Hearings receive testimony on RA & other autoimmune diseases
Hearings were held yesterday, March 16th, about adding some autoimmune diseases to a list of conditions deemed disabling enough to be given specific consideration and hopefully quicker Social Security Disability approval.
The list, called the Compassionate Allowances List currently includes 88 conditions. This week’s hearing was the 7th...Continue reading 26 Comments »
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Alice Goes to Jacksonville: Mayo Clinic Center for Social Media
What’s the Mayo Clinic Social Media Health Network?
I joked a lot about Alice in Wonderland this week as Katie Beth and I traveled to Jacksonville for the first meeting of the Advisory Board for the Mayo Clinic Center for Social Media (MCCSM). It was combined with a conference for members of Mayo Clinic’s new Social...Continue reading 11 Comments »
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The Isolation of RA Pain: Short Poem Video
Most people with RA talk about how difficult it is to explain RA pain to others. It’s frustrating to be repeatedly told that it isn’t or shouldn’t be so bad. Just today, a woman I met couldn’t wait to tell me about her friend with RA who’s able to do so much more than I...Continue reading 12 Comments »
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The Next Three Days: a Movie Review with a Twist
The movie: The Next Three Days
Last night we watched the movie The Next Three Days starring Russell Crowe (John) & Elizabeth Banks (Lara) about a professional woman with diabetes who is accused of murder. Lara loses every appeal and her husband John becomes desperate while watching his wife and their young son Luke struggle to...Continue reading 5 Comments »
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10 Funny Things I Tell Myself about Living with RA
Funny things I tell myself about RA (UPDATED)
Living with RA can make you feel like an alien since you’re the only one around you enduring what you do. Often, I talk to myself while trying to get through the day. I try to be encouraging, but sometimes the funny things I tell myself are just silly.
1....Continue reading 113 Comments »
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Health.com Replies to RA Warrior
An editor at Health.com sent this message to me and my readers as a response to my post Three Things Not to Say about Plagiarism to a Blogger. She did not claim to speak for the writer. Please see my response below.
I’m the Health.com editor who worked on this story, and I just got off...Continue reading 31 Comments »
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Tofacitinib / CP-690550 aka Tasocitinib Succeeds in Pfizer’s 2nd Phase 3 Trial
A new name and new milestone for tofacitinib
Pfizer announced Friday that CP-690550 tofacitinib (formerly tasocitinib) met its goals in its second phase three clinical trial for moderate to severe Rheumatoid Arthritis. Tofacitinib is a JAK 3 inhibitor, an oral treatment for RA with a different approach than current Biologic RA treatments.
According to Pfizer, over 4,000...Continue reading 14 Comments »
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Susceptibility for Rheumatoid Arthritis Acquired via Microchimerism?
Women with RA ask why it’s so common to acquire severe Rheumatoid Arthritis after pregnancy the way I did. I don’t blame my son since my symptoms went back years, but these studies are fascinating…
Rheumatoid Arthritis HLA shared epitope may be acquired in pregnancy
The current issue of Arthritis and Rheumatism brings a study which concludes...Continue reading 24 Comments »
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Three Things Not to Say about Plagiarism to a Blogger
1) Oh, that’s just flattery, they like your writing.
2) Well, at least the message is getting out.
3) Don’t say anything because that will make you look bad.
All of these have been said to me. And I’m not buying it.
Click image to enlarge.
My regular followers know that for I’ve been typing away about Rheumatoid Arthritis on...Continue reading 55 Comments »
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Predicting Rheumatoid Arthritis
Two new studies indicate that predicting Rheumatoid Arthritis disease activity might be within the realm of possibility. I think Rheumatoid Arthritis lives secretly within the bodies of many victims for years, like a haunting. Invisible activity in a person's cells precedes diagnosis and many patients’ onset stories tell of years of suspicious symptoms.
New studies give hope of...Continue reading 27 Comments »
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Resistance to Rheumatology Treatment: Blog Carnival #3
Would anyone oppose rheumatological treatment?
A recent column in a California newspaper prompted a response from rheumatology patients and parents of juvenile rheumatology patients. There are 61 comments already on my post Don’t Take Those Meds for RA or Juvenile Arthritis, plus a handful of comments on the original article. Danielle, a mom who writes about...Continue reading 9 Comments »
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Fighting Rheumatoid Arthritis Depression
Often, I get letters from Rheumatoid Arthritis patients struggling with depression. I always encourage them to consider the options of counseling or medication since there’s no way to know how serious their depression may be. It’s heartbreaking. We hope that most of the time we can avoid serious depression, but patients with Rheumatoid Arthritis or...Continue reading 42 Comments »
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