Here's a copy of the press release that went out over the wires yesterday. We're being contacted from media across the country. Please feel free to forward it to any journalists you have contact with.
Patients Increase Public Awareness of Underestimated Disease
January 22, 2013 – Rheumatoid Patient Foundation (RPF) announces the establishment of Rheumatoid Awareness Day...Continue reading 14 Comments »
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1st Rheumatoid Disease Awareness Day – Groundhog Day 2013
Rheumatoid Disease Awareness Day - FEBRUARY 2
A DAY FOR RHEUMATOID ARTHRITIS AWARENESS: February 2nd is the annual Rheumatoid Disease Awareness Day – CLICK TO READ PRESS RELEASE. Details about how you can get involved in the day of recognition for people living with Rheumatoid Disease, previously “Rheumatoid Arthritis,” can be found here. February is heart disease month, which is...Continue reading 21 Comments »
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Martin Luther King Day: Remembering That One World Is Enough to Share
New generation delivering message on importance of civil rights
I’ve passed on to my children my passion for American ideals such as justice. This picture was taken on a recent trip to Washington, D.C. at the Martin Luther King memorial. It’s been my Facebook cover picture for the past few months, inspiring me to remain tranquil...Continue reading 4 Comments »
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Sensational Headlines on Rheumatoid Arthritis & Exercise, Round 6
I got an email recently from a rheumatology magazine with a sensational headline about “exercise and Rheumatoid Arthritis.” The article linked to is a year old, but some of our doctors read these emails. And the public also gets confused by ridiculous headlines like “Nearly Half of RA Patients Are Sedentary. Here's Why.” So, we’ll...Continue reading 87 Comments »
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Livedo Reticularis & Rheumatoid Arthritis: Nothing Rash about It
Does livedo reticularis have anything to do with Rheumatoid disease?
Livedo reticularis is a purplish-colored lace pattern under the skin. There is no raised or itchy rash on the surface of the skin, but the light and dark areas resemble a net-like pattern. The causes and treatments for livedo reticularis are not fully understood, however it...Continue reading 85 Comments »
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Xeljanz Cost with a Copay Card, Free Samples, Efficacy, & Side Effects: Gathering Rheumatoid Arthritis Patient Stories
Please share your experiences with Xeljanz on the comments page here. Patient stories are starting to come in across the blog and I thought this would be more convenient for others searching for answers. Here’s my story.
A copay card for the newly approved DMARD, Xeljanz
Two years ago, my rheumatologist recommended I “just wait for something...Continue reading 135 Comments »
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Can Rheumatoid Arthritis Patients Get a Flu Shot? 15 Facts on Vaccinations & Autoimmune Disease
I’ve had pneumonia, the flu, H1N1 virus, and Norovirus – it’s not a pretty picture with RA...
1. Do vaccines work as well in Rheumatoid Arthritis patients? New study shows vaccine protection may rapidly decline with anti-rheumatic drugs such as methotrexate and TNF inhibitors.
A new study published this week in Arthritis Research & Therapy showed that...Continue reading 50 Comments »
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Textbook Rheumatoid Arthritis: Patient Input Will Replace It
A week ago Eric shared his dilemma and asked readers to share opinions concerning the treatment of his wife Kim’s Rheumatoid Disease. He provided the summary of issues he had given their rheumatologist, background about her symptoms, and a summary of the doctor’s response. He then listed questions he invited readers to answer. I have...Continue reading 34 Comments »
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Embracing the Future, Even with Rheumatoid Arthritis
Thanks to Rheumatoid Arthritis, not the future we expected
None of us knows the future and it often surprises us more than we expect. Getting a diagnosis of “Rheumatoid Arthritis” usually comes with life changes we couldn’t anticipate. No one expects to feel old before it is time, having friends and relatives twice your age who...Continue reading 19 Comments »
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A World Where No One Suffers from Rheumatoid Disease
When you’re making any charitable donations, please remember the Rheumatoid Patient Foundation (RPF) is each of us helping all of us.
The RPF Vision: A world where no one suffers from Rheumatoid disease.
Finally we have an organization with the specific purpose of improving the lives of people with Rheumatoid disease. Much has been accomplished quickly over...Continue reading 7 Comments »
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Patients Confront USA Today: More Media Mess on Rheumatoid Disease
We fight the battle against Rheumatoid disease on several fronts including scientific research, improving clinical care, supporting patients and caregivers in their search for information and support, and creating general public awareness that will contribute to all of the above. Our main weapon has always been the truth. The logo is a spear – made...Continue reading 10 Comments »
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Why I Hate “Are You Ready for Christmas?”
Well, I don’t really hate it, but “Why I’m uncomfortable with the question ‘Are you ready for Christmas?’” is too long for a blog title.
The Twelve Days of Christmas begin on Christmas. Sometimes people say Jewish families are lucky to celebrate Hanukkah over eight days. Isn’t that better than a month of rushing around terminating...Continue reading 13 Comments »
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