Rheumatoid Arthritis Warrior | Page 15 of 68 | Information & encouragement to fight RA

Why Rheumatoid Disease Patients Still Fall through the Cracks

“Well, at least it’s nothing serious.” How many rheumatoid patients have heard that, some even from doctors? Last week, after Danita’s story, I wanted to share with you this letter to the editor of Musculoskeletal Network, but health issues and life and a board meeting delayed me. The letter below is my response to the Musculoskeletal...Continue reading      69 Comments » Read more

21 Tips to Prepare for a Biologic Infusion

How can patients get ready for a Biologic infusion? Doreen asked how to prepare for her upcoming Rituxan infusion. Here are some general tips that might help with any kind of Biologic infusion. As usual, I’ve learned most of these from other patients and from the effective teacher called experience. The orange Rituxan blanket was a gift...Continue reading      18 Comments » Read more

Rest in Peace, Danita

In the past year, three people I knew of passed away due to causes related to Rheumatoid disease. We’ve known for a long time that statistics on rheumatoid related deaths are under-reported because the disease is often not mentioned in death records. But statistics are not the point of this post. It is about one...Continue reading      28 Comments » Read more

New Treatments for Rheumatoid Arthritis: the Research Road

Is there an RA miracle treatment right around the corner? Thanks to my mom and a couple of other RA-news watchers who sent me this news Friday about a so-called “single jab to beat arthritis.” Why do papers love stupid headlines? No, it’s not about “arthritis;” it’s about RA, an ill-named inflammatory disease. It’s not a...Continue reading      9 Comments » Read more

The Best Rheumatoid Arthritis News Story I’ve Ever Seen

Click now to hear the news story as it aired February 4, 2013 on KPCC, the local NPR affiliate in South Central Los Angeles. Honest rheumatoid arthritis news story on NPR station Jose Martinez KPCC interview Jose Martinez, writer for OnCentral: Reporting on health and quality of life in South LA, first contacted me a couple of...Continue reading      30 Comments » Read more

Seeing Light and Shadows in Groundhog Day and RA

TODAY, February 2nd,is the first Rheumatoid Awareness Day. Read more below about how you can be involved. Amateur actress shares Groundhog Day's special place in her heart My sweet friend Steph, one of the bright treasures that I have gained from living with this disease, sent me a story in an email yesterday. I'll hope you'll enjoy it...Continue reading      2 Comments » Read more

The Pursuit of Happyness When Part of Your Life Is Called Rheumatoid Arthritis

Waiting to start a new treatment, the past few weeks, I’ve had a crazy idea. If the treatment works, I might “forget” how it was. So maybe I should do something I’ve never done: take an inventory. A couple years ago, a patient commented that she does a brief inventory of her joints with her...Continue reading      24 Comments » Read more

$10,000 Matching Opportunity for Rheumatoid Awareness Day

Another patient's story about what Rheumatoid disease is really like Last month, I shared what it’s like to live with full-blown Rheumatoid disease, taking the gloves off. To provide a glimpse into a world that most will never experience, I described a few hours of trying to move and manage with people who don’t understand what the...Continue reading      4 Comments » Read more

Awareness Ribbon for Rheumatoid Arthritis, Finally

The unique awareness ribbon for Rheumatoid Arthritis Patients distinguish themselves from arthritis or other diseases with an awareness ribbon for Rheumatoid Arthritis / Rheumatoid Disease Does color really matter? Think about the Yellow Brick Road. Would it be the same if it were the black brick road? Or the blue brick road? Of course not. But, we know...Continue reading      30 Comments » Read more

Prednisone Versus Prednisolone: the Same for Everyone?

Whether medicine is personalized or not, patients are It’s fascinating how drugs are metabolized differently in different people, with different side effects and varying levels of benefit. But, prednisone is one thing we hear works the same on everyone. Is that right? Prednisone works well enough on most Rheumatoid patients that it’s used by some doctors as...Continue reading      96 Comments » Read more
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