Other Archives | Page 4 of 16 | Rheumatoid Arthritis Warrior

Life of a Professional Patient, Blog#7: Radiofrequency Ablation with RA?

Radiofrequency ablation has nothing to do with RA. Unless RA pain from the spine is real. Warning: This is one of those personal posts. It was an unusual week. Monday: We drove to Orlando for Roo’s hernia post-op appointment. It’s all good. I wish every doc were so skilled. Tiger saw his Fairy Godmother (hearing aid specialist). I wish...Continue reading      6 Comments » Read more

Good News for Us and a Reader’s Take on the Newspaper

We’re so fortunate to have readers who make such amazing contributions. That’s what makes us more of a community than just a website. Isn’t it great the amount of information and encouragement readers provide each other – and me – even by commenting?! This week we reached an extraordinary milestone on our Facebook page. Our membership...Continue reading      8 Comments » Read more

Rheumatoid Arthritis Pain Relief: What Do You Know?

The topic of pain relief came up last week in the Twitter #rheum chat. A couple of people Tweeted that their rheumatologists don’t give them pain relief meds.  I hear that from people sometimes, and I wondered… Whose responsibility is it to provide Rheumatoid Arthritis pain relief? The huge pain study by Strand showed 72% of Rheumatoid...Continue reading      38 Comments » Read more

Fundamental Studies of Rheumatoid Arthritis Genetics & Genomics

RA Genetics 101: Glass half-full or half-empty? Part 3 This is Part 3 of a guest series on RA genetics by Robert West, Jr, PhD. Part 1 provided the introduction to RA genetics and Part 2 described the direct to consumer (DTC) genetics of RA. Here, I describe a dissection of the complexity of the heritable component of...Continue reading      5 Comments » Read more

More Rheum Adventures on the Road

Happy Saturday, y’all! Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control, healthy snacks, music, and lots of rest stops. For the first half, we stopped for 10-15 minutes after every hour of driving. That...Continue reading      10 Comments » Read more

Direct to Consumer Genetics of Rheumatoid Arthritis (RA)

RA Genetics 101: Glass half-full or half-empty? Part 2 In part 2 of this guest series, I present results of my own genotyping analysis provided by the direct-to-consumer (DTC) genetic testing company 23andMe, specifically with respect to the estimated lifetime risk of acquiring RA. To provide a somewhat balanced perspective, I also show the corresponding results of...Continue reading      14 Comments » Read more

Be Heard via the RPF’s Rheumatoid Arthritis Patient Survey

Rheumatoid Patient Foundation brings you its 1st Rheumatoid Arthritis Patient Survey The Rheumatoid Patient Foundation (RPF) exists to serve people with RA. Although there have been numerous organizations existing over the years for other rheumatological conditions (such as Sjogren’s syndrome or Fibromyalgia syndrome) and other autoimmune arthritis-type diseases (such as Lupus or Ankylosing Spondylitis), the Rheumatoid...Continue reading      26 Comments » Read more

Will the Next Frontier Be Rituxan?

I spent a couple of hours tonight searching for a Rituxan blog post I wrote a couple of weeks ago. Finally, I figured out there’s only one way to make it come out of hiding – write it over again. (Murphy always lurks, but we can outsmart him.) Working my way toward Rituxan You know that life...Continue reading      51 Comments » Read more

Hear My RA Interview on KISS FM! Plus Updates & Coupons

Over the last two weeks, I haven’t been able to write very much because of 2 roadblocks: Do you have RA in your shoulder? Lately, I’ve just cried and lay with heat or ice on mine. Some days, I couldn’t lift it forward from my side even an inch, no matter how hard I tried. At least this...Continue reading      41 Comments » Read more

Joint Effort of Rheum Patients Will Outshine Progressing RA

Tonight I heard one of the countless diabetes ads. “Are you still using a violent syringe? Buy our flexpen syringe...” Huh? They said it again, only this time I realized it was “vial and syringe.” Funny how we can hear things in a certain way – like the word progress, which can be pronounced two...Continue reading      21 Comments » Read more

Without e-Patient Input, an ER Experience Can Be Empty

Things that patients know about their health and the wealth of information they find online make input from patients valuable and meaningful. These patients are called e-patients. An e-patient acronym: Expand Participation by Allowing The Input of Evidence Not in Textbooks Hopefully, you didn’t miss the exciting news for rheumatology e-patients acknowledging that by “pooling our knowledge and...Continue reading      52 Comments » Read more

Positive Signs for Rheum Patient Activism

Seeing is believing: rheum patient activism Last Friday, a meeting of the Emirates Society for Rheumatology (ESR) in Abu Dhabi heard a presentation from Katrina Thornley who has had Juvenile Rheumatoid Arthritis (JRA) for 27 years (since age 2). Dr. Mustafa Al Maini, President of the ESR, comparable to our ACR (American College of Rheumatology), called...Continue reading      4 Comments » Read more
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