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e-patient

Reliable Sources: Orencia Cough Side Effect & Notions of e-Patients

Kelly Young 62 Comments , , , ,
If I cited a percentage of patients who get a cough from Orencia, then I’d quote a source – probably a clinical trial. However, if I merely say, as a patient, that Orencia gave me a cough, then that is a firsthand experience and that’s another type of credible source for other patients. Diabetes blogger Kelly...Continue reading      62 Comments » Read more

Alice Goes to Jacksonville: Mayo Clinic Center for Social Media

Kelly Young 11 Comments , , ,
What’s the Mayo Clinic Social Media Health Network? I joked a lot about Alice in Wonderland this week as Katie Beth and I traveled to Jacksonville for the first meeting of the Advisory Board for the Mayo Clinic Center for Social Media (MCCSM). It was combined with a conference for members of Mayo Clinic’s new Social...Continue reading      11 Comments » Read more

Three Things Not to Say about Plagiarism to a Blogger

Kelly Young 55 Comments , ,
1) Oh, that’s just flattery, they like your writing. 2) Well, at least the message is getting out. 3) Don’t say anything because that will make you look bad. All of these have been said to me. And I’m not buying it. Click image to enlarge. My regular followers know that for I’ve been typing away about Rheumatoid Arthritis on...Continue reading      55 Comments » Read more

Patient Stories May Provide Real Help via Social Media

Kelly Young 7 Comments , ,
70 Patient stories on RA Warrior Today we add eight new stories to the RA onset story pages! Patients tell their own stories of how their Rheumatoid Arthritis developed and how they found a diagnosis. There are currently 70 Rheumatoid Arthritis patient stories on this site. There are 3 reasons I created these pages: I found other...Continue reading      7 Comments » Read more

General Practitioners Need Basic Rheumatoid Arthritis Information

Kelly Young 68 Comments , ,
Basic Rheumatoid Arthritis information is lacking in too many GP’s Murphy lurks – looking for a party to crash. (I have ways of dealing with him – read more here.) So, of course my good GP was on extended leave for the last few weeks while I’ve been trying to get every little medical duck in...Continue reading      68 Comments » Read more

Who Are e-Patients? A Simple Explanation

Kelly Young 18 Comments , ,
E-patient is a $10 word for a patient who is engaged and participating in treatment decisions. After all, these are our lives and our bodies or our children. To see a great discussion of a successful e-patient in action, please read about ePatient Dave on the e-patient tab on the menu. An example of why e-patients explore options...Continue reading      18 Comments » Read more

Video: Good Rheumatoid Arthritis Doctors Treat Patients

Kelly Young 95 Comments , ,
Rheumatoid Arthritis doctors who treat patients are good docs. Good doctors examine patients carefully and listen to their reports of symptoms. Good Rheumatoid Arthritis doctors don't rely on lab tests to tell them who has RA and who is in remission. Good doctors treat patients, not charts. I've met a few rheumalogy specialists who have told me that...Continue reading      95 Comments » Read more

The Empowered Patient

Below is my journal response to Laugh, Sing, and Eat Like a Pig by Dave deBronkart. Jump to today's entry. I had never heard of an empowered patient or “participatory medicine” In the spring of last year, I began to blog as Rheumatoid Arthritis Warrior. I knew there were other patient blogs. I’d seen a couple – literally....Continue reading      60 Comments » Read more

20 Questions RA Patients Should Ask a Doctor

Kelly Young 18 Comments , ,
There are lots of questions RA patients can and should ask doctors… The following is a list of suggested questions to ask a doctor. The list of questions was designed to be useful with a new RA doctor, but many of them you could ask any doctor. Some of these questions are from my own “must...Continue reading      18 Comments » Read more

Patient Assertiveness

Kelly Young 49 Comments , ,
Not enough patient assertiveness? If you saw the blog with the pretty Actemra brochures and the not-so-pretty bruises, you know I needed some patient assertiveness recently. My skin rarely bruises, but the coloring was not the worst thing. That elbow was stiffened and screaming for two weeks with a flare caused by the rough treatment of...Continue reading      49 Comments » Read more
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