The first blog post of this year told how I’ve come to prefer the term Rheumatoid Disease to Rheumatoid Arthritis. The response? Within 2 days in Facebook-land, there were 294 Shares, 583 Likes, and 128 comments. There are now 1,000 Likes, 500 re-Tweets, and 80 blog comments. That’s people voting with their mouse: Yes.
But as...Continue reading 19 Comments »
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A Tribute: Oyster Suppers, Patient Advocacy, and Ice Cream
We lost someone very special yesterday, the last grandparent in our family. Her name was Mary and I want to tell you that she lived a long, healthy life to the age of 96. But decades ago, she’d become a patient advocate. I don’t even know whether that was a word back then. Nevertheless, after...Continue reading 14 Comments »
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It’s Just Pain, Right? No, Dr. No, It’s Not
No, it’s not just pain
A letter from a fellow warrior reminded me of something I’ve been wanting to blog about since last summer. Today was technically my last day in the clinical trial. They were supposed to call me to check once more for adverse events because it’s day 210. Everything happens on a certain...Continue reading 26 Comments »
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Dear Warriors and Friends
The past three years are positively beyond anything I could have imagined. Do you have a moment?
When I started blogging, I had dreams of this website. But it could take forever to learn enough about “code” to manage it…
We’ll save the rest for another day, but do you realize rawarrior.com has at least 630 pages?...Continue reading 10 Comments »
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What about a Clinical Protocol for Rheumatoid Arthritis Disease?
This was written in October 2011 as the fourth in the Frying Pan Post series. As most of you know, I’ve been crazy-busy since then, leaving many things on hold. These posts examine crucial ideas that have surfaced over the last couple of years on the blog. The Frying Pan Posts challenge the status quo...Continue reading 5 Comments »
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It’s Simple: Who Gets Dactylitis or “Sausage finger”?
Dactylitis and diagnosis
A woman I know is an educated patient who has worked hard to make certain she is diagnosed and treated appropriately. Recently, she showed pictures of swollen fingers to her rheumatologist and had her diagnosis changed again. Her doctor explained that the swelling in her photo looked like dactylitis or “sausage finger.”
Her new...Continue reading 32 Comments »
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Stand-up MRI and 6 More Useful Things to Know about Imaging
Aren’t X-rays and MRI’s infallible?
I used to think that imaging is the one certain thing in medicine. A friend’s broken pelvis taught me differently. It was fractured, whether we had evidence of it or not. I was one of the people who believed in her the whole time, but her treatment would certainly have been...Continue reading 4 Comments »
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Sustained Rheumatoid Arthritis Remission Is Rare
Headlines can have a curious effect. They’re supposed to make you read a story, but people don’t always read the whole thing. Sometimes they just make you laugh: Lung Cancer in Women Mushrooms, Miners Refuse to Work After Death, Woman Improving After Fatal Crash. 1
With medical topics, a headline rarely tells the whole story. Nevertheless,...Continue reading 10 Comments »
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Could Over the Counter Undenatured Collagen Supplement (UCII) Treat RA?
Have you seen a television commercial claiming a supplement “works with your immune system” as an over the counter arthritis treatment? Remembering this brand has been marketed to RA patients, I wondered whether the “improved” product would increase or decrease immune activity. So I looked for research on the ingredient “UCII” (undenatured collagen type II).
UCII...Continue reading 13 Comments »
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RA Disease in the News, Vol.7: Increased Atrial Fibrillation Risk, Steroids Reduce Citrullination, Self-performed Joint Counts
3 interesting Rheumatoid disease news items I knew you’d want to read!
1. Steroid injections found to reduce citrullination in synovial tissue with Rheumatoid disease
Researchers found that steroids applied directly joint tissues had a specific affect on disease activity that methotrexate did not have. Glucocorticoids (dexamethasone) decreased citrullination and PAD (peptidylarginine deiminase, an enzyme commonly produced...Continue reading 9 Comments »
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Preclinical Rheumatoid Disease: There Are No Joints in the Lungs
My mom used to read to me John Godfrey Saxe’s 19th century version of a famous Indian legend, The Blind Men and the Elephant. I’m certain it contributed to my zealous love of evidence. Over the last couple of years, interacting with thousands of people with Rheumatoid disease, I came to the conclusion that only...Continue reading 57 Comments »
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Rheumatoid Arthritis Severity Scale (RASS) Affecting Treatment Decisions?
Could the RASS Affect Treatment Decisions Dollars?
A reader asks about doctor’s ratings of Rheumatoid disease being required by third-party payers (insurance companies, etc) presumably to justify spending related to Rheumatoid disease treatment. She wrote: “according to my rheum today there is a lot of pressure by the insurance companies to having every patient rated using...Continue reading 16 Comments »
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