Living with RA / Managing RA Archives | Page 5 of 12 | Rheumatoid Arthritis Warrior

Living with RA / Managing RA

Is Rheumatoid Arthritis a Factor in Divorce?

Kelly Young 77 Comments ,
At a meeting of Rheumatoid patients, we heard one describe how her spouse is leaving her as a result of her Rheumatoid Arthritis diagnosis. Everyone in the room gasped as she recounted how her husband told her that he did not want to be her caretaker. However, I’ve read many sad letters with similar stories....Continue reading      77 Comments » Read more

Leaving It All on the Field: Not the Safest Choice But Maybe Best

Kelly Young 12 Comments , ,
Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading      12 Comments » Read more

FDA Arthritis Advisory Committee Hearing for Pfizer’s RA JAK: Tofacitinb

Kelly Young 27 Comments ,
Advisory Committee hearing feed link My daughter Katie Beth and I are in Washington, DC for the final FDA Arthritis Advisory Committee (AAC) hearing about Pfizer’s JAK, tofacitinib. Early in the morning, Katie Beth and I will be en route to the meeting. The AAC meeting will be broadcast online with a live feed. We’ve been told...Continue reading      27 Comments » Read more

Laura’s CVS Commercial with Kelly’s CVS and the “a” Word

Kelly Young 40 Comments ,
Once upon a time, a family switched insurance companies. Mother went to Target to pickup groceries methotrexate with a $10 coupon. When she went to the counter to pay, the insurance had “denied” coverage for the medicine. In the age of cell phones, mother figured she could cure this problem in a moment right there...Continue reading      40 Comments » Read more

When Should People Living with Rheumatoid Disease Use a Wheelchair?

Kelly Young 67 Comments , ,
Or give in to using a cane? Or pain medication? Or a handicapped tag? There was an interesting discussion about wheelchairs and canes on my Facebook post yesterday. At the same time, there were a few other discussions going on about pain medicines. There is such a wide range of needs. But there are some things...Continue reading      67 Comments » Read more

Keeper or Loser: I’m Not Giving Up, But What Do You Think?

Kelly Young 141 Comments ,
Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years: rheum doc and The Wizard. Rheumatologists are the doctors who decide not to sneak out Osler’s infamous back door. I always give...Continue reading      141 Comments » Read more

4 Funny Things about Pain Scale Charts

Kelly Young 61 Comments , ,
Pain is one of the most important symptoms of Rheumatoid Arthritis and many other conditions. Pain is the most obviously significant signal that something is wrong. However, pain is also the most difficult symptom to measure. Need for a pain scale Since pain is such an important indicator that something is “wrong,” we ought to find better...Continue reading      61 Comments » Read more

Mission Impossible: Crowd Management with RA

Kelly Young 36 Comments ,
Whether you take mass transit, work at a crowded office, or attend conferences like I have recently, managing in a crowd with RA is challenge. This may be one more mission impossible, should we choose to accept it… It’s hard to explain RA to anyone who hasn’t lived it. Have you ever had a sprained ankle...Continue reading      36 Comments » Read more

Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis

Kelly Young 24 Comments , ,
What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of their medical records; Keep up on research. I’d also wish for them that they find doctors who listen well! What else is indispensible with a Rheumatoid Arthritis diagnosis? Watch...Continue reading      24 Comments » Read more

Recognizing the Anguish of Depression in Time for Help

Kelly Young 13 Comments , ,
Negative spaces are only part of the picture I was stirring early in the morning when everything was still gray. Something I saw looked like a fish for a moment. There’s no pet fish here, especially in my room. “Negative spaces,” I heard myself whisper. That’s what is in between the shapes of what is really there....Continue reading      13 Comments » Read more

Rheumatoid Arthritis and Hair Loss

Kelly Young 85 Comments , ,
Does RA Disease cause hair loss? Hair loss is one of the things you frequently hear about in the RA community. Patients have two questions: What’s causing my hair loss? What can I do about it? Hair loss can be a side effect of Rheumatoid Arthritis treatment Some DMARDs (disease modifying antirheumatic drugs) list hair loss as a possible side...Continue reading      85 Comments » Read more

Rheum Blog Carnival: Pain Relief in Rheumatology

Kelly Young 16 Comments , ,
Hey all! I’m truly amazed and humbled by the blogs about pain relief that I’ve read over the last few days. I hope you’ll read them all. Here’s the original post with describing today’s topic about how to treat pain relief in Rheumatology. We asked about who should treat the pain and when, whether patients...Continue reading      16 Comments » Read more
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