Twenty months ago, I explained why I’d become convinced that the “name” of Rheumatoid Arthritis must be changed. The more I’ve learned over the past few years, the more I could not deny that fact.
Soon after that, I decided to write a little e-book examining the ways Rheumatoid Disease affects the body outside of the...Continue reading 44 Comments »
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Professionals Call for Ultrasound Use in Rheumatoid Arthritis
Superior for disease activity assessment, but user-dependent
Recently in Rheumatoid Arthritis Ultrasound News, we looked at reasons musculoskeletal ultrasound matters to people with Rheumatoid Disease (PRD), and stories from patients who weren’t treated because doctors didn’t see swelling or inflammation. We heard what a doctor said recently at EULAR: “You can see raging inflammation in joints...Continue reading 11 Comments »
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Musculoskeletal Ultrasound in Rheumatoid Arthritis: Training Is Essential
In the several articles on RAW about using musculoskeletal ultrasound in Rheumatoid Arthritis I’ve stipulated “with training” for good reason. Let’s look closer at the need for training in ultrasound use for rheumatology patients. Please see the recent post Rheumatoid Arthritis Ultrasound News describing the significant role musculoskeletal ultrasound can play for people with Rheumatoid...Continue reading 11 Comments »
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Chest Pain in Rheumatoid Arthritis: Costochondritis Anyone?
Severe chest pain can send you to the ER – unless you know it’s “just” the Rheumatoid
This past week, someone turned up the volume on my chest pain. I was glad I’d heard other patients say they went to the ER for chest pain and it turned out to be “just” costochondritis. Maybe that prepared...Continue reading 93 Comments »
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What Would the Car Mechanic Say If You Didn’t Look Sick?
This just doesn’t happen:
You take the car to a mechanic and he looks out the window across the showroom and says, “Your car looks fine to me. The paint is still shiny. It’s not very old.”
All of our cars are pretty old so the guys at the local Firestone shop know us pretty well....Continue reading 56 Comments »
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Use Your Words to Speak Life
Happy Birthday Katie Beth!
This week I was AWOL from the blog again – it was KB’s big 21. You already knew that (and some other big news) if you read the RAW newsletter The Spear – click here to sign up if you didn’t get one. And make sure to check your spam if you...Continue reading 12 Comments »
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Xeljanz (Tofacitinib) Rheumatoid Arthritis Commercial
Xeljanz TV commercial puts new kick in RA ads?
“Arms were made for hugging. Hands for holding. Feet, kicking. Better things than the joint pain and swelling of moderate to severe Rheumatoid Arthritis.” So begins the new Xeljanz direct to consumer TV ad. It’s rather different from the other Rheumatoid Arthritis drug commercials:
It is black and...Continue reading 50 Comments »
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Rheumatoid Arthritis Ruined Her Elbow, But Nothing Could Break Her Hope
Research of an engaged patient rescues her elbow
I hope you enjoy this inspiring story of a young woman’s struggle to get the best treatment for her elbow destroyed by Rheumatoid Disease (RD). Carolyn is a brave patient who researched to find a procedure to relieve her pain and restore movement to her elbow. She illustrates...Continue reading 24 Comments »
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Ashton Kutcher on Opportunity, Being Sexy, & Steve Jobs’ Advice on Life
Surprise speech on life at Teen Choice awards
This week at the Teen Choice Awards, popular actor and tech investor Ashton Kutcher (Christopher Ashton Kutcher) described “3 amazing things I learned when I was Chris.” Kutcher plays Steve Jobs in the upcoming film Jobs (opening this week).
I watched the video of Ashton Kutcher’s short speech last...Continue reading 5 Comments »
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Inventory of Rheumatoid Disease: One Patient’s Experience
Ok, this brief awkward moment of my life is called “Inventory”
Many with Rheumatoid Disease are more severely affected than I am; others are milder. I am one woman. This is my experience.
You may remember this article on happiness inspired this list, but I put it aside for a few busy months. Now, I’ve come back...Continue reading 48 Comments »
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What is Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD)? 10 Facts Every Doctor Needs
What is Rheumatoid Arthritis?
All of the other questions about Rheumatoid Disease (RD) hang on this. After we truly know what it is, we can diagnosis it early, treat it successfully, and cure it!
Remember the ancient elephant story? Just like the blind men describing the elephant, numerous aspects of RD have been described, but a comprehensive...Continue reading 28 Comments »
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Chronic Resilience: Strategies for Living with Chronic Illness
My first glimpse of Chronic Resilience
When Danea Horn contacted me last year to be interviewed for her upcoming book, Chronic Resilience I had no idea of her story. Danea was born with VACTERL Association, a rare kidney disorder. She has turned living with illness into a mission to explore redefining “positive” and to bring “creative affirmations”...Continue reading 4 Comments »
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