I thought it was brilliant the other day when a commenter called RA “the ghost disease.” It’s true that many RA myths persist and that researchers don’t yet know exactly how Rheumatoid Arthritis works. Which joints can be affected? Is there a nutritional cure that we are overlooking?
Confusion about RA is perpetuated in plenty...Continue reading 32 Comments »
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Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality
This post was inspired by the article Patient Advocates: Flies in the Ointment of Evidenced Based Care by Jessie Gruman at Health Affairs Blog. Patient advocacy and evidenced-based medicine are both intimately entwined with several matters in rheumatological care, but first a word about flies.
Patient advocates probably are flies in the ointment, and there would...Continue reading 35 Comments »
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Good News for Us and a Reader’s Take on the Newspaper
We’re so fortunate to have readers who make such amazing contributions. That’s what makes us more of a community than just a website. Isn’t it great the amount of information and encouragement readers provide each other – and me – even by commenting?!
This week we reached an extraordinary milestone on our Facebook page. Our membership...Continue reading 8 Comments »
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Rheumatoid Arthritis Pain Relief: What Do You Know?
The topic of pain relief came up last week in the Twitter #rheum chat. A couple of people Tweeted that their rheumatologists don’t give them pain relief meds. I hear that from people sometimes, and I wondered…
Whose responsibility is it to provide Rheumatoid Arthritis pain relief?
The huge pain study by Strand showed 72% of Rheumatoid...Continue reading 38 Comments »
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Excellent Rheumatology Care with a Horrible Rheumatoid Disease
RA Warrior is glad to welcome David Biundo to share some male perspective of living with Rheumatoid Arthritis. Over the last few months David’s rheumatologist has read and re-read his nuclear bone scan and various X-rays and MRI’s in order to carefully monitor the progression of David’s cervical spine Rheumatoid Arthritis. The nuclear bone scan...Continue reading 24 Comments »
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Do you have a Rheumatology Care Team?
What’s a rheumatology care team?
When I wrote the About pages for this site, I discussed the team of doctors and medical professionals that a person fighting Rheumatoid Arthritis might gather around him. Like Diabetes, I realized that people with RA could need plenty of monitoring and advice. The other day, I read an article in The...Continue reading 40 Comments »
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Fundamental Studies of Rheumatoid Arthritis Genetics & Genomics
RA Genetics 101: Glass half-full or half-empty? Part 3
This is Part 3 of a guest series on RA genetics by Robert West, Jr, PhD.
Part 1 provided the introduction to RA genetics and Part 2 described the direct to consumer (DTC) genetics of RA. Here, I describe a dissection of the complexity of the heritable component of...Continue reading 5 Comments »
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More Rheum Adventures on the Road
Happy Saturday, y’all!
Yesterday, I drove back from my mom’s ranch up on the Florida Panhandle. It was my first road trip since RA with me as the sole driver. My survival tools were cruise control, healthy snacks, music, and lots of rest stops. For the first half, we stopped for 10-15 minutes after every hour of driving. That...Continue reading 10 Comments »
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Direct to Consumer Genetics of Rheumatoid Arthritis (RA)
RA Genetics 101: Glass half-full or half-empty? Part 2
In part 2 of this guest series, I present results of my own genotyping analysis provided by the direct-to-consumer (DTC) genetic testing company 23andMe, specifically with respect to the estimated lifetime risk of acquiring RA. To provide a somewhat balanced perspective, I also show the corresponding results of...Continue reading 14 Comments »
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An Introduction to the Genetics of Rheumatoid Arthritis (RA)
RA Genetics 101: Glass half-full or half-empty? Part 1
Please welcome Professor Robert W. West, Jr, PhD as a guest on the subject of Rheumatoid Arthritis and genetics. Professor West uses his expertise in genetics to teach Personalized Medicine and other courses to the doctors of the 21st Century. A recent article on Ankylosing Spondylitis (AS) illustrates...Continue reading 19 Comments »
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Be Heard via the RPF’s Rheumatoid Arthritis Patient Survey
Rheumatoid Patient Foundation brings you its 1st Rheumatoid Arthritis Patient Survey
The Rheumatoid Patient Foundation (RPF) exists to serve people with RA. Although there have been numerous organizations existing over the years for other rheumatological conditions (such as Sjogren’s syndrome or Fibromyalgia syndrome) and other autoimmune arthritis-type diseases (such as Lupus or Ankylosing Spondylitis), the Rheumatoid...Continue reading 26 Comments »
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Will the Next Frontier Be Rituxan?
I spent a couple of hours tonight searching for a Rituxan blog post I wrote a couple of weeks ago. Finally, I figured out there’s only one way to make it come out of hiding – write it over again. (Murphy always lurks, but we can outsmart him.)
Working my way toward Rituxan
You know that life...Continue reading 51 Comments »
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