An RA clinical trial coordinator tests my talents
I’ve always had some special talents. Like …making things look easy …making strangers smile ...keeping secrets.
More superpowers? Sometimes, I can make everyone mad at once…with a clear conscience …and everyone’s best interest at heart. It’s not easy, but I manage.
My most special skill? Just look at the genius...Continue reading 30 Comments »
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Evidence and Truth: WTF (Where’s the Fact?)
Inconsistency bothers me. When I’m interviewed, I answer that I wanted to build this website because there is so much “wrong” information about Rheumatoid Arthritis. Too many common generalizations are actually incorrect. Truth about RA can be hard to find. Maybe this is an explanation in part.
I read something amazing today on The Scientist: Evidence:...Continue reading 24 Comments »
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What’s Your Advice for Shoes for Rheumatoid Arthritis Feet?
Shoes for feet that are old overnight thanks to Rheumatoid Arthritis?
For years, my feet were a big part of my Palindromic Rheumatism or (palindromic Rheumatoid Arthritis). I’d wake up some mornings and it would feel like I’d walked on those feet all day. It was always like I was finishing a marathon that had never...Continue reading 191 Comments »
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You’re Not Lost and Michael Bublé Video
“You are not alone.”
I don’t think I can put into words what I want to say. Fortunately, this song Lost sung by Michael Bublé already did.
God is good and things come at the right time, like this song that I listened to all weekend. And like the way “the light comes pouring through many of...Continue reading 21 Comments »
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All I Want for Christmas Is My CRP
I thought I’d finally gotten out of Rheumatoid Arthritis / CRP purgatory, but I was wrong.
I got an early Christmas present after I got back from the ACR meeting, I got a certified letter from my rheum doc. It said I couldn’t have any more Actemra infusions because my insurance company would not pay properly.
It...Continue reading 35 Comments »
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Rheumatoid Arthritis Research Using Marmosets as Subjects
Why a new preclinical model for Rheumatoid Arthritis research?
Based upon “increasing knowledge of the pathogenesis of Rheumatoid Arthritis (RA),” more possible treatments are being developed. However animal models are required to evaluate the safety, effectiveness, and toxicity of many new potential RA treatments.
Rodent populations with RA-like disease are created by something called collagen-induced arthritis or...Continue reading 4 Comments »
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20 Rheumatoid Arthritis Patient Facts I learned from RA Patients
Why call them Rheumatoid Arthritis patient facts?
There were many things that didn’t add up as I started to read so-called Rheumatoid Arthritis facts. What I read was not what I experienced. The more I heard from other RA patients, the longer was the list of things I wondered about. I can’t believe I’m finally saying...Continue reading 121 Comments »
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The Rheumatoid Arthritis Commercial Saga
Rheumatoid Arthritis commercials make me sigh
I have some pretty weird reactions to the Rheumatoid Arthritis commercials I see. My family is subjected to my peculiar breathing and strange facial expressions. One of my first blogs was about the “baloney” most of the Rheumatoid Arthritis commercials were serving up last year.
It’s kind of obvious “they” (pharmaceutical...Continue reading 23 Comments »
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Rheumatology Blog Carnival #1: Causes of Rheum Un-Awareness
Welcome to the very first rheum carnival, a blog carnival on diseases of rheumatology such as Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis, and Juvenile Arthritis.
Will celebrity rescue rheumatology with awareness?
A couple of weeks ago, I wrote a post asking how we got to this place of a terrible lack of awareness where a celebrity...Continue reading 12 Comments »
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New Studies Examine Predictors of Rheumatoid (Arthritis) Heart Disease
Predictors of Heart Disease in Rheumatoid Arthritis
New Studies presented at ACR 2010 (the American College of Rheumatology’s annual meeting) examined of the heart disease of Rheumatoid Arthritis. One study called Longitudinal Predictors of Progression of Subclinical Carotid Atherosclerosis in Rheumatoid Arthritis looked for factors which predict heart disease in RA patients. “Coronary and extra-coronary atherosclerosis...Continue reading 12 Comments »
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Joint Pain Relief: Some Fun Tactics & Dates to Save
There are some special events you won’t want to miss coming up on the blog! Meanwhile, it has been a blockbuster week here and I hope you’ll look back and check out any posts you might have missed. Lots of info from the American College of Rheumatology (ACR) meeting and a couple of new video...Continue reading 1 Comment »
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Weight of Patient Reported Outcome Measures on Diagnosis & Treatment of RA
Rheumatoid Arthritis Is the Only Major Disease in Which the Patient Largely Informs the Doctor
A funny thing happened while we were at a poster session last week at ACR. The Georgia World Congress Center is like three 4-story shopping malls with a couple of theaters and secondary schools thrown in – it’s big. So, we...Continue reading 19 Comments »
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