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Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

Kelly Young 9 Comments ,
1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students' understanding of the impact of...Continue reading      9 Comments » Read more

Energizing E-patient Engagement – Collaborations that Count

Kelly Young 6 Comments , ,
This blog is not about me because it’s always been much more than a way to share my own journey. This blog tells OUR story – the true story of Rheumatoid disease, the people who live with it, the fight to cure it, and the process that patients have entered to participate in improving our...Continue reading      6 Comments » Read more

Attending an FDA Hearing for Pfizer’s JAK: Tofacitinib CP-690550

Kelly Young 28 Comments ,
Three years ago, one of the first friends I made through my blog was Angie. She got into a Pfizer clinical trial for tofacitinib (then called tasocitinib). She sent me some info about the trial, but my rheum doc wasn’t interested and I didn’t pursue it. The current excitement about Pfizer’s tofacitinib Tofacitinib is an oral medication...Continue reading      28 Comments » Read more

Dear Warriors and Friends

Kelly Young 10 Comments , ,
The past three years are positively beyond anything I could have imagined. Do you have a moment? When I started blogging, I had dreams of this website. But it could take forever to learn enough about “code” to manage it… We’ll save the rest for another day, but do you realize rawarrior.com has at least 630 pages?...Continue reading      10 Comments » Read more

Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

Kelly Young 116 Comments , , ,
This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with my rheumatology...Continue reading      116 Comments » Read more

I’m Not All Better, Just Too Polite to Whine; Yet Victory Is Still Sweet

Kelly Young 43 Comments ,
Please don’t miss the news at the end of the post! I had to put A LOT on one page since it’s been a few days! My endocrinologist was so excited about my attending the ACR in November and winning the WebMD award in December and it’s really fun to share after being a patient there...Continue reading      43 Comments » Read more

You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors & Friends! [video]

Kelly Young 13 Comments , ,
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own Local Rheumatoid Arthritis Support page are affiliated with AI, who assists local support groups in various ways. It has been...Continue reading      13 Comments » Read more

Tweeting an EMG: Another Way to Research Pain

Kelly Young 24 Comments , ,
Really important stuff that I read last week, while researching pain scales, will not be on the blog today. I’ve been thinking a lot about how differently a disease affects us and whether we can honestly communicate about that. When Dana asked for resolutions at the weekly #HCSM (healthcare communications in social media) chat, I said I...Continue reading      24 Comments » Read more

Hoping Really Hard: 2 Battles I Fight to Win

Kelly Young 20 Comments ,
Two things I’ve been hoping for with all my heart, so I’m doing all I can If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much as...Continue reading      20 Comments » Read more
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