Communicating about RA Archives | Page 4 of 4 | Rheumatoid Arthritis Warrior

The Problem with Rheumatoid Arthritis Information: Why is RA so hard to study and cure?

December 28, 2009May 17, 2018 Kelly Young 12 Comments Communicating about RA, Research on Rheumatoid Arthritis, Rheumatoid arthritis remission, Unrelenting RA - Persistent disease

I guess YouTube is not the best place for RA information There sure are a lot of YouTube videos with RA cures. I watched several this weekend, getting distracted while doing research. Several thoughts competed in my mind: “No wonder _________ (fill in the blank with whoever’s name) thinks I’m crazy for taking RA medicines if she’s...Continue reading 12 Comments » Read more

20 Things Not to Say to a Rheumatoid Arthritis Patient

November 30, 2009May 17, 2018 Kelly Young 320 Comments Communicating about RA, Humor with RA

A list of things not to say to a Rheumatoid Arthritis patient Another kind of Rheumatoid Arthritis Treatment: how people treat RA... Imagine treating a broken arm with a band-aid. How would it be if a heart attack were treated like the flu? What about telling someone with breast cancer to just go on a diet? Crazy. However,...Continue reading 320 Comments » Read more

5 Ways We Can Spread Awareness of Rheumatoid Arthritis

September 29, 2009May 17, 2018 Kelly Young 11 Comments Communicating about RA, Rheumatoid Arthritis awareness, Transparency & living with RA

What is Rheumatoid Arthritis? “Will people ever understand that the autoimmune disease Rheumatoid Arthritis is not the same thing as Gramma’s arthritis?” I have read numerous remarks recently that sound like this. They say: “Impossible. It is impossible for people without RA to understand what RA actually is.” It can be discouraging. I understand the exasperation. However, building a...Continue reading 11 Comments » Read more

Woman’s Day Reply to Rheumatoid Arthritis Comments

August 28, 2009May 17, 2018 Kelly Young 17 Comments Communicating about RA, Invisible Illness, Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem

Many have been asking about me Woman’s Day magazine’s RA article... Here’s what happened. On July 15, I gave my sincere response to a one page article in Woman’s Day on Rheumatoid Arthritis. Many of you responded to the online version of that same article with comments that were intelligent and straightforward. Some of those comments were...Continue reading 17 Comments » Read more

If You Do Not Have Rheumatoid Arthritis, Please Read This

July 13, 2009May 17, 2018 Kelly Young 38 Comments Communicating about RA, Rheumatoid Arthritis awareness, Transparency & living with RA

What I would tell those who are not living with Rheumatoid Arthritis A Memo to Non-RA'ers: My mailbox stays full of “nobody gets it” messages. People feel lonely and frustrated because most people don’t get Rheumatoid Arthritis. No, I mean they don’t “get it” as in understand what it is like. Recently, we discussed the UK campaign...Continue reading 38 Comments » Read more

Friend of Rheumatoid Arthritis Warrior Shares Her Heart

July 3, 2009May 17, 2018 Kelly Young 9 Comments Communicating about RA, Courage & living with RA, Guest post on RA Warrior, Men with Rheumatoid Arthritis, Transparency & living with RA

I am so lucky to know a dear lady who sends me letters of encouragement about this blog. She is the widow of a man who lived with RA. I always wish everyone had an opportunity to hear some of her clever and uplifting words, so today I am sharing some of them with you. I...Continue reading 9 Comments » Read more

So Glad Your Rheumatoid Arthritis Is Cured

June 23, 2009May 17, 2018 Kelly Young 75 Comments Communicating about RA, Invisible Illness

“I am so glad to see that you are better now” I get these comments frequently and I am trying to understand them. Often, it occurs after I have washed my hair. Someone will come up and say, “I am glad to see that you are finally better.” It is awkward. And so are my reactions. Should I...Continue reading 75 Comments » Read more

The Invisible World of Rheumatoid Arthritis Speaks

June 7, 2009May 17, 2018 Kelly Young 19 Comments Communicating about RA, Invisible Illness, Rheumatoid Arthritis awareness

Bonus: What is gray and lights up? An electric elephant. Rheumatoid Arthritis Voices raised Aren’t you amazed at the explosion of online activity related to Rheumatoid Arthritis? Of course the spammers have caught on to that. But there's real RA blogs too. You can hear fresh energy and hearing new voices all the time. Our movement is not unified by any organization....Continue reading 19 Comments » Read more

The Use It or Lose It Approach to Living with Rheumatoid Arthritis

June 5, 2009May 17, 2018 Kelly Young 29 Comments Communicating about RA, Invisible Illness, Rheumatoid Arthritis awareness, Transparency & living with RA

Does Use It or Lose It Work for living with RA? Gee, I hope you won’t mind another beach story. Here is a different view of the same beach. Right about the time I was finally diagnosed with Rheumatoid Arthritis, I got a call from a friend who was coming to the coast for a vacation. “Bring...Continue reading 29 Comments » Read more

Empathy for Rheumatoid Arthritis Support

May 27, 2009May 17, 2018 Kelly Young 3 Comments Communicating about RA, Empathy and RA, Invisible Illness

Empathy for Rheumatoid Arthritis: Zero to 60 in 15 Seconds Wouldn't it be great if someone could understand how we're doing and have empathy for rheumatoid arthritis? Imagine describing how RA makes you feel in 15 seconds flat. We lament the fact that there is a wide world out there that just “doesn’t get it.” My own world is the...Continue reading 3 Comments » Read more

Two Causes of Rheumatoid Arthritis Site Reactions

May 24, 2009May 17, 2018 Kelly Young 23 Comments Communicating about RA, Enbrel, Side effects for RA medicine

2 kinds of site reactions It’s been a week of site reactions. There were lots of positive reactions to the new blog site. After a few days, I realized that I was receiving two distinct flavors of responses.There have been those who were encouraging: "Nice article”; Good writing”; and “Well done!” I am so grateful. Then there...Continue reading 23 Comments » Read more

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