Replies to things not to say to an RA patient (UPDATED)
Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading 113 Comments »
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Beginning Our 4th Year! 5 Stunning Things I Learned & My Forecast for the Future
Three years ago today, I typed my first blog post in my back yard on a whim. My daughter had started to blog – what’s to worry about – just do it! Before that, I’d been working on ideas for months. I did have a goal: to build a website where RA patients could find...Continue reading 44 Comments »
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Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib
After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief.
Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading 44 Comments »
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Leaving It All on the Field: Not the Safest Choice But Maybe Best
Sightseeing, small steps, and sleep
I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading 12 Comments »
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FDA Arthritis Advisory Committee Hearing for Pfizer’s RA JAK: Tofacitinb
Advisory Committee hearing feed link
My daughter Katie Beth and I are in Washington, DC for the final FDA Arthritis Advisory Committee (AAC) hearing about Pfizer’s JAK, tofacitinib. Early in the morning, Katie Beth and I will be en route to the meeting.
The AAC meeting will be broadcast online with a live feed. We’ve been told...Continue reading 27 Comments »
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Attending an FDA Hearing for Pfizer’s JAK: Tofacitinib CP-690550
Three years ago, one of the first friends I made through my blog was Angie. She got into a Pfizer clinical trial for tofacitinib (then called tasocitinib). She sent me some info about the trial, but my rheum doc wasn’t interested and I didn’t pursue it.
The current excitement about Pfizer’s tofacitinib
Tofacitinib is an oral medication...Continue reading 28 Comments »
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Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List
RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics
Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading 47 Comments »
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Game On! 2 of You Will Win 6 Trudeau Stressless Kitchen Tools
RA Warrior has never done product reviews, but I said yes to this easy contest because I get to give away sets of six kitchen tools to 2 of my wonderful readers. So, play our game to see if you can win! You can always give the tools away if you don’t need them.
The game...Continue reading 3 Comments »
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Significant Numbers of RA Patients Don’t Receive Recommended Care
Understanding the reality of the disease is only half the battle
We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, it...Continue reading 24 Comments »
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The Confusion of a Smile
If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh?
It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right?
I smile a...Continue reading 44 Comments »
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Secondary Sjogren’s Syndrome and Rheumatoid Arthritis: a Primary Problem
Sjogren’s syndrome: have you seen the eye doc yet?
When I wrote my first RA Warrior post on Sjogren’s syndrome in 2009, I wasn’t sure whether I’d ever be diagnosed with it. But I thought it was important to cover on the blog. I had a fun idea for illustrating the pronunciation of the name so...Continue reading 32 Comments »
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It All Comes Out in the Wash: Comparing Different Treatments & Approaches
Four weeks. Not a record for me, but close... When this is published in the morning, I’ll be spending the morning washing and blowing out my hair for the 1st time in about a month.
The ends started to take dreadlock form the last few days, somewhat an improvement. But the front looks really bad [deliberately...Continue reading 17 Comments »
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