Communication and Inspiration Archives | Page 8 of 12 | Rheumatoid Arthritis Warrior

Twitter & a #rheum for the Rheumatoid Online Community

You are the best part! The best thing about this blog is the readers. I know – I if I didn’t write a blog, then there wouldn’t be one. But the readers help make this blog a community, especially through the comments pages. We also have a thriving RA Warrior Facebook community where people are making...Continue reading      10 Comments » Read more

What Can We Do About the Rheumatoid Arthritis Awareness Problem?

Why do I believe we need Rheumatoid Arthritis Awareness? When I got full blown Rheumatoid Arthritis, I had no idea I’d gotten stuck with an unpopular disease. It was a surprise when one person after another brushed aside my explanation with things like, “You are too young to have that” or “Oh yeah, I have that...Continue reading      63 Comments » Read more

Tony Snow: Illness Doesn’t Change the Person You Are

Over the last few years, some people have faded out of my life after RA made it impossible to do most things I used to do. Some people didn’t want to hear about illness, or pain or medicine. They didn’t understand what I meant when I said “can’t.” I never ask for sympathy for being...Continue reading      22 Comments » Read more

Yale Medical School Graduation Address: a Patient Centered Approach

Dr. Donald Berwick made a unique graduation address at Yale in May 2010. His own daughter was graduating. I wanted to comment on Dr Berwick’s speech and post it for you for a while, but every time I read it I cry. Advocating patient centered care: What does that mean? I don’t often write about how healthcare...Continue reading      5 Comments » Read more

Phil Mickelson’s Psoriatic Arthritis

“Mickelson arthritis” brings shrugs “Phil Mickelson arthritis” was such a common search already that it was suggested to me by Google’s search tool as I typed his name yesterday. That was only two days after Mickelson announced his diagnosis of Psoriatic Arthritis to the press. I have to admit that I shrugged the first time I...Continue reading      30 Comments » Read more

Perseverance in Fighting Rheumatoid Arthritis

What keeps you fighting? I tried to quit... At one point, I thought I would be fired as a professional patient. No such luck. I’ve also tried to quit Rheumatoid Arthritis. Maybe you remember my Eject Button. I tried to quit another chronic illness once. Maybe you read my ostrich jokes. I haven’t had a lot of...Continue reading      23 Comments » Read more

Woman’s Day Rheumatoid Arthritis Article: A Video Appeal

Rheumatoid Arthritis Warrior & the Woman’s Day article Welcome to my first video blog! I’ve been working on responding to the Woman’s Day Rheumatoid Arthritis article for almost a year. It was my first encounter with the PR (public relations) problem with Rheumatoid Arthritis in the media. Please read my first blog on the Woman’s Day...Continue reading      79 Comments » Read more

Rheumatoid Arthritis Information Button

Searching for Rheumatoid Arthritis information Sometimes people ask what prompted me create this website. I love that question because it opens the door to share from my heart. The reason is that I could not find a comprehensive dependable source of Rheumatoid Arthritis information organized so that patients could access it. As a patient, I found it...Continue reading      11 Comments » Read more

Thinking about Love Bug Season & People with Rheumatoid Arthritis

The love bugs are swarming now in Central Florida I’ll never forget my first moments in Florida. I remember it plainly. It was the shock and awe season – otherwise known as love bug season. I had gotten on the plane with my new baby in Albuquerque in the snow. It was about the first of May....Continue reading      17 Comments » Read more

Looking at a Rheumatoid Arthritis Flare Up with a Smile

See what a Rheumatoid Arthritis flare up plus a little creativity can produce! There was a treat in my email box last night.  Young freelance writer Brooke Windsor wrote up this clever verse about her Rheumatoid Arthritis flare. It gives cool meaning to “grin and bear it.” Brooke’s writing touched me and made me smile and I’m...Continue reading      37 Comments » Read more

How Much Does Patient Testimony Matter?

A story about patient testimony In this blog, I’m going do something I don’t often do: use personal patient testimony to illustrate a point. Today, I took my teenage son to a new ear, nose, and throat (ENT) doctor. My son’s ENT history was interesting to the doctor.  Reliving the story today was poignant. As an infant, my...Continue reading      19 Comments » Read more
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