthritis or other diseases with an awareness ribbon for Rheumatoid Arthritis / Rheumatoid Disease Does color really matter? Think about the Yellow Brick Road. Would it be the same if it were the black brick road? Or the blue brick road? Of course not. But, we know...Continue reading 30 Comments » Read more

FIRST AWARENESS DAY FOR RHEUMATOID ARTHRITIS ESTABLISHED BY RHEUMATOID PATIENT FOUNDATION

January 23, 2013May 14, 2018 Kelly Young 14 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

Here's a copy of the press release that went out over the wires yesterday. We're being contacted from media across the country. Please feel free to forward it to any journalists you have contact with. Patients Increase Public Awareness of Underestimated Disease January 22, 2013 – Rheumatoid Patient Foundation (RPF) announces the establishment of Rheumatoid Awareness Day...Continue reading 14 Comments » Read more

1st Rheumatoid Disease Awareness Day – Groundhog Day 2013

January 22, 2013May 14, 2018 Kelly Young 21 Comments Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

Rheumatoid Disease Awareness Day - FEBRUARY 2 A DAY FOR RHEUMATOID ARTHRITIS AWARENESS: February 2nd is the annual Rheumatoid Disease Awareness Day – CLICK TO READ PRESS RELEASE. Details about how you can get involved in the day of recognition for people living with Rheumatoid Disease, previously “Rheumatoid Arthritis,” can be found here. February is heart disease month, which is...Continue reading 21 Comments » Read more

Martin Luther King Day: Remembering That One World Is Enough to Share

January 21, 2013May 14, 2018 Kelly Young 4 Comments America, Faith

New generation delivering message on importance of civil rights I’ve passed on to my children my passion for American ideals such as justice. This picture was taken on a recent trip to Washington, D.C. at the Martin Luther King memorial. It’s been my Facebook cover picture for the past few months, inspiring me to remain tranquil...Continue reading 4 Comments » Read more

Embracing the Future, Even with Rheumatoid Arthritis

January 2, 2013May 14, 2018 Kelly Young 19 Comments Courage & living with RA

Thanks to Rheumatoid Arthritis, not the future we expected None of us knows the future and it often surprises us more than we expect. Getting a diagnosis of “Rheumatoid Arthritis” usually comes with life changes we couldn’t anticipate. No one expects to feel old before it is time, having friends and relatives twice your age who...Continue reading 19 Comments » Read more

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Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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