Sometimes there’s a weird reason it seems impossible to write – I have too much to write about and I don’t know where to start. There are lists of topics I want to write about and dozens of articles begun that I haven’t finished. Today I want to write about how evil tongs and barstools...Continue reading 40 Comments »
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Why Rheumatoid Disease Patients Still Fall through the Cracks
“Well, at least it’s nothing serious.” How many rheumatoid patients have heard that, some even from doctors? Last week, after Danita’s story, I wanted to share with you this letter to the editor of Musculoskeletal Network, but health issues and life and a board meeting delayed me.
The letter below is my response to the Musculoskeletal...Continue reading 69 Comments »
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21 Tips to Prepare for a Biologic Infusion
How can patients get ready for a Biologic infusion?
Doreen asked how to prepare for her upcoming Rituxan infusion. Here are some general tips that might help with any kind of Biologic infusion. As usual, I’ve learned most of these from other patients and from the effective teacher called experience. The orange Rituxan blanket was a gift...Continue reading 18 Comments »
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Rest in Peace, Danita
In the past year, three people I knew of passed away due to causes related to Rheumatoid disease. We’ve known for a long time that statistics on rheumatoid related deaths are under-reported because the disease is often not mentioned in death records. But statistics are not the point of this post. It is about one...Continue reading 28 Comments »
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New Treatments for Rheumatoid Arthritis: the Research Road
Is there an RA miracle treatment right around the corner?
Thanks to my mom and a couple of other RA-news watchers who sent me this news Friday about a so-called “single jab to beat arthritis.” Why do papers love stupid headlines? No, it’s not about “arthritis;” it’s about RA, an ill-named inflammatory disease. It’s not a...Continue reading 9 Comments »
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The Best Rheumatoid Arthritis News Story I’ve Ever Seen
Click now to hear the news story as it aired February 4, 2013 on KPCC, the local NPR affiliate in South Central Los Angeles. Honest rheumatoid arthritis news story on NPR station
Jose Martinez KPCC interview
Jose Martinez, writer for OnCentral: Reporting on health and quality of life in South LA, first contacted me a couple of...Continue reading 30 Comments »
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Seeing Light and Shadows in Groundhog Day and RA
TODAY, February 2nd,is the first Rheumatoid Awareness Day. Read more below about how you can be involved.
Amateur actress shares Groundhog Day's special place in her heart
My sweet friend Steph, one of the bright treasures that I have gained from living with this disease, sent me a story in an email yesterday. I'll hope you'll enjoy it...Continue reading 2 Comments »
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The Pursuit of Happyness When Part of Your Life Is Called Rheumatoid Arthritis
Waiting to start a new treatment, the past few weeks, I’ve had a crazy idea. If the treatment works, I might “forget” how it was. So maybe I should do something I’ve never done: take an inventory. A couple years ago, a patient commented that she does a brief inventory of her joints with her...Continue reading 24 Comments »
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This is our 10K
Have you read the posts on the Facebook event for Rheumatoid Awareness Day February 2nd? The stories, like thousands of comments on this site, describe the range of experiences and emotions people face with this disease. I’ve said your comments are like another whole blog– and that’s true. Together, we tell the full story of...Continue reading 4 Comments »
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$10,000 Matching Opportunity for Rheumatoid Awareness Day
Another patient's story about what Rheumatoid disease is really like
Last month, I shared what it’s like to live with full-blown Rheumatoid disease, taking the gloves off. To provide a glimpse into a world that most will never experience, I described a few hours of trying to move and manage with people who don’t understand what the...Continue reading 4 Comments »
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Awareness Ribbon for Rheumatoid Arthritis, Finally
The unique awareness ribbon for Rheumatoid Arthritis
Patients distinguish themselves from arthritis or other diseases with an awareness ribbon for Rheumatoid Arthritis / Rheumatoid Disease
Does color really matter?
Think about the Yellow Brick Road. Would it be the same if it were the black brick road? Or the blue brick road? Of course not. But, we know...Continue reading 30 Comments »
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Prednisone Versus Prednisolone: the Same for Everyone?
Whether medicine is personalized or not, patients are
It’s fascinating how drugs are metabolized differently in different people, with different side effects and varying levels of benefit. But, prednisone is one thing we hear works the same on everyone. Is that right?
Prednisone works well enough on most Rheumatoid patients that it’s used by some doctors as...Continue reading 96 Comments »
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