Death by Rheumatoid Arthritis book (UPDATED 2016)
Daughter turns tragic death by Rheumatoid Arthritis to mission of hope
Carla’s book caught my attention several years ago and we quickly became friends. Carla has done a remarkable thing by using her personal tragedy to benefit others. I hope you enjoy this review of her book and purchase a copy of...Continue reading 50 Comments »
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Two Types of Progress & Shared Responsibility
Whoever decided that RA “progressing” means it gets worse probably didn’t have RA.
RA progress is always bad
I have a new symptom in both my hands today. When I try to hold onto something firmly, my hands cramp in pain and contort to an odd position. And I drop the whatever. This morning, it was an...Continue reading 20 Comments »
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Encouragement: with a Little Help from My Friends
Don’t you want me to help you with that? No. I want to be able to do it myself.
I can do that for you. I know you can, I wish I could.
Is there anything I can do? No, I want to feel like I can do something.
Do you have any problem asking for help? Or...Continue reading 23 Comments »
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Airport, Storms, and DMV: April Fool’s!
April Fool’s Day held a surprise party by coming one day early this year for Katie Beth and me.
We both fell asleep on our laptops last night without getting any work done. This morning, I see that before she fell asleep, she posted her Facebook status: “This day was UNREAL. Somebody wake me up. I am...Continue reading 15 Comments »
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New Reading of the Nuclear Bone Scan: Credibility is Everything
Today, I got a gift. A friend obtained a second reading of my nuclear bone scan. The 4-page report was sent to me in a PDF as an authorized second opinion.
The radiologist did not agree with the findings of the first report and the differences were not subtle. Instead of quoting it at length, I’ve...Continue reading 48 Comments »
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Do Rheumatoid Arthritis Drugs Cause Cancer?
Hopefully not.
People often state that drugs used to treat Rheumatoid Arthritis cause cancer as an accepted fact. They say they that shortening the length of life is worth the quality of life they gain from treatment. Personally, I’m tremendously interested in both.
Rheumatoid Arthritis has long been known to increase risk of cancer, especially lymphoma. We...Continue reading 24 Comments »
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Men and Rheumatoid Arthritis: Video PSA
Why a video about men and Rheumatoid Arthritis?
This video PSA (public service announcement) is something that I have wanted to finish for months because the story about men and Rheumatoid Arthritis has not been told. I also believe that telling the story of men and RA will help everyone who lives with RA by creating...Continue reading 46 Comments »
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My Doctor Fired Me
Several times I’ve had to be dragged kicking and screaming to medical treatment. No one else did it for me; so I had to learn to drag myself. It was a long and harsh journey, but I determined to be an empowered patient and no longer an ostrich hoping that ignoring problems makes them go...Continue reading 152 Comments »
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The Tug of War of RA Awareness: Privacy of Pain & Agony of Disclosure
This week’s post on Rosalind Russell raised some important questions. A comment by Ronda was highly critical of Russell for the way that she hid from the public the severity of her suffering due to Rheumatoid Arthritis. How can we raise awareness if we hide how bad it is? It’s a good question.
Rosalind Russell was...Continue reading 60 Comments »
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Reliable Sources: Orencia Cough Side Effect & Notions of e-Patients
If I cited a percentage of patients who get a cough from Orencia, then I’d quote a source – probably a clinical trial. However, if I merely say, as a patient, that Orencia gave me a cough, then that is a firsthand experience and that’s another type of credible source for other patients.
Diabetes blogger Kelly...Continue reading 62 Comments »
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Rosalind Russell: Rheumatoid Arthritis’ Most Glamorous Celebrity
Rosalind Russell (Roz) may have been the most glamorous and famous woman to have Rheumatoid Arthritis. However, she shared three qualities with many others living with RA: She was determined, hopeful, and private.
One of the most illustrious celebrities to live with Rheumatoid Arthritis was Rosalind Russell.
Rosalind Russell (1907-1976) had an exceptional life, performing on Broadway...Continue reading 22 Comments »
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Easier Said Than Done: Simple Things That Seem Impossible
Does anyone ever make a suggestion that they think sounds so easy? The idea is simple, but the reality is more complicated. Sometimes even I imagine it will be easy, until it’s time to do it.
Things people suggest for me to do that I find difficult. My brutally honest list.
Call your insurance company. I sit...Continue reading 68 Comments »
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