Communicating about RA Archives | Page 2 of 4 | Rheumatoid Arthritis Warrior

Communicating about RA

Communicating about RA (rheumatoid arthritis) is a critical aspect of living with the disease in the medical realm, with employment, and personal situations

Twelve Days of Christmas with Rheumatoid Disease

Kelly Young 12 Comments ,
Twelve Days of Christmas & 12 annoying gifts from Rheumatoid disease I had to take pictures when I found this wrapping paper in a store to show my son Tiger who loves rap music. The words printed on the “Rapping Paper” are from Rapper’s Delight by Sugarhill Gang, the first hip-hop single to become a Top...Continue reading      12 Comments » Read more
20 Replies to Things Not to Say to an RA Patient

20 Replies to Things Not to Say to an RA Patient

Kelly Young 113 Comments , ,
Replies to things not to say to an RA patient (UPDATED) Every day, I hear from many people living with Rheumatoid Disease. This post about things not to say to an RA patient was a response to a request from a dear reader about one of the most popular posts on the blog, 20 Things Not...Continue reading      113 Comments » Read more

Lipstick & Luck: Feeling Fabulous with Rheumatoid Autoimmune Disease

Kelly Young 47 Comments , ,
If we try, will we feel fabulous with Rheumatoid Arthritis? Feeling and looking fabulous with RA sells well, but how much can lipstick help? Most people living with Rheumatoid Arthritis have felt the sting of someone suggesting we don’t need to be as sick if we would only try _____. Hearing this can seem harsh, especially...Continue reading      47 Comments » Read more

When Rheumatology Is Sexy

Kelly Young 16 Comments ,
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.” Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of modern...Continue reading      16 Comments » Read more

Is That Your Final Answer? …or Replying to Misconceptions

Kelly Young 98 Comments , ,
A day filled with misconceptions about Rheumatoid Arthritis / Disease I wrote this post weeks ago when it had just happened. I imagined responses that to misconceptions about rheumatoid arthritis are usually held back in polite conversation. Am I the only one who does that? What if it were a game show… It was a day filled...Continue reading      98 Comments » Read more

By the Way, I Have RA

Kelly Young 62 Comments , ,
I have written about the difficulty of disclosing about RA, especially at events like a Mayo Clinic Center Social Media conference. But we haven’t talked much about the other side: When we explain about RA, do people understand? Not so much. In a recent example, I went through three rounds of explanations about why I could...Continue reading      62 Comments » Read more

Living with (RA) Rheum Disease Is Already Multitasking

Kelly Young 18 Comments , ,
Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing to...Continue reading      18 Comments » Read more

Can We Find Similarities with Rheumatoid Arthritis?

Kelly Young 53 Comments ,
Very often with Rheumatoid Arthritis, we emphasize our differences. It helps the newly diagnosed to get over the shock of living with a new symptom every day. It helps explain a fickle disease that is quite unreasonable and undemocratic in its attacks. But what about our similarities? Common threads and similarities in Rheumatoid Arthritis As Bob...Continue reading      53 Comments » Read more

Will Venus Williams’ Sjögren’s Syndrome Help RA?

Kelly Young 29 Comments , ,
We had an interesting conversation on Facebook yesterday about the Venus Williams' Sjögren’s syndrome diagnosis (actually 5 of them by day’s end). Some were wondering whether the diagnosis of another famous person with an autoimmune (AI) disease will help bring awareness for RA. Probably not. Why not? Celebrities have been diagnosed with RA (and PsA) and...Continue reading      29 Comments » Read more

“Fine Thanks, and You?” and 5 More Stupid Things I Say

Kelly Young 68 Comments , ,
1) “Do you want your rubber duck?” The favorite rubber duck has a squeaker which lets water in. Squeezing the water out of that duck brings severe hand pain. Not quite as much as the softer Thomas squeaker toys. (And water also hides in the duck so it has to be squeezed for two days.) 2) “I...Continue reading      68 Comments » Read more

Patient’s Rebuttal to RA Pain Catastrophizing Claims

Kelly Young 44 Comments , , ,
Part of me would like to back down. But this pain won’t let me. Is it ironic that I encounter the most cruel RA pain in years at the same time I encounter this argument again about RA pain, catastrophizing, and depression? Relating pain, catastrophizing, and depression to RA Ironically, an article called “Pain, catastrophizing, and...Continue reading      44 Comments » Read more
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