Rheumatoid Arthritis Warrior | Page 31 of 68 | Information & encouragement to fight RA

RA is Tricksy: Wandering by The Two Towers

Kelly Young 28 Comments , ,
I hope you enjoy this little guest post from Dana. Her imagination wanders in a way that’s similar to some other fun trips we’ve taken with Goldilocks, the Princess and the Pea, and others. Please visit Dana’s blog; she’s been a great ally to our effort here for a long time and significant voice of...Continue reading      28 Comments » Read more

RA Reality Versus “The Lie”

Kelly Young 116 Comments , ,
When everything looks normal but it’s all wrong Countless times I’ve said that I would gladly be wrong about RA. I’d gladly be delusional instead of this sick. I often say “If only I actually were crazy. Then, I could take medication and at least believe I felt better.” Of course it’s a facetious remark, but...Continue reading      116 Comments » Read more
Cocoa fire truck - strange RA symptoms post

Do You Have Strange RA Symptoms?

Kelly Young 329 Comments ,
What are the strangest symptoms you’ve had since the RA onset that you think are related to the rheumatoid arthritis / disease? For some, strange RA symptoms like fevers, weight loss, and laryngitis turn out to be perfectly accepted historical symptoms of RA that patients just aren’t told about. However, sometimes people ask about unusual symptoms that I...Continue reading      329 Comments » Read more

Santa, Bring Her a Rheumatologist Please

Kelly Young 57 Comments ,
Wanted: good rheumatologists Sonya’s tweet brought me a smile. So much truth in so few words. Those of us with rheum diseases like RA need a good doctor the way most people need a reliable car mechanic. We might crash and burn without it. This is short for two reasons: 1) I don’t have a long list of...Continue reading      57 Comments » Read more

Inflammation and Thomas the Tank Engine

Kelly Young 37 Comments , ,
Today, my Roo is six years old. Saturday, I went shopping with Mary Khris to buy supplies to create a little Thomas the Tank Engine party. Since I can’t draw characters with icing any more, we look for ways things can be used creatively. I found some lightweight rubber train engines (actually bath toys!) that we...Continue reading      37 Comments » Read more

I Want My Life Back

Kelly Young 65 Comments , ,
RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want to...Continue reading      65 Comments » Read more

A Rheum Full of Contradictions

Kelly Young 29 Comments ,
1) There’s “remission” when there’s no remission. A newly published study says more pain is seen with an older conception of Rheumatoid Arthritis remission than with newer more stringent remission criteria. “Disease remission has become a feasible goal for most Rheumatoid Arthritis (RA) patients; however, patient-reported symptoms, such as pain, may persist despite remission.” Remission is...Continue reading      29 Comments » Read more

ACR REF Rheum Research & Courage That Won’t Back Down

Kelly Young 11 Comments , ,
“Hey baby, there ain’t no easy way out… I won’t back down.” We just got back from Miami from the ACR Research Education Foundation (REF) RA Investigators’ Meeting where important research topics were discussed such as Lung disease of RA – our 2nd leading cause of death Rheumatoid heart disease research Porphyromonas gingivalis and the pathogenesis of Rheumatoid Arthritis On...Continue reading      11 Comments » Read more

ACR’s Research Education Foundation Investigators’ Meeting

Kelly Young 4 Comments , ,
REF RA researchers focus on progress The American College of Rheumatology’s Research Education Foundation has gathered over 50 researchers from across the U.S. to present their data from the Within Our Reach RA studies. They’ll be brainstorming ways to collaborate in finding a cure for RA. The meeting will feature a wide range of RA research topics that...Continue reading      4 Comments » Read more

The Now-I-Understand Abbott Suit for Rheumatoid Arthritis

Kelly Young 33 Comments , ,
What’s the one thing I’ve said more than anything else over the last five years? “No one understands.” I sigh it quietly. I mutter it under my breath. I exclaim it loudly in frustration. I struggle to say it through tears. But I don’t think I’ve ever blogged it. Who doesn’t understand? The professional people I associate with...Continue reading      33 Comments » Read more
Death by Rheumatoid Arthritis interview

Author Inspired by Cause of Death Rheumatoid Arthritis

Kelly Young 8 Comments , ,
Shocked to read Cause of Death Rheumatoid Arthritis (UPDATED) I’m so lucky to live about an hour from Disney World. No, I don’t go park hopping! But, we can go meet people who come to Orlando for business or pleasure. Recently, Katie Beth and I drove over to meet with Carla Jones, author of Death by Rheumatoid...Continue reading      8 Comments » Read more

2 Reasons Monitoring Rheumatoid Arthritis Matters

Kelly Young 17 Comments , ,
This is the second in a short series of posts in honor of the blog’s 2nd birthday. We are looking at some significant topics that have surfaced over the last two years. I’m calling these “frying pan posts” since these issues are critical enough to patients to speak rather bluntly. Why monitor Rheumatoid Arthritis? You have your...Continue reading      17 Comments » Read more
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