Communication and Inspiration Archives | Page 7 of 12 | Rheumatoid Arthritis Warrior

I Want My Life Back

RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want to...Continue reading      65 Comments » Read more

Not a Real RA Patient

I always had a silly super-hero complex. I thought that I could do anything if I tried hard enough or stayed up late enough. Add to that endless optimism and a belief that God will always make everything turn out right. There’s this tendency to see life as a maze with many options. Never give up;...Continue reading      36 Comments » Read more

Recent Biologics Commercials by Amgen & Abbott Hit New Notes

Abbott’s commercials feature destruction of pianos and bicycles Commercials for Biologics like Enbrel and Humira have come a long way in the last two years. Could our perspective be having an impact on marketers? I don’t know. But the new Abbott ads are remarkable compared to the old baloney. The new message: Rheumatoid arthritis (RA) can mean more...Continue reading      21 Comments » Read more

Encouragement: with a Little Help from My Friends

Don’t you want me to help you with that? No. I want to be able to do it myself. I can do that for you. I know you can, I wish I could. Is there anything I can do? No, I want to feel like I can do something. Do you have any problem asking for help? Or...Continue reading      23 Comments » Read more

The Tug of War of RA Awareness: Privacy of Pain & Agony of Disclosure

This week’s post on Rosalind Russell raised some important questions. A comment by Ronda was highly critical of Russell for the way that she hid from the public the severity of her suffering due to Rheumatoid Arthritis. How can we raise awareness if we hide how bad it is? It’s a good question. Rosalind Russell was...Continue reading      60 Comments » Read more

The Isolation of RA Pain: Short Poem Video

Most people with RA talk about how difficult it is to explain RA pain to others. It’s frustrating to be repeatedly told that it isn’t or shouldn’t be so bad. Just today, a woman I met couldn’t wait to tell me about her friend with RA who’s able to do so much more than I...Continue reading      12 Comments » Read more

Winter Solstice Lunar Eclipse: Was the Moon Really Red?

What would a lunar eclipse on the solstice be without my beloved camera? I pulled my thickest Redskins blanket over my head and went to sleep on the sofa with all of the lights on. The lunar eclipse on the winter solstice was a once in a lifetime event I would surely not miss. When I...Continue reading      7 Comments » Read more

You’re Not Lost and Michael Bublé Video

“You are not alone.” I don’t think I can put into words what I want to say. Fortunately, this song Lost sung by Michael Bublé already did. God is good and things come at the right time, like this song that I listened to all weekend. And like the way “the light comes pouring through many of...Continue reading      21 Comments » Read more

Video: Thoughts from American College of Rheumatology (ACR) 2010

Patient with a Press Pass! Wow! What an incredible week it was! After I post this greeting, I'll be packing up to get to the airport. I promise I'll tell you lots more as quickly as I can type it out. I don't know how I'll decide what to write about first! Right now, I'm still marveling at...Continue reading      36 Comments » Read more

The Goal with RA Is Not Perfection: Don’t Give Up the Things You Love!

As I’ve said, I get wonderful notes every day. It’s definitely one of my favorite parts of this blog. Recently, I shared with you some comments that were especially encouraging for all of us. Today, I’d like to share an email. Carolyn wrote to share how she has adapted to be able to continue her...Continue reading      29 Comments » Read more

Your Comments Are a Special Blog in Themselves

Growing up with mom’s RA Every day, y'all write comments, messages, and emails that make such a huge difference in this community. But they also have an effect on me. Tonight I found this gem: Hi all! I don’t have RA, but my mother was diagnosed after she got pregnant with my brother 15 years ago. I...Continue reading      19 Comments » Read more

Traveling to a WEGO Health Panel for Health Activists

A month of firsts It has been a month of firsts for me. There were fun things like our first Rheumatoid Arthritis Meme and my first prescription reading glasses - how great it is to see again! There were less fun hard things like medial branch nerve blocks in my back and neck and my first...Continue reading      26 Comments » Read more
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