Comprehensive RA Care Archives | Page 2 of 3 | Rheumatoid Arthritis Warrior

Comprehensive RA Care

Beginning Our 4th Year! 5 Stunning Things I Learned & My Forecast for the Future

Kelly Young 44 Comments ,
Three years ago today, I typed my first blog post in my back yard on a whim. My daughter had started to blog – what’s to worry about – just do it! Before that, I’d been working on ideas for months. I did have a goal: to build a website where RA patients could find...Continue reading      44 Comments » Read more

Significant Numbers of RA Patients Don’t Receive Recommended Care

Kelly Young 24 Comments , ,
Understanding the reality of the disease is only half the battle We are making progress. Although there’s still a long way to go, patients are playing a part of advancements toward more complete understanding of Rheumatoid Arthritis as a disease. We might suppose that once RA is more widely understood to be a systemic disease, it...Continue reading      24 Comments » Read more

Secondary Sjogren’s Syndrome and Rheumatoid Arthritis: a Primary Problem

Kelly Young 32 Comments ,
Sjogren’s syndrome: have you seen the eye doc yet? When I wrote my first RA Warrior post on Sjogren’s syndrome in 2009, I wasn’t sure whether I’d ever be diagnosed with it. But I thought it was important to cover on the blog. I had a fun idea for illustrating the pronunciation of the name so...Continue reading      32 Comments » Read more

5 Reasons Rheumatoid Disease Is a Better Term than Rheumatoid Arthritis

Kelly Young 19 Comments , ,
The first blog post of this year told how I’ve come to prefer the term Rheumatoid Disease to Rheumatoid Arthritis. The response?  Within 2 days in Facebook-land, there were 294 Shares, 583 Likes, and 128 comments. There are now 1,000 Likes, 500 re-Tweets, and 80 blog comments. That’s people voting with their mouse: Yes. But as...Continue reading      19 Comments » Read more

Dear Warriors and Friends

Kelly Young 10 Comments , ,
The past three years are positively beyond anything I could have imagined. Do you have a moment? When I started blogging, I had dreams of this website. But it could take forever to learn enough about “code” to manage it… We’ll save the rest for another day, but do you realize rawarrior.com has at least 630 pages?...Continue reading      10 Comments » Read more

What about a Clinical Protocol for Rheumatoid Arthritis Disease?

Kelly Young 5 Comments ,
This was written in October 2011 as the fourth in the Frying Pan Post series. As most of you know, I’ve been crazy-busy since then, leaving many things on hold. These posts examine crucial ideas that have surfaced over the last couple of years on the blog. The Frying Pan Posts challenge the status quo...Continue reading      5 Comments » Read more

Preclinical Rheumatoid Disease: There Are No Joints in the Lungs

Kelly Young 57 Comments , ,
My mom used to read to me John Godfrey Saxe’s 19th century version of a famous Indian legend, The Blind Men and the Elephant. I’m certain it contributed to my zealous love of evidence. Over the last couple of years, interacting with thousands of people with Rheumatoid disease, I came to the conclusion that only...Continue reading      57 Comments » Read more

Can We Treat the Whole Person or at Least the Whole Disease?

Kelly Young 36 Comments , ,
It’s like watching The Terminal. RA is a Twilight Zone No-Man’s-Land disease. “Mr. Navorski, you cannot get into New York without a visa. You cannot get a visa without a passport, and you cannot get a new passport without a country. There’s nothing we can do for you here.” I got a letter today about one...Continue reading      36 Comments » Read more

A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 2

Kelly Young 28 Comments , ,
In part 1 of A Paradigm Shift in Rheumatoid Arthritis Disease Activity, we considered some reasons why better ways of considering RA disease activity are needed. Ideally, three key things should be considered regarding RA disease activity: The patient’s estimation of his disease activity (more here). Appropriate monitoring using available tests (read more here!) A more complete paradigm...Continue reading      28 Comments » Read more

A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 1

Kelly Young 66 Comments , ,
What is Rheumatoid Arthritis disease activity? People living with RA know it can affect them in unexpected ways that don’t involve joints. Just reading recent comments here, you can see people talking about these effects of RA: Drastic weight loss Frequent low-grade fevers Ruined teeth from dry mouth or autoimmune activity Heart or lung damage Depression Debilitating fatigue Various eye problems Speaking strictly of...Continue reading      66 Comments » Read more

Do you have a Rheumatology Care Team?

Kelly Young 40 Comments , ,
What’s a rheumatology care team? When I wrote the About pages for this site, I discussed the team of doctors and medical professionals that a person fighting Rheumatoid Arthritis might gather around him. Like Diabetes, I realized that people with RA could need plenty of monitoring and advice. The other day, I read an article in The...Continue reading      40 Comments » Read more

Rheumatoid Arthritis Muscle Wasting: Rheumatoid Cachexia

Kelly Young 62 Comments , , ,
Wasting time on Rheumatoid Arthritis muscle wasting? Rheumatoid Arthritis is famous for bone erosions and joint deformity. That’s bad enough, but RA doesn’t stop there. Rheumatoid Arthritis is a systemic disease which can affect all organs and systems in the body. One of the first RA symptoms I experienced was extreme weakness in muscles and tendons. As...Continue reading      62 Comments » Read more
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