RA Public Service Announcement Video

March 22, 2019 Kelly Young 1

A video RA Public Service Announcement explains that rheumatoid arthritis is a serious disease, with arthritis as just one symptom. #rheum

Treating RA

Testing the imaware™ RA Test Kit

March 12, 2019 Kelly Young 0

Video of RA Warrior Kelly O’Neill doing an imaware™ RA test kit, giving tips and advice to make the process easier. Kelly reads the report of her results.

Communication and Inspiration

Possible Rheumatoid Arthritis

March 6, 2019 Kelly Young 3

Identifying possible rheumatoid arthritis is one step in a new quest to stop rheumatoid disease from becoming full-blown. Part 2 of RA Runs in Families.

RA Research, Resources, and Rheumatology

RA Runs in Families

February 28, 2019 Kelly Young 14

Evidence that RA runs in families and discussion of family risk of rheumatoid disease and imaware™ at-home RA test to screen for RA.

Treating RA

RA Surgery — 10 Questions Answered

February 18, 2019 Kelly Young 15

Discussion of RA surgery and questions related to surgery in people with rheumatoid disease, including continuation of medications.

RA Research, Resources, and Rheumatology

Seronegative Rheumatoid Arthritis Is Hazy

January 31, 2019 Kelly Young 14

Discussion of seronegative rheumatoid arthritis and the criteria for diagnosis of rheumatoid disease. Study shows seronegative disease is as severe.

Invisible Illness and the Public: She Hit Me with Her Cane

October 23, 2013May 14, 2018 Kelly Young 46 Comments Courage & living with RA, Invisible Illness, Rheumatoid Arthritis awareness

Tomorrow I’m traveling to San Diego for the ACR annual meeting. I’ll be taking a proverbial chill pill (and some real meds) and hoping all goes smoothly. For weeks we’ve done all we can to be ready! This story occurred a couple of months ago... Did anyone ever give you a dirty look for using handicapped...Continue reading 46 Comments » Read more

Seronegative Rheumatoid Arthritis

October 21, 2013February 15, 2019 Kelly Young 43 Comments Blood test for RA/ Rheumatoid Disease, Measuring rheumatoid disease activity

Seronegative Rheumatoid Arthritis Diagnosis A letter from a reader asks RAW about content directly addressing seronegative Rheumatoid Arthritis. Whether or not you’re a patient with negative lab results, it is important to grasp why there is not a separate category on RAW for seronegative RA. "My reason for writing is that I don't see a great deal...Continue reading 43 Comments » Read more

New Biomarkers for Rheumatoid Arthritis /Rheumatoid Disease

October 18, 2013May 14, 2018 Kelly Young 10 Comments Blood test for RA/ Rheumatoid Disease, Research on Rheumatoid Arthritis

A biomarker is an indicator of a disease or of a physiological state. Currently used biomarkers in blood tests for Rheumatoid Arthritis Anti-CCP / ACPA Rheumatoid factor 14-3-3η Vectra DA, a combination of 12 biomarkers that can be associated with RD Why do we need to find more biomarkers? Finding the ultimate biomarker for Rheumatoid Arthritis / Rheumatoid Disease is like a...Continue reading 10 Comments » Read more

Blood Tests for Rheumatoid Arthritis: What Is Their Role?

October 17, 2013May 14, 2018 Kelly Young 18 Comments Blood test for RA/ Rheumatoid Disease, Patient reported outcome measure

Probably the RAW article most often referenced is Blood Tests for Rheumatoid Arthritis, part 2 from over four years ago. People need answers to questions like: My blood tests show I’m in remission, so why do I still have symptoms? My doctor said I tested negative for RA, but could I still have it? What is the role...Continue reading 18 Comments » Read more

Gatecrashing: The Story of Rheumatoid Patients at the ACR Meeting

October 14, 2013May 14, 2018 Kelly Young 24 Comments American College of Rheumatology, e-patient, Patient advocacy

