Communicating about RA Archives | Rheumatoid Arthritis Warrior

Arthritis Prescreening Like Minority Report

February 28, 2017May 13, 2018 Kelly Young 11 Comments Communicating about RA, Preclinical RA, Research on Rheumatoid Arthritis

Arthritis prescreening is like Minority Report with Tom Cruise …Or is it? When I read Dr. Scott’s creative newspaper column, comparing rheumatoid arthritis prescreening to Minority Report, the sci-fi flick about punishing crimes before they happen, I didn’t know where to begin. I love movie analogies – there are a bunch of them on this blog. But Dr. Scott...Continue reading 11 Comments » Read more

5 RA Facts Everyone Needs to Know

January 23, 2017May 13, 2018 Kelly Young 16 Comments Communicating about RA, Physician-patient discordance / disagreement, Unrelenting RA - Persistent disease

Driven to uncover RA facts My search for facts about Rheumatoid Arthritis (RA) led me to build this website. So many questions. So much misinformation, blame, and confusion out there. It all contributed to my passion for uncovering RA facts and making them clear. I didn’t feel ready when I started writing this blog in 2009. There...Continue reading 16 Comments » Read more

Remaining Pain in Rheumatoid Arthritis

October 12, 2016May 13, 2018 Kelly Young 11 Comments Communicating about RA, Research on Rheumatoid Arthritis, Rheumatoid arthritis pain

Studying Remaining Pain In part one of this series on the role of pain in rheumatoid arthritis / disease, we learned that “Remaining pain” is a term for joint pain that patients experience despite treatment with DMARDs like methotrexate or Enbrel. Today we discuss a large study about Remaining Pain in rheumatoid arthritis (RA) / rheumatoid disease...Continue reading 11 Comments » Read more

Prednisone Dosage Case Study

February 25, 2016May 13, 2018 Kelly Young 39 Comments Communicating about RA, Prednisone and Rheumatoid Arthritis

Prednisone dosage varies Last time we discussed the varying positive and negative effects of prednisone, and some strategies for finding a workable dose. Prednisone dosage varies significantly, from 5mg to 60mg, even for similar conditions. One reason for that is the varying response in patients. Doses vary because effectiveness and side effects vary significantly. I know...Continue reading 39 Comments » Read more

After Fear and Failure, Freedom

December 2, 2015May 14, 2018 Kelly Young 7 Comments Communicating about RA, Living with chronic illness like RA

Last month I wrote about a challenging personal situation, and I want to share an update with you, and I’ve spent a lot of time thinking about it. There has been another long court day and I’ve seen a lot of legal wrangling. My Uncle Sam posts updates on his GoFundMe page (for our legal...Continue reading 7 Comments » Read more

Hints of an Immunity Fingerprint: Bee Stings, Peanuts, and Colds

December 6, 2013May 14, 2018 Kelly Young 17 Comments Communicating about RA, Genetics and RA

What if each immune system is unique, so none respond exactly the same? Almost two years ago I told you about a phrase I’d coined, the immune fingerprint, to describe the unique way each person’s immune system responds to a similar or identical stimulus. I hope you’ll read that original post explaining it’s only logical that...Continue reading 17 Comments » Read more

10 Misconceptions About Chronic Disease Many People Believe

November 8, 2013May 14, 2018 Kelly Young 55 Comments Communicating about RA, Invisible Illness, Rheumatoid Arthritis awareness

You can’t understand illness by just looking at a person Very soon after being diagnosed with RA, I learned that most people have beliefs about chronic illness that are hard to overcome. When one neighbor, friend, and family member after another dismissed me, I did the same thing most people with Rheumatoid Disease (PRD) do: I...Continue reading 55 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

November 4, 2013May 14, 2018 Kelly Young 26 Comments American College of Rheumatology, Communicating about RA, Patient advocacy, Rheumatoid Patient Foundation

Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading 26 Comments » Read more

Steps Toward Understanding Rheumatoid Disease

September 30, 2013May 14, 2018 Kelly Young 12 Comments Communicating about RA, Research on Rheumatoid Arthritis

2 Big Announcements Last month in What is Rheumatoid Arthritis (RA) / Rheumatoid Disease (RD)?, we asked what this disease IS, with 10 things it doesn’t make sense if doctors don’t know. When we truly know what RD is, we can diagnosis it early, treat it successfully, and cure it! We’re taking steps to support that goal. 1....Continue reading 12 Comments » Read more

rheumatoid disease of the heart by Bhatia

Saying Rheumatoid Disease, Not Arthritis: It’s Not Just Me

September 4, 2013May 14, 2018 Kelly Young 44 Comments Communicating about RA, Rheumatoid Disease (RD) better name for RA

Twenty months ago, I explained why I’d become convinced that the “name” of Rheumatoid Arthritis must be changed. The more I’ve learned over the past few years, the more I could not deny that fact. Soon after that, I decided to write a little e-book examining the ways Rheumatoid Disease affects the body outside of the...Continue reading 44 Comments » Read more

10 Common Rheumatoid Arthritis Myths

<< Go to more FACTS and INFO on Rheumatoid Arthritis Click here to print or save 10 Common RA Myths. The following Rheumatoid Arthritis myths are commonly repeated as facts. Repeating such myths has unfortunate consequences for people living with Rheumatoid Disease and contributes to inadequate medical care, scanty disease research, and insufficient vocational accommodations. While some...Continue reading Comments Off Read more

A World Where No One Suffers from Rheumatoid Disease

December 30, 2012May 14, 2018 Kelly Young 7 Comments Communicating about RA, Rheumatoid Patient Foundation

When you’re making any charitable donations, please remember the Rheumatoid Patient Foundation (RPF) is each of us helping all of us. The RPF Vision: A world where no one suffers from Rheumatoid disease. Finally we have an organization with the specific purpose of improving the lives of people with Rheumatoid disease. Much has been accomplished quickly over...Continue reading 7 Comments » Read more

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