Treated like you’re fine when you’re not
A comment this week by Lisa sums up one of the most important reasons we need awareness for Rheumatoid Disease, and one of the hardest to explain to others.
“RD awareness would mean that I wouldn’t be treated like I am fine when I am not. It would mean that...Continue reading 25 Comments »
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Genetics & Rheumatoid Disease: More Complicated Than Cancer?
No one wants complicated answers, of course. But some answers are complicated, with multiple layers or causes. Like Rheumatoid Disease and childhood hearing loss. Instead of differing experiences of patients being suspect, they should be valuable clues to answers we all seek.
Answers and more questions
The past few months have been a slow process of diagnosis...Continue reading 10 Comments »
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Vicks Vaporub Cure for a Disease That’s In Your Head Anyway
I got something free with my Chinese food the other night when I went to pick up my egg rolls: advice.
It was the end of a long, hard, day. I’d pushed myself hard to be moving at all with harsh stiffness and sharp pain in over a dozen joints. We’d been out that day because...Continue reading 49 Comments »
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Rheumatoid Symptoms Persist Despite Treatment: a Study in Juveniles (JRA / JIA)
In spite of treatment advances including biologics, children affected by Rheumatoid Disease still experience pain, stiffness, and fatigue that impacts their ability to function. The disease may not be as “controlled” as many doctors presume. This may not be news to you as a patient or caregiver, but as these researchers point out, it needs...Continue reading 5 Comments »
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Could Divorce Be One More Pain from Rheumatoid Disease?
I’ve received several emails and messages from people living with Rheumatoid Disease (PRD) who have been divorced by a spouse, sometimes in part due to ways Rheumatoid Arthritis / Disease affects them. It’s sad to hear from a woman who can’t figure out how she’ll provide for her kids, or a mother whose kids were...Continue reading 27 Comments »
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Rheumatoid Arthritis Pain at Night
Rest & Rheumatoid Arthritis / Disease have an illogical relationship
Rheumatoid Arthritis pain at night is ironic. Rest is one of the most crucial weapons in fighting Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD). Adequate rest is an important factor for most people with Rheumatoid Disease (PRD) as they push themselves to continue doing as much...Continue reading 38 Comments »
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What Would Rheumatoid Awareness Mean to You?
What difference do you think it would make if it Rheumatoid Disease were recognized for what it is by everyone – the general public, media and marketers, pharmaceutical companies, U.S. National Institutes of Health, the Centers for Disease Control and Prevention, the American College of Rheumatology, all healthcare professionals, your neighbors and your family…?
Rheumatoid Awareness...Continue reading 63 Comments »
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Juggling Life and a Chronic Disease Like Rheumatoid
Usually when someone hears I have five children, they ask, “How?!” My answer is always the same: “One at a time.” They span about 15 years – it’s not like there were five toddlers at once. Actually, there was never more than one in diapers at a time – so my mom had it much...Continue reading 25 Comments »
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Hints of an Immunity Fingerprint: Bee Stings, Peanuts, and Colds
What if each immune system is unique, so none respond exactly the same?
Almost two years ago I told you about a phrase I’d coined, the immune fingerprint, to describe the unique way each person’s immune system responds to a similar or identical stimulus. I hope you’ll read that original post explaining it’s only logical that...Continue reading 17 Comments »
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20 Essential Medication Safety Tips
Essential medication safety tips (UPDATED)
For those living with a chronic disease, safe medication storage and use is more than following directions on an occasional antibiotic or treatment for an acute illness. Both the types of medications and the number of different medications present additional challenges and put people at greater risk for adverse drug events...Continue reading 22 Comments »
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Together, We’re Neither Alone Nor Powerless
Friendship is born at that moment when one person says to another: "What? You too? I thought I was the only one." ~CS Lewis
Most of the time, it seems we’re pretty powerless to change things. As long as we’re alone, it might stay that way. But when we find others like us, the whole...Continue reading 5 Comments »
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Five Keys to a Thankful Heart
Stirring a thankful heart
There are always obstacles to thankfulness, and living with a painful chronic disease is certainly an obvious one. This week confronted once again things I’m no longer able to do for a holiday, I reflected on the what stirs a thankful heart and things much more important than color-coordinated napkins and a lovely...Continue reading 15 Comments »
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