It’s our last day in Chicago! Katie Beth and I are going to be tourists for a half-day and then pack for an early flight. All day tomorrow we’ll be in transit. Here’s a quick update until I’m able to write more.
The last couple of months have been spent in almost constant preparation for the...Continue reading 4 Comments »
Read more
Does It Matter Whether Rheumatoid Arthritis Affects DIP Joints?
Arguments in rheumatology which are critical for patients
Certain issues need to be settled in order to improve patient care for RA. Some things that have been “understood” or taught for years are wrong. These issues lead to inconsistencies in the practice of doctors who care for RA patients.
Some of those issues have been taken head-on here...Continue reading 64 Comments »
Read more
Mayo Clinic Video Interview: Patients at ACR Scientific Meeting
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like the ACR Scientific Meeting.
What happens at the American College of Rheumatology Scientific Meeting?
“The ACR/ARHP Annual Scientific Meeting will be...Continue reading 11 Comments »
Read more
Video: Rheumatoid Patient Foundation Gives RA Patients a Voice
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The Faces of Rheumatoid Disease to doctors, researchers, and industry attending the ACR meeting. We’ve also prepared other materials that we’ll be sharing with you in the coming...Continue reading 1 Comment »
Read more
When Rheumatology Is Sexy
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.”
Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of modern...Continue reading 16 Comments »
Read more
Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis
What do you say to someone diagnosed with Rheumatoid Arthritis?
If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to
Expect the best from treatments;
Read all of their medical records;
Keep up on research.
I’d also wish for them that they find doctors who listen well!
What else is indispensible with a Rheumatoid Arthritis diagnosis?
Watch...Continue reading 24 Comments »
Read more
Is That Your Final Answer? …or Replying to Misconceptions
A day filled with misconceptions about Rheumatoid Arthritis / Disease
I wrote this post weeks ago when it had just happened. I imagined responses that to misconceptions about rheumatoid arthritis are usually held back in polite conversation. Am I the only one who does that? What if it were a game show…
It was a day filled...Continue reading 98 Comments »
Read more
Rheumatoid Arthritis Exercise, Round 5
This is the third post in the Frying Pan series to honor of the blog’s 3rd year, considering some significant issues from the last couple years. Sometimes the ...Continue reading 53 Comments »
Read more
Behind the Scenes Video: Patient at a Social Media Conference
Telling it like it is. On camera. It’s uncomfortable.
It's very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that.
3 aspects of RA that are difficult to discuss
It’s hard to talk about pain, so most of us are pretty private...Continue reading 4 Comments »
Read more
Dear Healthcare Facility: We Love This But We Hate That
None of us love a needle stick, but some technicians do it so well, you can hardly feel it. Last week, a woman took several vials of blood without even asking me to squeeze a damn rubber ball. It was the first time a nurse remembered I have RA and adjusted her procedure! Thank you!...Continue reading 26 Comments »
Read more
Fears of Social Media: a Pre-Halloween Boogie Man Post
I’m hoping this happy little post might help anyone who is on the fence about blogging or using other forms of internet 2.0 (meaning “interactive websites”) to communicate about healthcare. This article is part of an Advisory Board essay that I contributed to the Mayo Clinic Center for Social media to be used in a...Continue reading 3 Comments »
Read more
A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 3
In Part 1, we pointed out that patients and clinicians look at Rheumatoid Arthritis disease activity in different ways. Rheumatologists especially focus on joints, and actually particular kinds of joint activity. Patients face much more with regard to disease activity, as reflected in the post and comments page.
In Part 2, we looked at two specific...Continue reading 59 Comments »
Read more