RAW has 6 posts on musculoskeletal ultrasound over the past 4 years. There have been a flurry of publications on the topic since the last one, Ultrasound for Seeing Invisible Inflammation in Rheumatoid Patients, in December. There’s a lot to talk about, so today will be the first of a series. If you haven’t, this...Continue reading 20 Comments »
Read more
Swollen Knees Are Smoother: The Glad Game in Rheumatoid Disease
Swollen knees and a smile (UPDATED 2016)
A silver lining to swollen knees
I made a strange discovery a couple weeks ago in the bathtub. Not Roo’s plastic goldfish. Round knees. (Swollen knees).
Shaving my legs (I hope the guys won’t mind this story too much…) I was amazed how easily the razor glided around my knees. Inspecting...Continue reading 20 Comments »
Read more
Sternoclavicular Joint Involvement in Rheumatoid Arthritis: Fascinating Discovery of a “Neglected Joint”
About a month ago, I was fascinated by a new report on 103 “patients with Rheumatoid Arthritis” in Mexico, “Sternoclavicular Joint Involvement in Rheumatoid Arthritis: Clinical and Ultrasound Findings of a Neglected Joint.” A sternoclavicular (SC) joint is a joint at the top of the sternum that allows movement of the clavicle. We each have...Continue reading 16 Comments »
Read more
What Is Crepitus in Rheumatoid Arthritis / Disease?
Crepitus is a sound-word – like crash or splash
Crepitus is one of those words I don’t think I used before being diagnosed with Rheumatoid Arthritis (like discrepancy). Crepitus is a general term for noise in the body like the grating, popping, or cracking sounds produced by joints or supporting tissues or the crunching sound in...Continue reading 56 Comments »
Read more
14-3-3eta Marker in Rheumatoid Arthritis Patients with Low CRP
(Click image to enlarge.)
The quest for Rheumatoid Arthritis tests
Almost four years ago I wrote my first post on Rheumatoid Arthritis tests. This is the 29th. Obviously, tests are a key topic in RA diagnosis and disease assessment. Many still ask about “the RA test” which doesn’t actually exist. Several tests are used to inform about...Continue reading 29 Comments »
Read more
Smoking and Rheumatoid Arthritis: 6 Things You Need to Know
Six take-aways in a short list below! But, first some surprising evidence.
Even light smoking contributes to Rheumatoid Arthritis risk
A recent Swedish study of 34,101 women reported “even light cigarette smoking is associated with increased risk of RA in women and that smoking cessation may reduce, though not remove, this risk.”[1] Although they found the risk...Continue reading 30 Comments »
Read more
Pace Yourself: Guilt-free Pay-to-Play
It’s Roo’s birthday! Already!
My goals include making a simple M&M cake with no complicated writing although I used to spend hours with a frosting bag even for Valentine’s cookies. Roo’s doing great with school subjects and Cub Scouts and playmates. He’s funny and smart, with a mind of his own. Other parents may know what...Continue reading 41 Comments »
Read more
Relax: Survival Mode and Our Intrinsic Value
The past few weeks have been full of chaos and minor crises. Not enough to stress me out, but enough to keep my days overfull with no strength left at the end to write – only sleep. I read last month of a study of mothers of more than three children1, that they are less...Continue reading 55 Comments »
Read more
Happy Birthday RAW! The Day I Could No Longer Stay Silent
This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day.
Today begins year five of RAW
Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a few months....Continue reading 35 Comments »
Read more
Planning Pregnancy with Rheumatoid Arthritis / Disease
How Rheumatoid Disease affects pregnancy planning
Pregnancy planning is a common challenge for people diagnosed with Rheumatoid Arthritis. Concerns include infertility, disease activity, pain control, and possible disability, which can interfere with caring for a child. Valuable resources include clinical studies and other publications, and the practical stories of other patients. While there is no clear...Continue reading 39 Comments »
Read more
Efficacy of Xeljanz, Biologics, & DMARDs in Rheumatoid Disease
Why should I feel like I failed? I’m not alone
We probably agree it’s unfair to say, “patients fail treatments” instead of the reverse, but there is still disappointment. I was optimistic that my Rheumatoid disease would respond to Xeljanz, the new oral DMARD (disease modifying anti-rheumatic drug) from Pfizer. Unfortunately, my joint stiffness and inflammation,...Continue reading 44 Comments »
Read more
Ciprofloxacin / Fluoroquinolone Tendon Dangers with Rheumatoid Arthritis
My brief story about ciprofloxacin and Rheumatoid Arthritis
I got a kidney infection shortly after starting Enbrel. It was Good Friday 2009. My kidney hurt and fever spiked to 104.5, after 3 days of UTI. Before then, I’d only had a minor UTI with pregnancy. This is when my GP got the nickname “Good GP” because...Continue reading 37 Comments »
Read more