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Accomplishing Thankfulness via Thorough Commitment

The pieces to the puzzle of me are scattered across this blog. Elephants. Humor. Space exploration. Don Quixote. Determination. Eagles. Pollyanna. Pollyanna gets a bad rap It’s stunning to me how some things are construed as opposite of what they are. Somehow Pollyanna has become synonymous with sounding dismissive and detached. We all know people who dismiss...Continue reading      12 Comments » Read more

Digging in to the 2011 American College of Rheumatology Scientific Meeting

As I returned from the 2010 American College of Rheumatology Scientific Meeting last year, I painted a picture for you of its significance and the impact it made on me. Those words are still a proper backdrop as we review the events of the 2011 meeting: Context, Care, & Complicated and I hope you’ll read...Continue reading      2 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading      49 Comments » Read more

Update from Chicago!

It’s our last day in Chicago!  Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more. The last couple of months have been spent in almost constant preparation for the...Continue reading      4 Comments » Read more

Video: Rheumatoid Patient Foundation Gives RA Patients a Voice

This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading      1 Comment » Read more

Fears of Social Media: a Pre-Halloween Boogie Man Post

I’m hoping this happy little post might help anyone who is on the fence about blogging or using other forms of internet 2.0 (meaning “interactive websites”) to communicate about healthcare. This article is part of an Advisory Board essay that I contributed to the Mayo Clinic Center for Social media to be used in a...Continue reading      3 Comments » Read more

Happy Birthday #Rheum for World Arthritis Day

Last October 12, I was in New Jersey in on a WEGO Health panel of health activists. But before I got on the plane, I wrote a blog post to share my concept of a #Rheum community online for people interested in Rheumatoid disease and rheumatology topics, beginning with a Twitter hashtag and chat. Over the...Continue reading      6 Comments » Read more

IOM Pain Report Relieving Pain in America Gets Mixed Reviews

Institute of Medicine (IOM) studies pain in America This past summer, the Institute of Medicine (IOM) produced a report on the status of pain treatment in America called Relieving Pain in America: A Blueprint for Transforming Prevention, Treatment, and Research. (You can download a prepublication PDF of the book at that link.) The report recommended to...Continue reading      21 Comments » Read more

Rheumatoid Patient Foundation Needs Your Help

I was glad when it started raining today – it’s proper to rain when you cry.   The Digital Patients’ Bill of Rights Things are happening fast. The E-Patient Connections conference was fantastic. The day before, I participated in the Digital Patients’ Bill of Rights meeting. I haven’t written about it yet, but you can read about...Continue reading      31 Comments » Read more

Living with (RA) Rheum Disease Is Already Multitasking

Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing to...Continue reading      18 Comments » Read more

News Flare! 1st Rituxan Infusion! WebMD Award! and More!

First Rituxan infusion Monday, I spent 8 hours with an IV for my first Rituxan infusion. It took a longer time for various reasons, but it seems I did fine. So far my only noticeable side effect has been a fierce headache. Still. It’s difficult to describe how grateful I am for those who sat with me...Continue reading      35 Comments » Read more
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