Communication and Inspiration Archives | Page 5 of 12 | Rheumatoid Arthritis Warrior

Twelve Days of Christmas with Rheumatoid Disease

December 23, 2012May 14, 2018 Kelly Young 12 Comments Communicating about RA, Humor with RA

Twelve Days of Christmas & 12 annoying gifts from Rheumatoid disease I had to take pictures when I found this wrapping paper in a store to show my son Tiger who loves rap music. The words printed on the “Rapping Paper” are from Rapper’s Delight by Sugarhill Gang, the first hip-hop single to become a Top...Continue reading 12 Comments » Read more

You Look Fine – Wall of Confusion Surrounding Rheumatoid Disease

November 30, 2012May 14, 2018 Kelly Young 63 Comments Invisible Illness, Rheumatoid Arthritis awareness

Confusion surrounding rheumatoid disease is like a wall between those who have and those who have not - the disease. Where does this come from and what can be done? Overcoming confusion surrounding rheumatoid disease When I first started blogging about Rheumatoid Disease, I wrote about The Wall. In answer to an email from a good friend who...Continue reading 63 Comments » Read more

Happy Thanksgiving! Not Margaritaville, But Still Sunny

November 22, 2012May 14, 2018 Kelly Young 8 Comments Encouragement for living with RA, Rheumatoid Patient Foundation

I’m thankful for you! I’m always grateful for this community and the difference you’ve made in the lives of so many people searching for support or who just need to know they’re not alone. Many of us have met in person, exchanged hugs and tears, and felt the bond that comes with living with Rheumatoid disease....Continue reading 8 Comments » Read more

Mascara, Antibodies, and Soup: All I Know about a Disease

October 23, 2012May 14, 2018 Kelly Young 39 Comments Living with chronic illness like RA, Patience & living with RA, Unrelenting RA - Persistent disease

I always thought living off fresh smoothies and homemade soup along with regular exercise would keep me strong. And surely working hard and caring for others makes one too busy for chronic illness. All I know is that I woke up one morning and my toes were pointing out in odd directions because the joints were...Continue reading 39 Comments » Read more

2 steps forward, 1 step back is not a dance move – It’s just life

October 16, 2012May 14, 2018 Kelly Young 2 Comments Professional patient, Profiles in courage with RA

I’m happy to share NINE new onset stories with you! People write to me all the time about how helpful it is to find these when searching for a diagnosis or trying to understand a new diagnosis. They paint a much more accurate picture than the textbooks have so far. Andrea’s Rheumatoid Arthritis story Amanda N.’s Rheumatoid...Continue reading 2 Comments » Read more

Lessons from a Dumb Phone & a Disabled Computer

September 17, 2012May 14, 2018 Kelly Young 30 Comments Emotions and Rheumatoid Arthritis, Faith, Patience & living with RA

Last month I ordered a lightweight keyboard to use with an iPad. I planned to get one to downsize for travel, so I'd be more able to manage my briefcase alone when needed. I'm typing on that keyboard today from my sofa for another reason... Almost 2 weeks ago, I went through a Microsoft upgrade process...Continue reading 30 Comments » Read more

Kim Kardashian, Magazines, & a Trendy Practice that Bugs Me

August 8, 2012May 14, 2018 Kelly Young 27 Comments Humor with RA, Professional patient, Rheum Disease in the Media

One perk of having a blog is that you have a place to blow off steam sometimes. Remember when I got robbed and the thieves found their bliss at Target, who tried to pin the bill on me? I always say RAW is my front porch. Where we can just hang out. Or tell it...Continue reading 27 Comments » Read more

Painless Meme for Rheum Mates

July 23, 2012May 14, 2018 Kelly Young 63 Comments Humor with RA, Inspiration for living with RA

Often, I begin a presentation explaining “being an RA patient doesn’t define me.” Then, I share some things that do. Like being a mother of five amazing young people. Growing up near D.C. and still loving all things Washington, especially the Redskins. Rainbows, rockets, and running on the beach. Bee Gees. Tobymac. Chicago. Margaret Becker. I...Continue reading 63 Comments » Read more

Mondini Syndrome Is Just Deafness Like RA Is Just Arthritis. Not.

May 31, 2012May 14, 2018 Kelly Young 21 Comments e-patient, Living with chronic illness like RA, Parenting with RA

I was home for 3 hours today in between doctor appointments for my Tiger and I spent that time reading up on his diagnoses. As I drove him to 3 doctors in 2 days, thoughts swirled around and I decided to share some of it with you. This is not about RA, but there are...Continue reading 21 Comments » Read more

20 Replies to Things Not to Say to an RA Patient

May 21, 2012May 14, 2018 Kelly Young 113 Comments Communicating about RA, Humor with RA, Rheumatoid Arthritis awareness

Replies to things not to say to an RA patient (UPDATED) Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading 113 Comments » Read more

Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib

May 15, 2012May 14, 2018 Kelly Young 44 Comments Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem, XELJANZ-tofacitinib-JAK

After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading 44 Comments » Read more

Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List

May 4, 2012May 15, 2018 Kelly Young 47 Comments Biologics for RA, Rheum Disease in the Media, Rheumatoid Arthritis awareness

RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading 47 Comments » Read more

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