What’s this WEGO Health webinar?
I’ve been invited to a special event and I’d like to invite you to come along with me! Next Monday, November 22nd at 8pm EST, WEGO Health will hold a webinar (online seminar) called “Continuing Health Activism with Chronic Pain.” The webinar is organized and moderated by Amanda Dolan at WEGO...Continue reading 7 Comments »
Read more
Predictors of Pain in DAS28 Remission
RA pain with so-called clinical remission is common
When I tried to find a new rheumatologist in the spring of 2009, I learned all about clinical remission. The Good Doctors Treat Patients video tells the story of 1 of 3 doctors I saw at the time. Like the nursery rhyme, it was “Same song, second verse,...Continue reading 19 Comments »
Read more
American College of Rheumatology Annual Meeting 2010
What’s the American College of Rheumatology?
The American College of Rheumatology (ACR) is an organization of doctors wanting to learn the latest research in rheumatology or who contribute to that research. The better rheumatologists around the world attend the ACR’s annual Scientific Meeting or are members of ACR. (Because of expense and busy practice, many members attend...Continue reading 29 Comments »
Read more
Video: Thoughts from American College of Rheumatology (ACR) 2010
Patient with a Press Pass!
Wow! What an incredible week it was!
After I post this greeting, I'll be packing up to get to the airport. I promise I'll tell you lots more as quickly as I can type it out. I don't know how I'll decide what to write about first!
Right now, I'm still marveling at...Continue reading 36 Comments »
Read more
American College of Rheumatology’s “I Need My Rheumatologist Call-in Day”
American College of Rheumatology Organizes a Unique Patient-Physician Call-In Day
This week, I’m in Atlanta attending the American College of Rheumatology’s annual scientific sessions. In the coming days, I’ll report on what I’m learning here about what new treatments are coming and new research on rheumatological diseases. However, today, I’m passing on a message that the...Continue reading 12 Comments »
Read more
RA Is Not “arthritis”: a PSA on Rheumatoid Arthritis
Not syrupy sweet, but a Public Service Announcement on Rheumatoid Arthritis
This video was not created to encourage patients, so it’s not all warm and fuzzy. Rather, this video is a short public service announcement with a distinct purpose: To tell the public that Rheumatoid Arthritis is a disease that is distinct from “arthritis” (what’s now...Continue reading 83 Comments »
Read more
General Practitioners Need Basic Rheumatoid Arthritis Information
Basic Rheumatoid Arthritis information is lacking in too many GP’s
Murphy lurks – looking for a party to crash. (I have ways of dealing with him – read more here.) So, of course my good GP was on extended leave for the last few weeks while I’ve been trying to get every little medical duck in...Continue reading 68 Comments »
Read more
Where in the world is Kelly Young?
My blog today is a list. I’ll type as fast as I can – how fast can you read? Haha. It just that it feels like I’m in some kind of a time warp. It seems like the last year was month long. And the last month was 3 days. Will the world please slow...Continue reading 21 Comments »
Read more
New Greece Shoe Policy for Diabetics Favors Amputation
When she picked me up from the airport recently, Katie Beth shared a shocking story she’d just heard on the news about diabetes patients in Greece receiving foot amputations instead of special shoes.
Here’s how the diabetes shoe-story was reported in Keep Talking Greece:
“If this isn’t an incredible story, I don’t know what it is!...Continue reading 25 Comments »
Read more
Win a Hoodie in the Newsletter Contest!
NOTE: THIS CONTEST ENDED. CLICK HERE TO CHECK OUT THE NEW WARRIOR STORE!
Hang in there: there’s a point to this contest!
Last spring, RA Warrior held a contest which promoted the idea that we are warriors fighting a disease. I designed an avatar modeled after Wonder Woman to use to enter the drawing. We had hundreds...Continue reading 9 Comments »
Read more
Rheumatoid Arthritis Genetic Discoveries
I got a link to a short interview called GeneTalk with 23andMe: Rheumatoid Arthritis with a key researcher on RA and genetics. Even though it was just an overview, the topics were fascinating. Free sign up may be required to read the full article, but I’ll quote it directly here.
Are there genes that bring a...Continue reading 24 Comments »
Read more
Do Doctors Surprise Patients with Surgical Procedures?
Some surprises are routine
Last month, I read a blog entitled “Patient-Centered Care Should Minimize Post-Surgical Surprises” by Jessie Gruman. Her article haunted me; I contemplated how I might guess what the right questions are to ask to avoid medical surprises. Actually, it seemed from her post that it might not matter too much whether I...Continue reading 34 Comments »
Read more