RA Public Service Announcement Video

March 22, 2019 Kelly Young 1

A video RA Public Service Announcement explains that rheumatoid arthritis is a serious disease, with arthritis as just one symptom. #rheum

Treating RA

Testing the imaware™ RA Test Kit

March 12, 2019 Kelly Young 0

Video of RA Warrior Kelly O’Neill doing an imaware™ RA test kit, giving tips and advice to make the process easier. Kelly reads the report of her results.

Communication and Inspiration

Possible Rheumatoid Arthritis

March 6, 2019 Kelly Young 3

Identifying possible rheumatoid arthritis is one step in a new quest to stop rheumatoid disease from becoming full-blown. Part 2 of RA Runs in Families.

RA Research, Resources, and Rheumatology

RA Runs in Families

February 28, 2019 Kelly Young 14

Evidence that RA runs in families and discussion of family risk of rheumatoid disease and imaware™ at-home RA test to screen for RA.

Treating RA

RA Surgery — 10 Questions Answered

February 18, 2019 Kelly Young 15

Discussion of RA surgery and questions related to surgery in people with rheumatoid disease, including continuation of medications.

RA Research, Resources, and Rheumatology

Seronegative Rheumatoid Arthritis Is Hazy

January 31, 2019 Kelly Young 14

Discussion of seronegative rheumatoid arthritis and the criteria for diagnosis of rheumatoid disease. Study shows seronegative disease is as severe.

Livedo reticularis diagnosis – she knelt next to me with a medical textbook

May 9, 2013May 14, 2018 Kelly Young 23 Comments Professional patient, Rheumatoid Arthritis symptoms, Talking to doctors

See PART 1 to learn more on Livedo reticularis in rheumatoid disease Last week was one of those professional patient weeks, with three doctor’s appointments and a lab visit. “Professional patient” is not something I happily say. It started out in 2009 as a tongue in cheek way to make the most of an annoying phenomenon –...Continue reading 23 Comments » Read more

Words of Help From a Friend We’ve Never Met – Until We Do

May 2, 2013May 14, 2018 Kelly Young 2 Comments e-patient, Living with chronic illness like RA

Isn’t life full of special coincidences? Some even call them “God-incidences.” Circumstances show know that life is not all random, but the right words are often there at the right time – no matter when they were written. A couple of special coincidences occurred in February when I was in Washington. As my friend Leslie and...Continue reading 2 Comments » Read more

RPF White Paper Indicates Patient Experiences Differ from Typical Perceptions of Rheumatoid Arthritis

April 30, 2013May 14, 2018 Kelly Young 18 Comments Patient reported outcome measure, Research on Rheumatoid Arthritis, Rheumatoid Patient Foundation

Patient Experience and Rheumatoid Disease This site has always been dedicated to “presenting the patient story in a way that may increase understanding of the disease by doctors and researchers” as one of its three goals. The Onset Story project has been an important part of that, both for patients and for healthcare professionals searching to...Continue reading 18 Comments » Read more

Xeljanz Rejected by European Medicines Agency

April 26, 2013May 14, 2018 Kelly Young 29 Comments Rheumatoid Arthritis Clinical Trials, XELJANZ-tofacitinib-JAK

EMA rejects Xeljanz authorization Late yesterday, the European Medicines Agency (EMA) rejected the Pfizer’s application to market Xeljanz (tofacitinib). The EMA application was refused because the Committee for Medicinal Products for Human Use (CHMP) “adopted a negative opinion” on approving Xeljanz, stating they were unconvinced its risks outweighed benefits. Last November, the FDA approved the 5mg...Continue reading 29 Comments » Read more

Fall Risk Assessment and Intervention with Rheumatoid Arthritis

April 26, 2013May 14, 2018 Kelly Young 19 Comments Preventive Care with Rheumatoid Arthritis, Research on Rheumatoid Arthritis

First major study in Rheumatoid Arthritis to explore risk factors of falling In a recent study “Risk factors for falls in Adults with Rheumatoid arthritis,” 525 people diagnosed with Rheumatoid Arthritis (RA) were followed for one year to examine risk factors for falling. Thirty-six percent of patients in the study fell at least once during the...Continue reading 19 Comments » Read more