It’s bedtime here. How about a bedtime story? Once upon a time in Philadelphia- ACR 2009 After being diagnosed with Rheumatoid Arthritis in 2006, I read some articles from reliable hospitals like Johns Hopkins. Sometimes I looked up symptoms online or read patient comments on large websites like Health Central or WebMD. Eventually I entered discussions with...Continue reading 24 Comments » Read more

An Absolutely Vile Disease, the “a” Word, & New RA Animated Video

October 12, 2013May 14, 2018 Kelly Young 17 Comments Patient advocacy, Rheumatoid Arthritis awareness, Video or podcast

RA Veterans animated video Last year, I got a call from a woman named Courtney floating a trial balloon on creating an animated video for RA patients. After some discussion, I agreed it could be interesting, but with a few “ifs” like if it’s positive, honest and realistic, and if its not insulting to patients. Courtney’s...Continue reading 17 Comments » Read more

News on Biosimilar Biologics for Rheumatoid Arthritis / Rheumatoid Disease

October 11, 2013May 14, 2018 Kelly Young 1 Comment Biosimilars, Rheumatoid arthritis treatment

Little progress on FDA path of biosimilar biologics for RD It’s hard to believe it’s been almost two years since we’ve discussed biosimilars on Rheumatoid Arthritis Warrior (RAW). What’s even harder to believe: the situation in the U.S. is much the same: 1) The Biologics Price Competition and Innovation Act (BPCI) was created as a pathway for...Continue reading 1 Comment » Read more

Do Patients Know Enough to Talk about Medical Topics?

October 10, 2013May 14, 2018 Kelly Young 20 Comments e-patient, Talking to doctors

The e-patient movement The movement for prepared, engaged patients and shared decision-making is international. It is recognized and supported by people in positions of power at many levels. Organizations, think tanks, and government agencies study the movement, often supporting it in an effort to advance care, reduce mortality, and lower costs. It is not patients versus...Continue reading 20 Comments » Read more

Wearing Caped Superman Socks! Accepting Limits & Still Trying Hard

October 9, 2013May 14, 2018 Kelly Young 24 Comments Encouragement for living with RA, Faith, Living with chronic illness like RA

Superman socks and the to-do list Am I the only one who tries her heart out and falls far short day to day? Something tells me no. There’s a lot of pressure to get things done right now. And more things to do than time or strength to do them. Every morning I wonder which things on...Continue reading 24 Comments » Read more

3 Topics in the News on Rheumatoid Arthritis Heart Disease

October 2, 2013May 14, 2018 Kelly Young 13 Comments Research on Rheumatoid Arthritis, Rheumatoid arthritis and heart

Rheumatoid “Arthritis” in the heart – no joints, but plenty of problems Often, I have sharp chest pains, but I know it’s not my heart – click here if you don’t know what it is. (Hint: there are joints along the sternum.) But when a large butterfly flutters in my chest and tries to escape through...Continue reading 13 Comments » Read more

Steps Toward Understanding Rheumatoid Disease

September 30, 2013May 14, 2018 Kelly Young 12 Comments Communicating about RA, Research on Rheumatoid Arthritis

2 Big Announcements Last month in What is Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD)?, we asked what this disease IS, with 10 things it doesn’t make sense if doctors don’t know. When we truly know what RD is, we can diagnosis it early, treat it successfully, and cure it! We’re taking steps to support that goal. 1....Continue reading 12 Comments » Read more

20 Tips for Traveling with Rheumatoid Arthritis / Disease

September 5, 2013May 14, 2018 Kelly Young 28 Comments Living with chronic illness like RA, Tips for living with Rheumatoid Arthritis

Flying with Rheumatoid Arthritis (RA) is a challenge Today as you read this, I’m doing my don’t-miss-the-plane dance. My close friends and family all know well how I start asking them a week before a trip to “pray I don’t miss the plane.” Really. I have missed the plane. Twice. I literally start preparing to catch a...Continue reading 28 Comments » Read more

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Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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