I know you’ll love this guest post from Dana as we see the collision of her experience with the disease, the measurement of disease activity by her rheumatologist, and the decision to change treatments. She conveys so well the process of making decisions about disease management. This is the whole reason we want to be...Continue reading 23 Comments »
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Laura’s CVS Commercial with Kelly’s CVS and the “a” Word
Once upon a time, a family switched insurance companies. Mother went to Target to pickup groceries methotrexate with a $10 coupon. When she went to the counter to pay, the insurance had “denied” coverage for the medicine. In the age of cell phones, mother figured she could cure this problem in a moment right there...Continue reading 40 Comments »
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Rheumatoid Arthritis Awareness Is about Medical Care, Not Sympathy
My Bear had an appointment to see his terrific pediatrician today again about his swollen finger joints. She was home with a cold, but we waited an hour to see an alternate. The fellow didn’t seem to welcome my questions or opinions.
I was in the familiar context of my pediatrician’s office – 6 years with...Continue reading 18 Comments »
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5 Responses to Treating Rheumatoid Arthritis with Supplements
This is a question that people frequently ask. They’ve been to the doctor and were shocked to receive a diagnosis of Rheumatoid Arthritis and a stack of prescriptions. I was the same way when I first learned about Rheumatoid disease: I wanted to be sure I didn’t have something more easily treated. Hey, I live...Continue reading 32 Comments »
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Failed Experiment: Methotrexate & Over the Counter Folic Acid
When I met my first rheumatologist, I left with a handful of prescriptions. One for folic acid. Really? Did I need a prescription for a vitamin? Doc said “to make sure it's enough, yes, it’s a lot more than a daily allowance.”
I already knew why over the counter supplements (OTC) are not considered as reliably dosed...Continue reading 47 Comments »
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Tweeting an EMG: Another Way to Research Pain
Really important stuff that I read last week, while researching pain scales, will not be on the blog today. I’ve been thinking a lot about how differently a disease affects us and whether we can honestly communicate about that. When Dana asked for resolutions at the weekly #HCSM (healthcare communications in social media) chat, I said I...Continue reading 24 Comments »
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Crossing the Language Barrier of Pain Scales: #Rheum Blog Carnival
If you either live with or study a rheumatological disease, then you know that pain is a ubiquitous symptom and an essential factor in evaluating disease activity. “Pain is a most important indicator of clinical status in rheumatoid arthritis (RA),” Arthritis and Rheumatism. While pain is the most obvious sign that something is not right,...Continue reading 27 Comments »
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We Refuse to Be Mislabeled: Updating Rheumatoid Arthritis (RA) to Rheumatoid Disease (RD)
Three years ago, I saw Rheumatoid Arthritis (RA) patients insisting that the name of the disease needed to be changed. They argued that until the “a” word is removed from the name, confusion about the disease will continue. When asked, I said that we could not wait around for that to happen; let’s work for...Continue reading 100 Comments »
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When Should People Living with Rheumatoid Disease Use a Wheelchair?
Or give in to using a cane? Or pain medication? Or a handicapped tag?
There was an interesting discussion about wheelchairs and canes on my Facebook post yesterday. At the same time, there were a few other discussions going on about pain medicines. There is such a wide range of needs. But there are some things...Continue reading 67 Comments »
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Pass the Pickles – and the Croutons
Did 2011 seem about four months long? If it were an all-you-can-eat salad bar, I’d want a refund. It went by so fast I think I only got to the pickles.
This month I’ve been more sleepy and fatigued than usual. It might be recovery from traveling the last few months. Or it could be this...Continue reading 24 Comments »
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Hoping Really Hard: 2 Battles I Fight to Win
Two things I’ve been hoping for with all my heart, so I’m doing all I can
If you’ve been reading my blog long, you know I talk about hope as a verb – something you do. Hope is not something that some lucky people just have. When you’re actively hoping, you’re probably doing as much as...Continue reading 20 Comments »
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Keeper or Loser: I’m Not Giving Up, But What Do You Think?
Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share.
We have two endearing names for rheumatologists which I’ve coined over the years: rheum doc and The Wizard. Rheumatologists are the doctors who decide not to sneak out Osler’s infamous back door. I always give...Continue reading 141 Comments »
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