Health Data Is Like Yogurt: Full of Possibilities

April 25, 2013May 14, 2018 Kelly Young 3 Comments e-patient, Humira

Show me the data! Enjoy a laugh with this short adaptation of the legendary “Show me the money” scene from Jerry Maguire created by Dr. Eric Topol of Scripps Translational Science Institute. “Show me the money” has become a kind of motto that also reminds me of Wendy’s old “Where’s the beef?” ads. People want to...Continue reading 3 Comments » Read more

Men with Rheumatoid Arthritis Carry a Heavy Burden

April 23, 2013May 14, 2018 Kelly Young 32 Comments Men with Rheumatoid Arthritis, Research on Rheumatoid Arthritis

Study recognizes needs of men with Rheumatoid Arthritis A study of 30 Rheumatoid patients indicated that men with Rheumatoid Arthritis may not get the support they need. From my vantage point, I agree. Let’s take a look at the findings of the study, “’It Gets Me Down Every Single Day’: Are Men with Rheumatoid Arthritis Getting...Continue reading 32 Comments » Read more

Inadequate & stupid? No, just a victim of someone’s training

April 18, 2013May 14, 2018 Kelly Young 102 Comments Rheumatoid Arthritis symptoms, Talking to doctors

I don’t know where I’ll find the courage to write this. Some stories – my own or others’ – I’ve saved for a book (I’m working on a couple). At first I think, what will happen if I tell this? Then I realize it must be told, because it’s not my story – it’s the...Continue reading 102 Comments » Read more

Brain Fog: Testing Cognitive Dysfunction with Rheumatoid Arthritis / Disease

April 16, 2013May 14, 2018 Kelly Young 90 Comments Research on Rheumatoid Arthritis, Rheumatoid Arthritis symptoms

The last few weeks I’ve been rereading abstracts from the ACR scientific meeting we attended in November. There were many fascinating studies presented, like the tendons investigation on the blog a couple days ago. This one on testing cognitive function jumps out at me: “The Relationship Between Perceived Cognitive Dysfunction and Objective Neuropsychological Performance in Persons...Continue reading 90 Comments » Read more

Generic Thyroid Medication & a Levoxyl Recall

April 15, 2013May 14, 2018 Kelly Young 54 Comments Living with chronic illness like RA

This is a managing illness story that’s currently unfolding. A lot of people with Rheumatoid disease also have thyroid disease. I’ve been a thyroid patient for over 30 years, but I seldom discuss it because it was so well managed until… Getting the right thyroid medication dose Thyroid medication doses are very individual. Levoxyl comes in 11...Continue reading 54 Comments » Read more

Does Rheumatoid Arthritis Affect Tendons?

April 12, 2013May 14, 2018 Kelly Young 56 Comments Research on Rheumatoid Arthritis, Rheumatoid Arthritis symptoms

Studying the effect of Rheumatoid Arthritis (RA) on tendons As early as 1968, tendon involvement in Rheumatoid Arthritis was recognized and investigated as seen in the abstract “Tendon Involvement in Rheumatoid Arthritis” in Annals of the Rheumatic Diseases: Tenosynovitis is one of the common features of rheumatoid arthritis in the hand. It affects both the extensor and...Continue reading 56 Comments » Read more

New Blood Test for Rheumatoid Arthritis: 14-3-3eta

April 11, 2013May 14, 2018 Kelly Young 27 Comments Blood test for RA/ Rheumatoid Disease, Rheumatoid Arthritis test

New Rheumatoid Arthritis test based on blood marker 14-3-3η Yesterday, April 9, 2013, Quest Diagnostics announced a new blood test for Rheumatoid Arthritis based on a new protein biomarker, 14-3-3η. The test is available in the U.S. only at Quest labs through an exclusive agreement with Augurex Life Sciences, Corp. Several studies have investigated the relationship...Continue reading 27 Comments » Read more

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Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

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